Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center
Background Telehealth has been used in the treatment of different diseases, and it has been shown to provide benefits for patients with amyotrophic lateral sclerosis (ALS). Due to the social distancing measures put into effect during the coronavirus disease 2019 (COVID-19) pandemic, there was an urg...
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| Format: | Article |
| Language: | English |
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Thieme Revinter Publicações
2023-05-01
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| Series: | Arquivos de Neuro-Psiquiatria |
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| Online Access: | http://www.thieme-connect.de/DOI/DOI?10.1055/s-0043-1768161 |
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| author | Emanuela Coriolano Fidelix Glauciane Costa Santana Daniele Montenegro da Silva Barros Mário Emílio Teixeira Dourado Junior |
| author_facet | Emanuela Coriolano Fidelix Glauciane Costa Santana Daniele Montenegro da Silva Barros Mário Emílio Teixeira Dourado Junior |
| author_sort | Emanuela Coriolano Fidelix |
| collection | DOAJ |
| description | Background Telehealth has been used in the treatment of different diseases, and it has been shown to provide benefits for patients with amyotrophic lateral sclerosis (ALS). Due to the social distancing measures put into effect during the coronavirus disease 2019 (COVID-19) pandemic, there was an urgent need for telehealth to ensure the provision of healthcare.
Objective To evaluate the feasibility of telehealth for the provision of multidisciplinary ALS care, and to assess its acceptability among patients and caregivers.
Methods We conducted a retrospective cohort study in which multidisciplinary evaluations were performed using the Teleconsulta platform. The patients included had ALS and at least one in-person clinical evaluation. The patients and the caregivers answered satisfaction questionnaires.
Results The sample was composed of 46 patients, 32 male and 14 female subjects. The average distance from their residences to the reference services was of 115 km. Respiratory adjustment was the most addressed topic.
Conclusion The strategy is viable and well accepted in terms of satisfaction. It was even more positive for patients in advanced stages of the disease or for those living far from the referral center. |
| format | Article |
| id | doaj-art-8b1574d2d5594b80b57d8ef5d8e2271d |
| institution | DOAJ |
| issn | 0004-282X 1678-4227 |
| language | English |
| publishDate | 2023-05-01 |
| publisher | Thieme Revinter Publicações |
| record_format | Article |
| series | Arquivos de Neuro-Psiquiatria |
| spelling | doaj-art-8b1574d2d5594b80b57d8ef5d8e2271d2025-08-20T03:06:48ZengThieme Revinter PublicaçõesArquivos de Neuro-Psiquiatria0004-282X1678-42272023-05-01810546947410.1055/s-0043-1768161Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference centerEmanuela Coriolano Fidelix0Glauciane Costa Santana1Daniele Montenegro da Silva Barros2Mário Emílio Teixeira Dourado Junior3Universidade Federal do Rio Grande do Norte, Departamento de Medicina Integrada, Natal RN, Brazil.Universidade Federal do Rio Grande do Norte, Departamento de Medicina Integrada, Natal RN, Brazil.Universidade Federal do Rio Grande do Norte, Laboratório de Inovação Tecnológica em Saúde, Natal RN, Brazil.Universidade Federal do Rio Grande do Norte, Departamento de Medicina Integrada, Natal RN, Brazil.Background Telehealth has been used in the treatment of different diseases, and it has been shown to provide benefits for patients with amyotrophic lateral sclerosis (ALS). Due to the social distancing measures put into effect during the coronavirus disease 2019 (COVID-19) pandemic, there was an urgent need for telehealth to ensure the provision of healthcare. Objective To evaluate the feasibility of telehealth for the provision of multidisciplinary ALS care, and to assess its acceptability among patients and caregivers. Methods We conducted a retrospective cohort study in which multidisciplinary evaluations were performed using the Teleconsulta platform. The patients included had ALS and at least one in-person clinical evaluation. The patients and the caregivers answered satisfaction questionnaires. Results The sample was composed of 46 patients, 32 male and 14 female subjects. The average distance from their residences to the reference services was of 115 km. Respiratory adjustment was the most addressed topic. Conclusion The strategy is viable and well accepted in terms of satisfaction. It was even more positive for patients in advanced stages of the disease or for those living far from the referral center.http://www.thieme-connect.de/DOI/DOI?10.1055/s-0043-1768161amyotrophic lateral sclerosismotor neuron diseasetelemedicine |
| spellingShingle | Emanuela Coriolano Fidelix Glauciane Costa Santana Daniele Montenegro da Silva Barros Mário Emílio Teixeira Dourado Junior Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center Arquivos de Neuro-Psiquiatria amyotrophic lateral sclerosis motor neuron disease telemedicine |
| title | Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center |
| title_full | Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center |
| title_fullStr | Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center |
| title_full_unstemmed | Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center |
| title_short | Telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a Brazilian reference center |
| title_sort | telehealth for amyotrophic lateral sclerosis in a multidisciplinary service in a brazilian reference center |
| topic | amyotrophic lateral sclerosis motor neuron disease telemedicine |
| url | http://www.thieme-connect.de/DOI/DOI?10.1055/s-0043-1768161 |
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