Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center
Abstract Introduction: The Fred Hutch/University of Washington/Seattle Children’s Cancer Consortium’s (Consortium) Office of Community Outreach & Engagement (OCOE) joined Stanford Medicine and Morehouse School of Medicine in implementing Engage for Equity Plus (E2PLUS), a multi-institutional c...
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866125000275/type/journal_article |
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| author | Katherine J. Briant Prajakta Adsul Elizabeth A. Carosso Marty Chakoian Diane Mapes Terri Coutee Bridgette Hempstead Laurie Hassell Wendy Law Jason A. Mendoza |
| author_facet | Katherine J. Briant Prajakta Adsul Elizabeth A. Carosso Marty Chakoian Diane Mapes Terri Coutee Bridgette Hempstead Laurie Hassell Wendy Law Jason A. Mendoza |
| author_sort | Katherine J. Briant |
| collection | DOAJ |
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Abstract
Introduction:
The Fred Hutch/University of Washington/Seattle Children’s Cancer Consortium’s (Consortium) Office of Community Outreach & Engagement (OCOE) joined Stanford Medicine and Morehouse School of Medicine in implementing Engage for Equity Plus (E2PLUS), a multi-institutional community of practice to learn and share patient-centered and community-engaged research (P/CEnR) practices. University of New Mexico (UNM) facilitated this collaboration.
Methods:
The Consortium formed a Champion Team of 12 people who participated in two virtual workshops facilitated by UNM. Consortium executive leadership (n = 4) participated in interviews, and investigators (n = 4) and community members/patient advocates (n = 8) participated in focus groups to provide institutional context regarding P/CEnR. This is a paper on the process and findings.
Results:
Through E2PLUS engagement, the Champion Team identified four strategies to address institutional health inequities: 1) increase participation of underrepresented groups at all levels of institutional leadership and advisory boards; 2) create an Office of Patient Engagement to train and support patients who participate in institutional initiatives and advise research teams; 3) expand community engagement training, resources, and institutional commitment to focus on community-identified social and health needs; and 4) establish an umbrella entity for health equity efforts across the Consortium.
Conclusion:
While the Consortium had longstanding community advisory boards and faculty and staff with P/CEnR expertise, it did not have centralized and institutionally supported P/CEnR resources, policies, and infrastructure. By participating in E2PLUS, the Champion Team received technical assistance to leverage qualitative data to influence strategies to guide the development of Consortium health equity infrastructure and capacity for P/CEnR in Washington.
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| format | Article |
| id | doaj-art-8ed750db9ee14c12a2fc3d35eed89140 |
| institution | OA Journals |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-8ed750db9ee14c12a2fc3d35eed891402025-08-20T01:54:16ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2025.27Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer centerKatherine J. Briant0https://orcid.org/0000-0003-4012-4326Prajakta Adsul1https://orcid.org/0000-0003-2860-4378Elizabeth A. Carosso2Marty Chakoian3Diane Mapes4Terri Coutee5Bridgette Hempstead6Laurie Hassell7Wendy Law8Jason A. Mendoza9https://orcid.org/0000-0003-0833-4358Fred Hutch/University of Washington/Seattle Children’s Cancer Consortium, Seattle, WA, USADepartment of Internal Medicine, School of Medicine, University of New Mexico and Cancer Control and Population Sciences Research Program, University of New Mexico Comprehensive Cancer Center, Albuquerque, NM, USAFred Hutch/University of Washington/Seattle Children’s Cancer Consortium, Seattle, WA, USAZERO Prostate Cancer Support Group, Seattle, WA, USAIndependent Patient Advocate, Seattle, WA, USADiepCfoundation, Duvall, WA, USACierra Sisters, Inc, Renton, WA, USAInstitute of Translational Health Sciences, University of Washington, Seattle, WA, USAFred Hutch/University of Washington/Seattle Children’s Cancer Consortium, Seattle, WA, USAFred Hutch/University of Washington/Seattle Children’s Cancer Consortium, Seattle, WA, USA Abstract Introduction: The Fred Hutch/University of Washington/Seattle Children’s Cancer Consortium’s (Consortium) Office of Community Outreach & Engagement (OCOE) joined Stanford Medicine and Morehouse School of Medicine in implementing Engage for Equity Plus (E2PLUS), a multi-institutional community of practice to learn and share patient-centered and community-engaged research (P/CEnR) practices. University of New Mexico (UNM) facilitated this collaboration. Methods: The Consortium formed a Champion Team of 12 people who participated in two virtual workshops facilitated by UNM. Consortium executive leadership (n = 4) participated in interviews, and investigators (n = 4) and community members/patient advocates (n = 8) participated in focus groups to provide institutional context regarding P/CEnR. This is a paper on the process and findings. Results: Through E2PLUS engagement, the Champion Team identified four strategies to address institutional health inequities: 1) increase participation of underrepresented groups at all levels of institutional leadership and advisory boards; 2) create an Office of Patient Engagement to train and support patients who participate in institutional initiatives and advise research teams; 3) expand community engagement training, resources, and institutional commitment to focus on community-identified social and health needs; and 4) establish an umbrella entity for health equity efforts across the Consortium. Conclusion: While the Consortium had longstanding community advisory boards and faculty and staff with P/CEnR expertise, it did not have centralized and institutionally supported P/CEnR resources, policies, and infrastructure. By participating in E2PLUS, the Champion Team received technical assistance to leverage qualitative data to influence strategies to guide the development of Consortium health equity infrastructure and capacity for P/CEnR in Washington. https://www.cambridge.org/core/product/identifier/S2059866125000275/type/journal_articlePatient and community-engaged research (P/CEnR)community-academic partnershipshealth equitypatient advocatesqualitative methodsacademic health center |
| spellingShingle | Katherine J. Briant Prajakta Adsul Elizabeth A. Carosso Marty Chakoian Diane Mapes Terri Coutee Bridgette Hempstead Laurie Hassell Wendy Law Jason A. Mendoza Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center Journal of Clinical and Translational Science Patient and community-engaged research (P/CEnR) community-academic partnerships health equity patient advocates qualitative methods academic health center |
| title | Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center |
| title_full | Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center |
| title_fullStr | Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center |
| title_full_unstemmed | Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center |
| title_short | Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center |
| title_sort | adoption of e2plus tools and resources to promote the development of institutional capacity for patient centered and community engaged research at a cancer center |
| topic | Patient and community-engaged research (P/CEnR) community-academic partnerships health equity patient advocates qualitative methods academic health center |
| url | https://www.cambridge.org/core/product/identifier/S2059866125000275/type/journal_article |
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