Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol
Introduction Consumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals...
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| Language: | English |
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BMJ Publishing Group
2021-08-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/11/8/e048389.full |
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| author | Reema Harrison Elizabeth Manias Afaf Girgis Merrilyn Walton Carlene Wilson Holly Seale Allan Ben Smith Melvin Chin Desiree Leone Ashfaq Chauhan Bronwyn Newman Kathryn Joseph Jiadai Li Monika Latanik Ramesh Walpola Éidín Ní Shé Thit Tieu |
| author_facet | Reema Harrison Elizabeth Manias Afaf Girgis Merrilyn Walton Carlene Wilson Holly Seale Allan Ben Smith Melvin Chin Desiree Leone Ashfaq Chauhan Bronwyn Newman Kathryn Joseph Jiadai Li Monika Latanik Ramesh Walpola Éidín Ní Shé Thit Tieu |
| author_sort | Reema Harrison |
| collection | DOAJ |
| description | Introduction Consumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals, raising concerns about possible mistakes or risks in care and encouraging patients and caregivers to report suspected errors. Patients from ethnic minority backgrounds are particularly vulnerable to unsafe care, but current engagement strategies have not been developed specifically for (and with) this population. Using an adapted approach to experience-based codesign (EBCD) to support the target population, the aim of the project is to codesign consumer engagement interventions to increase consumer engagement and safety in New South Wales and Victorian cancer inpatient, outpatient and day procedure services.Methods and analysis A mixed-method project will be undertaken at six study sites. Our EBCD approach includes a preparatory phase in which we will provide training and support to the codesign participants, in addition to recruiting and training consumer cofacilitators for the codesign workshops. The project will follow the EBCD process of gathering and synthesising observational data from each cancer service, with interview data from consumers and staff. With the resulting in-depth understanding of the safety threats commonly experienced by ethnic minority consumers in each site, we will work through feedback events and codesign groups with consumers and staff to determine how they can be more involved with their care to minimise the potential for patient harm. Consumer engagement interventions will be coproduced in each of the six participating services that are tailored to the ethnic minority populations served.Ethics and dissemination Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee. The project will provide strategies for ethnic minority consumers to engage with cancer services to minimise healthcare-associated harm that may be applied to diverse healthcare settings. |
| format | Article |
| id | doaj-art-8ab9bec359e24fddbbac6143ff1cb2b6 |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2021-08-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-8ab9bec359e24fddbbac6143ff1cb2b62025-08-20T02:30:59ZengBMJ Publishing GroupBMJ Open2044-60552021-08-0111810.1136/bmjopen-2020-048389Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocolReema Harrison0Elizabeth Manias1Afaf Girgis2Merrilyn Walton3Carlene Wilson4Holly Seale5Allan Ben Smith6Melvin Chin7Desiree Leone8Ashfaq Chauhan9Bronwyn Newman10Kathryn JosephJiadai LiMonika LatanikRamesh Walpola11Éidín Ní ShéThit TieuAustralian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, AustraliaSchool of Nursing and Midwifery, Monash University, Clayton, Victoria, AustraliaIngham Institute of Applied Research, UNSW, Sydney, New South Wales, AustraliaOffice of Teaching and Learning in Medicine, The University of Sydney Faculty of Medicine and Health, Sydney, New South Wales, AustraliaPsychology, Austin Health, Heidelberg, Victoria, AustraliaSchool of Population Health, University of New South Wales, Sydney, New South Wales, AustraliaCentre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, University of New South Wales, Liverpool BC, New South Wales, AustraliaMedical Oncology, Prince of Wales Hospital and Community Health Services, Randwick, New South Wales, AustraliaMulticultural Health, Western Sydney Local Health District, Wentworthville, New South Wales, AustraliaPopulation Health, UNSW, Sydney, New South Wales, Australia1 Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, AustraliaUniversity of New South Wales, Sydney, New South Wales, AustraliaIntroduction Consumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals, raising concerns about possible mistakes or risks in care and encouraging patients and caregivers to report suspected errors. Patients from ethnic minority backgrounds are particularly vulnerable to unsafe care, but current engagement strategies have not been developed specifically for (and with) this population. Using an adapted approach to experience-based codesign (EBCD) to support the target population, the aim of the project is to codesign consumer engagement interventions to increase consumer engagement and safety in New South Wales and Victorian cancer inpatient, outpatient and day procedure services.Methods and analysis A mixed-method project will be undertaken at six study sites. Our EBCD approach includes a preparatory phase in which we will provide training and support to the codesign participants, in addition to recruiting and training consumer cofacilitators for the codesign workshops. The project will follow the EBCD process of gathering and synthesising observational data from each cancer service, with interview data from consumers and staff. With the resulting in-depth understanding of the safety threats commonly experienced by ethnic minority consumers in each site, we will work through feedback events and codesign groups with consumers and staff to determine how they can be more involved with their care to minimise the potential for patient harm. Consumer engagement interventions will be coproduced in each of the six participating services that are tailored to the ethnic minority populations served.Ethics and dissemination Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee. The project will provide strategies for ethnic minority consumers to engage with cancer services to minimise healthcare-associated harm that may be applied to diverse healthcare settings.https://bmjopen.bmj.com/content/11/8/e048389.full |
| spellingShingle | Reema Harrison Elizabeth Manias Afaf Girgis Merrilyn Walton Carlene Wilson Holly Seale Allan Ben Smith Melvin Chin Desiree Leone Ashfaq Chauhan Bronwyn Newman Kathryn Joseph Jiadai Li Monika Latanik Ramesh Walpola Éidín Ní Shé Thit Tieu Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol BMJ Open |
| title | Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol |
| title_full | Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol |
| title_fullStr | Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol |
| title_full_unstemmed | Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol |
| title_short | Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol |
| title_sort | codesigning consumer engagement strategies with ethnic minority consumers in australian cancer services the canengage project protocol |
| url | https://bmjopen.bmj.com/content/11/8/e048389.full |
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