Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial

Introduction: Many people with acquired brain injury (PwABI) and their family face long-term psychosocial problems and unmet needs. Currently, there are no structural and integrated health care services supporting life after brain injury. We evaluated Case Management (CM) for PWABI which aims to fac...

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Main Authors: Annemarie P. M. Stiekema, Bjorn Winkens, Desiree Bierlaagh, Mireille Donkervoort, Natska Jansen, Kitty H. M. Jurrius, Judith Zadoks, Caroline M. van Heugten
Format: Article
Language:English
Published: Ubiquity Press 2025-07-01
Series:International Journal of Integrated Care
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Online Access:https://account.ijic.org/index.php/up-j-ijic/article/view/8649
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author Annemarie P. M. Stiekema
Bjorn Winkens
Desiree Bierlaagh
Mireille Donkervoort
Natska Jansen
Kitty H. M. Jurrius
Judith Zadoks
Caroline M. van Heugten
author_facet Annemarie P. M. Stiekema
Bjorn Winkens
Desiree Bierlaagh
Mireille Donkervoort
Natska Jansen
Kitty H. M. Jurrius
Judith Zadoks
Caroline M. van Heugten
author_sort Annemarie P. M. Stiekema
collection DOAJ
description Introduction: Many people with acquired brain injury (PwABI) and their family face long-term psychosocial problems and unmet needs. Currently, there are no structural and integrated health care services supporting life after brain injury. We evaluated Case Management (CM) for PWABI which aims to facilitate access to and integration of health care and social services for people with complex problems. Methods: One-group repeated measures study including 62 PwABI and 36 caregivers in the Netherlands. Assessments were conducted every six months for 18–24 months. Primary outcome was psychosocial well-being (Hospital Anxiety and Depression Scale). Secondary outcomes were self-efficacy, participation, life satisfaction, and needs for PwABI and caregivers; and caregiver burden. Results: Anxiety reduced significantly in both PwABI and their caregivers. Over time, PwABI reported significantly fewer unmet needs, but more participation restrictions. Caregivers reported significantly less caregiver burden and more self-efficacy over time. Discussion: CM seems promising for reducing unmet needs in PwABI and improving some psychosocial outcomes in PwABI and caregivers. Lifelong CM may however be necessary. A randomized controlled study is needed to confirm whether the positive outcomes are due to CM. Conclusion: This study warrants further research to establish the effectiveness of CM for PWABI.
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series International Journal of Integrated Care
spelling doaj-art-8fb5148d4d5e49eabbcff138e50de92f2025-08-21T12:36:16ZengUbiquity PressInternational Journal of Integrated Care1568-41562025-07-01255510.5334/ijic.86498545Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group TrialAnnemarie P. M. Stiekema0https://orcid.org/0000-0002-6739-3772Bjorn Winkens1https://orcid.org/0000-0002-6747-6228Desiree Bierlaagh2Mireille Donkervoort3Natska Jansen4Kitty H. M. Jurrius5Judith Zadoks6Caroline M. van Heugten7https://orcid.org/0000-0003-4272-7315Department of Psychiatry and Neuropsychology, School of Mental Health and Neuroscience, Maastricht University, Maastricht; Limburg Brain Injury Center, Maastricht University, MaastrichtDepartment of Methodology and Statistics, Care and Public Health Research Institute (CAPHRI), Maastricht University, MaastrichtDesiree Bierlaagh (self-employed), HoutenHealth Care and Social Work Division, Windesheim University of Applied Sciences, AlmereMevrouw Slimmer Werken Social Innovation in Health Care and Well-Being, Drogteropslagen; Brain Injury Team, OverijsselHealth Care and Social Work Division, Windesheim University of Applied Sciences, AlmereIn-Tussen Foundation, Utrecht; BreinDok Innovation in Care, UtrechtDepartment of Psychiatry and Neuropsychology, School of Mental Health and Neuroscience, Maastricht University, Maastricht; Limburg Brain Injury Center, Maastricht University, Maastricht; Department of Neuropsychology and Psychopharmacology, Faculty of Psychology and Neuroscience, Maastricht University, Maastricht; Limburg Brain Injury Center, Maastricht University, MaastrichtIntroduction: Many people with acquired brain injury (PwABI) and their family face long-term psychosocial problems and unmet needs. Currently, there are no structural and integrated health care services supporting life after brain injury. We evaluated Case Management (CM) for PWABI which aims to facilitate access to and integration of health care and social services for people with complex problems. Methods: One-group repeated measures study including 62 PwABI and 36 caregivers in the Netherlands. Assessments were conducted every six months for 18–24 months. Primary outcome was psychosocial well-being (Hospital Anxiety and Depression Scale). Secondary outcomes were self-efficacy, participation, life satisfaction, and needs for PwABI and caregivers; and caregiver burden. Results: Anxiety reduced significantly in both PwABI and their caregivers. Over time, PwABI reported significantly fewer unmet needs, but more participation restrictions. Caregivers reported significantly less caregiver burden and more self-efficacy over time. Discussion: CM seems promising for reducing unmet needs in PwABI and improving some psychosocial outcomes in PwABI and caregivers. Lifelong CM may however be necessary. A randomized controlled study is needed to confirm whether the positive outcomes are due to CM. Conclusion: This study warrants further research to establish the effectiveness of CM for PWABI.https://account.ijic.org/index.php/up-j-ijic/article/view/8649acquired brain injurycaregiversintegrated carepsychosociallong-termoutcomes
spellingShingle Annemarie P. M. Stiekema
Bjorn Winkens
Desiree Bierlaagh
Mireille Donkervoort
Natska Jansen
Kitty H. M. Jurrius
Judith Zadoks
Caroline M. van Heugten
Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
International Journal of Integrated Care
acquired brain injury
caregivers
integrated care
psychosocial
long-term
outcomes
title Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
title_full Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
title_fullStr Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
title_full_unstemmed Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
title_short Case Management for People with Acquired Brain Injury with Complex Problems (Part 1): Outcomes of a One-group Trial
title_sort case management for people with acquired brain injury with complex problems part 1 outcomes of a one group trial
topic acquired brain injury
caregivers
integrated care
psychosocial
long-term
outcomes
url https://account.ijic.org/index.php/up-j-ijic/article/view/8649
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