Heterozygous variants in AP4S1 are not associated with a neurological phenotype

Abstract Biallelic loss‐of‐function variants in AP4S1 cause childhood‐onset hereditary spastic paraplegia. A recent report suggested that heterozygous AP4S1 variants lead to a syndrome of lower limb spasticity and dysregulation of sphincter function. We critically evaluate this claim against clinica...

Full description

Saved in:
Bibliographic Details
Main Authors: Vicente Quiroz, Umar Zubair, Luca Schierbaum, Amy Tam, Nicole Battaglia, Joshua Rong, Habibah A. P. Agianda, Julian E. Alecu, Kathryn Yang, Darius Ebrahimi‐Fakhari
Format: Article
Language:English
Published: Wiley 2025-04-01
Series:Annals of Clinical and Translational Neurology
Online Access:https://doi.org/10.1002/acn3.52302
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850171880485421056
author Vicente Quiroz
Umar Zubair
Luca Schierbaum
Amy Tam
Nicole Battaglia
Joshua Rong
Habibah A. P. Agianda
Julian E. Alecu
Kathryn Yang
Darius Ebrahimi‐Fakhari
author_facet Vicente Quiroz
Umar Zubair
Luca Schierbaum
Amy Tam
Nicole Battaglia
Joshua Rong
Habibah A. P. Agianda
Julian E. Alecu
Kathryn Yang
Darius Ebrahimi‐Fakhari
author_sort Vicente Quiroz
collection DOAJ
description Abstract Biallelic loss‐of‐function variants in AP4S1 cause childhood‐onset hereditary spastic paraplegia. A recent report suggested that heterozygous AP4S1 variants lead to a syndrome of lower limb spasticity and dysregulation of sphincter function. We critically evaluate this claim against clinical observations in 28 heterozygous carriers of the same AP4S1 variant (NM_007077.3: c.289C>T, p.Arg97Ter). In these 14 males and 14 females (mean age: 37.6 ± 4.9 years [SD], range: 30–50 years), we ascertain no increased prevalence of neurological manifestations. Alternative causes should be considered when evaluating patients with heterozygous AP4S1 variants and neurological symptoms, as misattribution of pathogenicity can impact clinical care and genetic counseling.
format Article
id doaj-art-8e63b2e2b6a34f6ca4d6431e730ca474
institution OA Journals
issn 2328-9503
language English
publishDate 2025-04-01
publisher Wiley
record_format Article
series Annals of Clinical and Translational Neurology
spelling doaj-art-8e63b2e2b6a34f6ca4d6431e730ca4742025-08-20T02:20:12ZengWileyAnnals of Clinical and Translational Neurology2328-95032025-04-0112485185410.1002/acn3.52302Heterozygous variants in AP4S1 are not associated with a neurological phenotypeVicente Quiroz0Umar Zubair1Luca Schierbaum2Amy Tam3Nicole Battaglia4Joshua Rong5Habibah A. P. Agianda6Julian E. Alecu7Kathryn Yang8Darius Ebrahimi‐Fakhari9Movement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAMovement Disorders Program, Department of Neurology Boston Children's Hospital, Harvard Medical School Boston Massachusetts USAAbstract Biallelic loss‐of‐function variants in AP4S1 cause childhood‐onset hereditary spastic paraplegia. A recent report suggested that heterozygous AP4S1 variants lead to a syndrome of lower limb spasticity and dysregulation of sphincter function. We critically evaluate this claim against clinical observations in 28 heterozygous carriers of the same AP4S1 variant (NM_007077.3: c.289C>T, p.Arg97Ter). In these 14 males and 14 females (mean age: 37.6 ± 4.9 years [SD], range: 30–50 years), we ascertain no increased prevalence of neurological manifestations. Alternative causes should be considered when evaluating patients with heterozygous AP4S1 variants and neurological symptoms, as misattribution of pathogenicity can impact clinical care and genetic counseling.https://doi.org/10.1002/acn3.52302
spellingShingle Vicente Quiroz
Umar Zubair
Luca Schierbaum
Amy Tam
Nicole Battaglia
Joshua Rong
Habibah A. P. Agianda
Julian E. Alecu
Kathryn Yang
Darius Ebrahimi‐Fakhari
Heterozygous variants in AP4S1 are not associated with a neurological phenotype
Annals of Clinical and Translational Neurology
title Heterozygous variants in AP4S1 are not associated with a neurological phenotype
title_full Heterozygous variants in AP4S1 are not associated with a neurological phenotype
title_fullStr Heterozygous variants in AP4S1 are not associated with a neurological phenotype
title_full_unstemmed Heterozygous variants in AP4S1 are not associated with a neurological phenotype
title_short Heterozygous variants in AP4S1 are not associated with a neurological phenotype
title_sort heterozygous variants in ap4s1 are not associated with a neurological phenotype
url https://doi.org/10.1002/acn3.52302
work_keys_str_mv AT vicentequiroz heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT umarzubair heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT lucaschierbaum heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT amytam heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT nicolebattaglia heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT joshuarong heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT habibahapagianda heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT julianealecu heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT kathrynyang heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype
AT dariusebrahimifakhari heterozygousvariantsinap4s1arenotassociatedwithaneurologicalphenotype