Current Status and Challenges of the Development on Rare Disease Multi-Security Mechanisms Driven by Data Intelligence in China

The major obstacle to optimizing the design of rare disease coverage is the fragmented decision-making process among medical services, pharmaceuticals, and medical insurance departments. There is an urgent need to realize data sharing and digital empowerment, as well as to adopt top-level design and...

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Bibliographic Details
Main Authors: ZHAN Siyan, ZHANG Shuyang
Format: Article
Language:zho
Published: Editorial Office of Journal of Rare Diseases 2025-01-01
Series:罕见病研究
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Online Access:https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2025.01.001
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