The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research
ABSTRACT Introduction Patient and care partner engagement in research (PER) is important in generating knowledge to improve healthcare. Arts‐based methods (ABM) use art in the research process to share aesthetic knowledge, which is knowledge that may be too complex to share only verbally. Together,...
Saved in:
| Main Authors: | , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2024-12-01
|
| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.70127 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849766032728653824 |
|---|---|
| author | Emily K. Phillips Anna M. Chudyk Caroline Monnin Annette S. H. Schultz Rakesh C. Arora Todd A. Duhamel Sheila O'Keefe‐McCarthy |
| author_facet | Emily K. Phillips Anna M. Chudyk Caroline Monnin Annette S. H. Schultz Rakesh C. Arora Todd A. Duhamel Sheila O'Keefe‐McCarthy |
| author_sort | Emily K. Phillips |
| collection | DOAJ |
| description | ABSTRACT Introduction Patient and care partner engagement in research (PER) is important in generating knowledge to improve healthcare. Arts‐based methods (ABM) use art in the research process to share aesthetic knowledge, which is knowledge that may be too complex to share only verbally. Together, PER and ABM are potentially synergistic, as both are participatory, problem‐focused, dialogic, and collaborative; yet little is known of the utility of ABM for PER. Methods A narrative review was performed to identify, collate, and summarize the ways ABM has been used with PER and share the impacts of ABM on PER. The databases CINAHL, Scopus, and PubMed were searched, and 15 articles were included. Results A wide variety of ABM were used for PER, with some studies using multiple ABMs. The use of ABM for PER was reported to be decolonizing, shifted power from researchers to people with lived experience, and reduced tokenism. People with lived experience shared their knowledge directly through their art, deepening the understanding of their emotions, feelings, and relationships. Conclusion Researchers should consider the benefits of the participatory nature of ABM and explore how to engage people with lived experience in their work beyond data collection. Researchers engaging people with lived experience should consider using ABM as a way to operationalize PER to elicit aesthetic knowledge and strengthen power equalization. Patient or Public Contribution No patients or members of the public contributed to this review due to a lack of funding to support their meaningful involvement. |
| format | Article |
| id | doaj-art-8f53e4ea434c4753bb0c305a2d17c175 |
| institution | DOAJ |
| issn | 1369-6513 1369-7625 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj-art-8f53e4ea434c4753bb0c305a2d17c1752025-08-20T03:04:42ZengWileyHealth Expectations1369-65131369-76252024-12-01276n/an/a10.1111/hex.70127The Use of Arts‐Based Methods to Enhance Patient Engagement in Health ResearchEmily K. Phillips0Anna M. Chudyk1Caroline Monnin2Annette S. H. Schultz3Rakesh C. Arora4Todd A. Duhamel5Sheila O'Keefe‐McCarthy6Applied Health Sciences, Faculty of Graduate Studies University of Manitoba Winnipeg Manitoba CanadaCollege of Pharmacy University of Manitoba Winnipeg Manitoba CanadaNeil John Maclean Health Sciences Library University of Manitoba Winnipeg Manitoba CanadaCollege of Nursing, Rady Faculty of Health Sciences University of Manitoba Winnipeg Manitoba CanadaHarrington Heart and Vascular Institute University Hospitals – Cleveland Medical Center/Case Western Reserve University Cleveland Ohio USAInstitute of Cardiovascular Sciences St. Boniface Hospital Albrechtsen Research Centre Winnipeg MB CanadaDepartment of Nursing, Faculty of Applied Health Sciences Brock University St. Catharines Ontario CanadaABSTRACT Introduction Patient and care partner engagement in research (PER) is important in generating knowledge to improve healthcare. Arts‐based methods (ABM) use art in the research process to share aesthetic knowledge, which is knowledge that may be too complex to share only verbally. Together, PER and ABM are potentially synergistic, as both are participatory, problem‐focused, dialogic, and collaborative; yet little is known of the utility of ABM for PER. Methods A narrative review was performed to identify, collate, and summarize the ways ABM has been used with PER and share the impacts of ABM on PER. The databases CINAHL, Scopus, and PubMed were searched, and 15 articles were included. Results A wide variety of ABM were used for PER, with some studies using multiple ABMs. The use of ABM for PER was reported to be decolonizing, shifted power from researchers to people with lived experience, and reduced tokenism. People with lived experience shared their knowledge directly through their art, deepening the understanding of their emotions, feelings, and relationships. Conclusion Researchers should consider the benefits of the participatory nature of ABM and explore how to engage people with lived experience in their work beyond data collection. Researchers engaging people with lived experience should consider using ABM as a way to operationalize PER to elicit aesthetic knowledge and strengthen power equalization. Patient or Public Contribution No patients or members of the public contributed to this review due to a lack of funding to support their meaningful involvement.https://doi.org/10.1111/hex.70127arts‐based research methodspatient and public involvementpatient engagement in researchpatient involvement and engagementpatient‐oriented researchphotography |
| spellingShingle | Emily K. Phillips Anna M. Chudyk Caroline Monnin Annette S. H. Schultz Rakesh C. Arora Todd A. Duhamel Sheila O'Keefe‐McCarthy The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research Health Expectations arts‐based research methods patient and public involvement patient engagement in research patient involvement and engagement patient‐oriented research photography |
| title | The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research |
| title_full | The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research |
| title_fullStr | The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research |
| title_full_unstemmed | The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research |
| title_short | The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research |
| title_sort | use of arts based methods to enhance patient engagement in health research |
| topic | arts‐based research methods patient and public involvement patient engagement in research patient involvement and engagement patient‐oriented research photography |
| url | https://doi.org/10.1111/hex.70127 |
| work_keys_str_mv | AT emilykphillips theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT annamchudyk theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT carolinemonnin theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT annetteshschultz theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT rakeshcarora theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT toddaduhamel theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT sheilaokeefemccarthy theuseofartsbasedmethodstoenhancepatientengagementinhealthresearch AT emilykphillips useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT annamchudyk useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT carolinemonnin useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT annetteshschultz useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT rakeshcarora useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT toddaduhamel useofartsbasedmethodstoenhancepatientengagementinhealthresearch AT sheilaokeefemccarthy useofartsbasedmethodstoenhancepatientengagementinhealthresearch |