Development and validation of the Iranian Minimum Data Set for Epidermolysis Bullosa: A mixed method approach.

Development and validation of the Iranian Minimum Data Set for Epidermolysis Bullosa: A mixed method approach.

Minimum Data Set (MDS) enables integration in data collection, uniform data reporting, and data exchange across clinical and research information systems. The current study was conducted to determine a comprehensive national MDS for the Epidermolysis Bullosa (EB) information management system in Ira...

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Bibliographic Details
Main Authors: Somayeh Paydar, Shahrbanoo Pahlevanynejad, Farkhondeh Asadi, Hamideh Ehtesham, Azam Sabahi
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2025-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0316791
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