Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care
The objective of this study was to examine families’ experiences living with acquired brain injury (ABI) using a research approach that included both the affected individual family member and the family together as a family group. A narrative inquiry study, informed by the life-stage approach of Lie...
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| Format: | Article |
| Language: | English |
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Wiley
2020-01-01
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| Series: | Nursing Research and Practice |
| Online Access: | http://dx.doi.org/10.1155/2020/8866534 |
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| author | Jane Karpa Wanda Chernomas Kerstin Roger Tuula Heinonen |
| author_facet | Jane Karpa Wanda Chernomas Kerstin Roger Tuula Heinonen |
| author_sort | Jane Karpa |
| collection | DOAJ |
| description | The objective of this study was to examine families’ experiences living with acquired brain injury (ABI) using a research approach that included both the affected individual family member and the family together as a family group. A narrative inquiry study, informed by the life-stage approach of Lieblich, Tuval-Mashiach, and Zilber, was used to obtain family stories. Families experiencing an ABI event were purposefully selected from different regions in a western Canadian province. Centered on the life stages of before the ABI event, now living with the ABI, and the future, thematic findings included: Families, a grounding force; Losses, individual and family; Family adaptive capacities; Experiences with the healthcare system-hospital to home; and A patchwork future-entering the unknown. Themes affirmed the significant impacts of ABI on individual and family members and acknowledged ABI as an ambiguous loss event. The findings also illuminated families’ strengths and resiliencies in coping with living with ABI. The study results suggest by “thinking family” nurses can contribute towards a healthcare model that focuses on “family” as the central unit of care. |
| format | Article |
| id | doaj-art-884cdfe943d8491da47bbbe241db6a04 |
| institution | Kabale University |
| issn | 2090-1429 2090-1437 |
| language | English |
| publishDate | 2020-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Nursing Research and Practice |
| spelling | doaj-art-884cdfe943d8491da47bbbe241db6a042025-08-20T03:37:38ZengWileyNursing Research and Practice2090-14292090-14372020-01-01202010.1155/2020/88665348866534Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered CareJane Karpa0Wanda Chernomas1Kerstin Roger2Tuula Heinonen3University of Brandon, Winnipeg, CanadaCollege of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, CanadaCommunity Health Sciences, University of Manitoba, Winnipeg, CanadaUniversity of Manitoba, Faculty of Social Work, Winnipeg, CanadaThe objective of this study was to examine families’ experiences living with acquired brain injury (ABI) using a research approach that included both the affected individual family member and the family together as a family group. A narrative inquiry study, informed by the life-stage approach of Lieblich, Tuval-Mashiach, and Zilber, was used to obtain family stories. Families experiencing an ABI event were purposefully selected from different regions in a western Canadian province. Centered on the life stages of before the ABI event, now living with the ABI, and the future, thematic findings included: Families, a grounding force; Losses, individual and family; Family adaptive capacities; Experiences with the healthcare system-hospital to home; and A patchwork future-entering the unknown. Themes affirmed the significant impacts of ABI on individual and family members and acknowledged ABI as an ambiguous loss event. The findings also illuminated families’ strengths and resiliencies in coping with living with ABI. The study results suggest by “thinking family” nurses can contribute towards a healthcare model that focuses on “family” as the central unit of care.http://dx.doi.org/10.1155/2020/8866534 |
| spellingShingle | Jane Karpa Wanda Chernomas Kerstin Roger Tuula Heinonen Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care Nursing Research and Practice |
| title | Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care |
| title_full | Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care |
| title_fullStr | Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care |
| title_full_unstemmed | Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care |
| title_short | Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care |
| title_sort | families experiences living with acquired brain injury thinking family a nursing pathway for family centered care |
| url | http://dx.doi.org/10.1155/2020/8866534 |
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