Engaging adolescents and young adults in decisions about return of genomic research results: study protocol for a mixed-methods longitudinal clinical trial protocol

Engaging adolescents and young adults in decisions about return of genomic research results: study protocol for a mixed-methods longitudinal clinical trial protocol

Abstract Background To protect minors’ future autonomy, professional organizations have historically discouraged returning predictive adult-onset genetic test results and carrier status to children. Recent clinical guidance diverges from this norm, suggesting that when minors have genomic sequencing...

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Main Authors: Amy A. Blumling, Michelle L. McGowan, Cynthia A. Prows, Kristin Childers-Buschle, Lisa J. Martin, John A. Lynch, Kevin R. Dufendach, Ellen A. Lipstein, Melinda Butsch Kovacic, William B. Brinkman, Melanie F. Myers
Format: Article
Language:English
Published: BMC 2024-12-01
Series:BMC Medical Informatics and Decision Making
Subjects:
Adolescents
Young adults
Parents
Decision making
Genomic testing
Genetic testing
Online Access:https://doi.org/10.1186/s12911-024-02784-w
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