Validating a codesigned paediatric patient reported experience measure: a study protocol
Introduction Patient reported experience measures (PREMs) are important tools to include the voices of patients in healthcare provision. Children have a right to be included in decisions made about their care. A self-reported, locally validated and standardised paediatric PREM (pPREM) does not exist...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2025-07-01
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| Series: | BMJ Paediatrics Open |
| Online Access: | https://bmjpaedsopen.bmj.com/content/9/1/e003490.full |
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| author | Valsamma Eapen Leslie White Jessica Nikolovski Barb Vernon Karlen R Barr James R John Sarah Elliott Lynn McCartney Claire Treadgold |
| author_facet | Valsamma Eapen Leslie White Jessica Nikolovski Barb Vernon Karlen R Barr James R John Sarah Elliott Lynn McCartney Claire Treadgold |
| author_sort | Valsamma Eapen |
| collection | DOAJ |
| description | Introduction Patient reported experience measures (PREMs) are important tools to include the voices of patients in healthcare provision. Children have a right to be included in decisions made about their care. A self-reported, locally validated and standardised paediatric PREM (pPREM) does not exist for use in Australian healthcare settings. Further, existing pPREMs are rarely codesigned with children or developed to be completed by children themselves. This study aims to validate a pPREM that will be completed by children within Australian healthcare settings.Methods and analysis This study will involve three subphases, engaging children aged 6–11 years old who have had a hospital admission in the past 3 months. First, up to 25 children will participate in cognitive interviews to pilot test pPREM items. Using feedback from the interviews, population testing will occur with about 180 children at six Australian hospitals to determine the validity, reliability and feasibility of the pPREM. The study’s implementation process will be evaluated through interviews with approximately 25–30 clinicians, managers and other stakeholders. |
| format | Article |
| id | doaj-art-898915b7e7fa43e1aa409828db7639f4 |
| institution | DOAJ |
| issn | 2399-9772 |
| language | English |
| publishDate | 2025-07-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Paediatrics Open |
| spelling | doaj-art-898915b7e7fa43e1aa409828db7639f42025-08-20T02:47:59ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722025-07-019110.1136/bmjpo-2025-003490Validating a codesigned paediatric patient reported experience measure: a study protocolValsamma Eapen0Leslie White1Jessica Nikolovski2Barb Vernon3Karlen R Barr4James R John5Sarah Elliott6Lynn McCartney7Claire Treadgold8Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia1 Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, AustraliaFaculty of Medicine and Health, Susan Wakil School of Nursing and Midwifery, Sydney Quality of Life Office (SQOLO), University of Sydney, Sydney, New South Wales, Australia4 Women’s & Children’s Healthcare Australasia, Braddon, Australian Capital Territory, AustraliaAcademic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, AustraliaAcademic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, AustraliaWomen`s Healthcare Australasia and Children’s Healthcare Australasia, Mitchell, Australian Capital Territory, AustraliaThe Sydney Children’s Hospitals Network, Sydney, New South Wales, AustraliaFaculty of Medicine, University of New South Wales, Sydney, New South Wales, AustraliaIntroduction Patient reported experience measures (PREMs) are important tools to include the voices of patients in healthcare provision. Children have a right to be included in decisions made about their care. A self-reported, locally validated and standardised paediatric PREM (pPREM) does not exist for use in Australian healthcare settings. Further, existing pPREMs are rarely codesigned with children or developed to be completed by children themselves. This study aims to validate a pPREM that will be completed by children within Australian healthcare settings.Methods and analysis This study will involve three subphases, engaging children aged 6–11 years old who have had a hospital admission in the past 3 months. First, up to 25 children will participate in cognitive interviews to pilot test pPREM items. Using feedback from the interviews, population testing will occur with about 180 children at six Australian hospitals to determine the validity, reliability and feasibility of the pPREM. The study’s implementation process will be evaluated through interviews with approximately 25–30 clinicians, managers and other stakeholders.https://bmjpaedsopen.bmj.com/content/9/1/e003490.full |
| spellingShingle | Valsamma Eapen Leslie White Jessica Nikolovski Barb Vernon Karlen R Barr James R John Sarah Elliott Lynn McCartney Claire Treadgold Validating a codesigned paediatric patient reported experience measure: a study protocol BMJ Paediatrics Open |
| title | Validating a codesigned paediatric patient reported experience measure: a study protocol |
| title_full | Validating a codesigned paediatric patient reported experience measure: a study protocol |
| title_fullStr | Validating a codesigned paediatric patient reported experience measure: a study protocol |
| title_full_unstemmed | Validating a codesigned paediatric patient reported experience measure: a study protocol |
| title_short | Validating a codesigned paediatric patient reported experience measure: a study protocol |
| title_sort | validating a codesigned paediatric patient reported experience measure a study protocol |
| url | https://bmjpaedsopen.bmj.com/content/9/1/e003490.full |
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