Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects
Objective — the presented study aims to systematize and structure significant information regarding the problems of patients with disorders of consciousness (DOC) and their families after discharge from the hospital, and to search for possible solutions. Material and Methods — to identify eligible...
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| Format: | Article |
| Language: | English |
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Limited liability company «Science and Innovations» (Saratov)
2022-12-01
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| Series: | Russian Open Medical Journal |
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| Online Access: | https://romj.org/node/505 |
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| author | Yulia Yu. Nekrasova Mikhail M. Kanarsky Ilya V. Borisov Pranil Pradhan Dmitry S. Yankevich Stanislav F. Roshka Marina V. Petrova Andrey V. Grechko |
| author_facet | Yulia Yu. Nekrasova Mikhail M. Kanarsky Ilya V. Borisov Pranil Pradhan Dmitry S. Yankevich Stanislav F. Roshka Marina V. Petrova Andrey V. Grechko |
| author_sort | Yulia Yu. Nekrasova |
| collection | DOAJ |
| description | Objective — the presented study aims to systematize and structure significant information regarding the problems of patients with disorders of consciousness (DOC) and their families after discharge from the hospital, and to search for possible solutions.
Material and Methods — to identify eligible studies, we searched the Medline database (via PubMed) for studies on socioeconomic and medical issues of patients with chronic DOC at the post-hospital stage of rehabilitation for the last 20 years.
Results — we included 28 studies with 21 cohorts of patients from 7 different countries in our study. The components of informal caregiver burden and their impact on the quality of life were identified and systematized. These components include high physical load, high economic costs, vast time expenditures, strong emotional involvement, and a top level of expertise in caregiving, all of which are required from the relatives.
Conclusion — It was affirmed, that the lack of healthcare system support was a major contributing factor to the overall burden. Our research also showed that delivering care without receiving information, advice, and training is extremely painful for family caregivers. |
| format | Article |
| id | doaj-art-8d70532b40e344d1b409d625562d4bd1 |
| institution | DOAJ |
| issn | 2304-3415 |
| language | English |
| publishDate | 2022-12-01 |
| publisher | Limited liability company «Science and Innovations» (Saratov) |
| record_format | Article |
| series | Russian Open Medical Journal |
| spelling | doaj-art-8d70532b40e344d1b409d625562d4bd12025-08-20T03:19:17ZengLimited liability company «Science and Innovations» (Saratov)Russian Open Medical Journal2304-34152022-12-01114e041210.15275/rusomj.2022.0412Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspectsYulia Yu. NekrasovaMikhail M. KanarskyIlya V. BorisovPranil PradhanDmitry S. YankevichStanislav F. RoshkaMarina V. PetrovaAndrey V. GrechkoObjective — the presented study aims to systematize and structure significant information regarding the problems of patients with disorders of consciousness (DOC) and their families after discharge from the hospital, and to search for possible solutions. Material and Methods — to identify eligible studies, we searched the Medline database (via PubMed) for studies on socioeconomic and medical issues of patients with chronic DOC at the post-hospital stage of rehabilitation for the last 20 years. Results — we included 28 studies with 21 cohorts of patients from 7 different countries in our study. The components of informal caregiver burden and their impact on the quality of life were identified and systematized. These components include high physical load, high economic costs, vast time expenditures, strong emotional involvement, and a top level of expertise in caregiving, all of which are required from the relatives. Conclusion — It was affirmed, that the lack of healthcare system support was a major contributing factor to the overall burden. Our research also showed that delivering care without receiving information, advice, and training is extremely painful for family caregivers.https://romj.org/node/505disorders of consciousness (doc)vegetative stateminimally conscious statehealthcareambulatory caresocial problemspsychological supportmedical aspectseconomicscaregiver burden. |
| spellingShingle | Yulia Yu. Nekrasova Mikhail M. Kanarsky Ilya V. Borisov Pranil Pradhan Dmitry S. Yankevich Stanislav F. Roshka Marina V. Petrova Andrey V. Grechko Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects Russian Open Medical Journal disorders of consciousness (doc) vegetative state minimally conscious state healthcare ambulatory care social problems psychological support medical aspects economics caregiver burden. |
| title | Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects |
| title_full | Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects |
| title_fullStr | Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects |
| title_full_unstemmed | Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects |
| title_short | Post-discharge plight of patients with chronic disorders of consciousness: A systematic review of socioeconomic and health aspects |
| title_sort | post discharge plight of patients with chronic disorders of consciousness a systematic review of socioeconomic and health aspects |
| topic | disorders of consciousness (doc) vegetative state minimally conscious state healthcare ambulatory care social problems psychological support medical aspects economics caregiver burden. |
| url | https://romj.org/node/505 |
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