Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India
Background: Sickle cell anemia (SCA) is the most common inherited genetic red blood cell disorder, highly prevalent in the tribal population residing in the Central India. The affected populace are disadvantaged due to a lack of accessibility and unavailability of transportation, flawed communicatio...
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| Format: | Article |
| Language: | English |
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Wolters Kluwer Medknow Publications
2024-12-01
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| Series: | International Journal of Yoga |
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| Online Access: | https://journals.lww.com/10.4103/ijoy.ijoy_133_24 |
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| author | Thota Neeraja Ramesh Nanjundaiah Mavathur Himanshu Anirudhbhai Shukla Manmath Gharote |
| author_facet | Thota Neeraja Ramesh Nanjundaiah Mavathur Himanshu Anirudhbhai Shukla Manmath Gharote |
| author_sort | Thota Neeraja |
| collection | DOAJ |
| description | Background:
Sickle cell anemia (SCA) is the most common inherited genetic red blood cell disorder, highly prevalent in the tribal population residing in the Central India. The affected populace are disadvantaged due to a lack of accessibility and unavailability of transportation, flawed communication systems, insufficiency of health professionals, and basic health infrastructure.
Objective:
The objective was to set up a yoga-based lifestyle intervention (YBLI) center that is sustainable, accessible, affordable, and acceptable as the part of the Integrated Sickle Cell Anemia Research Program (ISCARP) randomized control trial study.
Methodology:
By analyzing previous government screenings, the study identified remote, high-prevalence areas. Based on these criteria, encompassing 58 villages were surveyed in Maharashtra. Bijari village in Nandurbar was chosen for setting up the YBLI center. This center was equipped with basic health facilities and Information and Communication Technology infrastructure, managed in a hybrid model by ISCARP staff and incentive-based government health workers. A Central Control Center was established at SVYASA University in Bangalore to coordinate all the activities.
Results:
The YBLI center was successfully set up in Bijari village. At the center, around 69 children and adolescents got benefited during Yoga intervention. Only one subject out of 34 in intervention cohort experienced mild crisis. Their basic vitals were recorded regularly. On 11 different occasions, sever crisis of the participants was addressed which reduced morbidity and mortality rate. Furthermore, a social and health profile of these participants was created and updated regularly using sickle cell patient Information Management System, SIMS Portal.
Discussion:
Establishment of easily accessible YBLI center for providing primary healthcare, tele consultation with doctors, and maintaining electronic medical record and monitoring and recording vitals in addition to providing adjuvant Yoga therapy.
Conclusion:
By offering prompt medical help and counseling, the YBLI center reduced the psychological and economic strain of sickle cell disease on the local populace. The center also captures and stores medical health records, updated on regular basis, which is of great value to the government in deciding and designing policies. |
| format | Article |
| id | doaj-art-86419a51718545a8824532362a69f0f2 |
| institution | Kabale University |
| issn | 0973-6131 2231-2714 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | International Journal of Yoga |
| spelling | doaj-art-86419a51718545a8824532362a69f0f22025-01-07T06:37:08ZengWolters Kluwer Medknow PublicationsInternational Journal of Yoga0973-61312231-27142024-12-0117318219410.4103/ijoy.ijoy_133_24Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in IndiaThota NeerajaRamesh Nanjundaiah MavathurHimanshu Anirudhbhai ShuklaManmath GharoteBackground: Sickle cell anemia (SCA) is the most common inherited genetic red blood cell disorder, highly prevalent in the tribal population residing in the Central India. The affected populace are disadvantaged due to a lack of accessibility and unavailability of transportation, flawed communication systems, insufficiency of health professionals, and basic health infrastructure. Objective: The objective was to set up a yoga-based lifestyle intervention (YBLI) center that is sustainable, accessible, affordable, and acceptable as the part of the Integrated Sickle Cell Anemia Research Program (ISCARP) randomized control trial study. Methodology: By analyzing previous government screenings, the study identified remote, high-prevalence areas. Based on these criteria, encompassing 58 villages were surveyed in Maharashtra. Bijari village in Nandurbar was chosen for setting up the YBLI center. This center was equipped with basic health facilities and Information and Communication Technology infrastructure, managed in a hybrid model by ISCARP staff and incentive-based government health workers. A Central Control Center was established at SVYASA University in Bangalore to coordinate all the activities. Results: The YBLI center was successfully set up in Bijari village. At the center, around 69 children and adolescents got benefited during Yoga intervention. Only one subject out of 34 in intervention cohort experienced mild crisis. Their basic vitals were recorded regularly. On 11 different occasions, sever crisis of the participants was addressed which reduced morbidity and mortality rate. Furthermore, a social and health profile of these participants was created and updated regularly using sickle cell patient Information Management System, SIMS Portal. Discussion: Establishment of easily accessible YBLI center for providing primary healthcare, tele consultation with doctors, and maintaining electronic medical record and monitoring and recording vitals in addition to providing adjuvant Yoga therapy. Conclusion: By offering prompt medical help and counseling, the YBLI center reduced the psychological and economic strain of sickle cell disease on the local populace. The center also captures and stores medical health records, updated on regular basis, which is of great value to the government in deciding and designing policies.https://journals.lww.com/10.4103/ijoy.ijoy_133_24primary healthcare servicesremote tribal areasickle cell anemiayoga therapy |
| spellingShingle | Thota Neeraja Ramesh Nanjundaiah Mavathur Himanshu Anirudhbhai Shukla Manmath Gharote Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India International Journal of Yoga primary healthcare services remote tribal area sickle cell anemia yoga therapy |
| title | Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India |
| title_full | Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India |
| title_fullStr | Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India |
| title_full_unstemmed | Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India |
| title_short | Establishment of a Comprehensive Platform for Sustained Delivery of Yoga Therapy for Sickle Cell Anemia in Rural and Remote Tribal Pocket in India |
| title_sort | establishment of a comprehensive platform for sustained delivery of yoga therapy for sickle cell anemia in rural and remote tribal pocket in india |
| topic | primary healthcare services remote tribal area sickle cell anemia yoga therapy |
| url | https://journals.lww.com/10.4103/ijoy.ijoy_133_24 |
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