Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review
Abstract Background Scaling in health and social services (HSS) aims to increase the intended impact of proven effective interventions. Patient and public involvement (PPI) is critical for ensuring that scaling beneficiaries’ interests are served. We aimed to identify PPI strategies and their charac...
Saved in:
| Main Authors: | , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2024-06-01
|
| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.14086 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849329107452559360 |
|---|---|
| author | Roberta deCarvalho Corôa Ali Ben Charif Vincent Robitaille Diogo G. V. Mochcovitch Mamane Abdoulaye Samri Talagbe Gabin Akpo Amédé Gogovor Virginie Blanchette Lucas Gomes Souza Kathy Kastner Amélie M. Achim Robert K. D. McLean Andrew Milat France Légaré The RePOS Network |
| author_facet | Roberta deCarvalho Corôa Ali Ben Charif Vincent Robitaille Diogo G. V. Mochcovitch Mamane Abdoulaye Samri Talagbe Gabin Akpo Amédé Gogovor Virginie Blanchette Lucas Gomes Souza Kathy Kastner Amélie M. Achim Robert K. D. McLean Andrew Milat France Légaré The RePOS Network |
| author_sort | Roberta deCarvalho Corôa |
| collection | DOAJ |
| description | Abstract Background Scaling in health and social services (HSS) aims to increase the intended impact of proven effective interventions. Patient and public involvement (PPI) is critical for ensuring that scaling beneficiaries’ interests are served. We aimed to identify PPI strategies and their characteristics in the science and practice of scaling in HSS. Methods In this scoping review, we included any scaling initiative in HSS that used PPI strategies and reported PPI methods and outcomes. We searched electronic databases (e.g., Medline) from inception to 5 February 2024, and grey literature (e.g., Google). Paired reviewers independently selected and extracted eligible reports. A narrative synthesis was performed and we used the PRISMA for Scoping Reviews and the Guidance for Reporting Involvement of Patients and the Public (GRIPP2). Findings We included 110 unique reports out of 24,579 records. In the past 5 years, the evidence on PPI in scaling has increased faster than in any previous period. We found 236 mutually nonexclusive PPI strategies among 120 scaling initiatives. Twenty‐four initiatives did not target a specific country; but most of those that did so (n = 96) occurred in higher‐income countries (n = 51). Community‐based primary health care was the most frequent level of care (n = 103). Mostly, patients and the public were involved throughout all scaling phases (n = 46) and throughout the continuum of collaboration (n = 45); the most frequently reported ethical lens regarding the rationale for PPI was consequentialist‐utilitarian (n = 96). Few papers reported PPI recruitment processes (n = 31) or incentives used (n = 18). PPI strategies occurred mostly in direct care (n = 88). Patient and public education was the PPI strategy most reported (n = 31), followed by population consultations (n = 30). Conclusions PPI in scaling is increasing in HSS. Further investigation is needed to better document the PPI experience in scaling and ensure that it occurs in a meaningful and equitable way. Patient and Public Contribution Two patients were involved in this review. They shared decisions on review questions, data collection instruments, protocol design, and findings dissemination. Review Registration Open Science Framework on 19 August 2020 (https://osf.io/zqpx7/). |
| format | Article |
| id | doaj-art-84789c8e058d42978b7ec230cd86bfa9 |
| institution | Kabale University |
| issn | 1369-6513 1369-7625 |
| language | English |
| publishDate | 2024-06-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj-art-84789c8e058d42978b7ec230cd86bfa92025-08-20T03:47:21ZengWileyHealth Expectations1369-65131369-76252024-06-01273n/an/a10.1111/hex.14086Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping reviewRoberta deCarvalho Corôa0Ali Ben Charif1Vincent Robitaille2Diogo G. V. Mochcovitch3Mamane Abdoulaye Samri4Talagbe Gabin Akpo5Amédé Gogovor6Virginie Blanchette7Lucas Gomes Souza8Kathy Kastner9Amélie M. Achim10Robert K. D. McLean11Andrew Milat12France Légaré13The RePOS NetworkVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaCubecXpert Quebec City Quebec CanadaFaculty of Medicine Université Laval Quebec City Quebec CanadaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaFaculty of Nursing Université Laval Quebec City Quebec CanadaFaculty of Business Administration Université Laval Quebec City Quebec CanadaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaBest Endings Winnipeg Manitoba CanadaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaInternational Development Research Centre Ottawa Ontario CanadaSchool of Public Health University of Sydney Sydney New South Wales AustraliaVITAM—Centre de recherche en santé durable Centre intégré universitaire de santé et services sociaux de la Capitale‐Nationale Quebec City Quebec CanadaAbstract Background Scaling in health and social services (HSS) aims to increase the intended impact of proven effective interventions. Patient and public involvement (PPI) is critical for ensuring that scaling beneficiaries’ interests are served. We aimed to identify PPI strategies and their characteristics in the science and practice of scaling in HSS. Methods In this scoping review, we included any scaling initiative in HSS that used PPI strategies and reported PPI methods and outcomes. We searched electronic databases (e.g., Medline) from inception to 5 February 2024, and grey literature (e.g., Google). Paired reviewers independently selected and extracted eligible reports. A narrative synthesis was performed and we used the PRISMA for Scoping Reviews and the Guidance for Reporting Involvement of Patients and the Public (GRIPP2). Findings We included 110 unique reports out of 24,579 records. In the past 5 years, the evidence on PPI in scaling has increased faster than in any previous period. We found 236 mutually nonexclusive PPI strategies among 120 scaling initiatives. Twenty‐four initiatives did not target a specific country; but most of those that did so (n = 96) occurred in higher‐income countries (n = 51). Community‐based primary health care was the most frequent level of care (n = 103). Mostly, patients and the public were involved throughout all scaling phases (n = 46) and throughout the continuum of collaboration (n = 45); the most frequently reported ethical lens regarding the rationale for PPI was consequentialist‐utilitarian (n = 96). Few papers reported PPI recruitment processes (n = 31) or incentives used (n = 18). PPI strategies occurred mostly in direct care (n = 88). Patient and public education was the PPI strategy most reported (n = 31), followed by population consultations (n = 30). Conclusions PPI in scaling is increasing in HSS. Further investigation is needed to better document the PPI experience in scaling and ensure that it occurs in a meaningful and equitable way. Patient and Public Contribution Two patients were involved in this review. They shared decisions on review questions, data collection instruments, protocol design, and findings dissemination. Review Registration Open Science Framework on 19 August 2020 (https://osf.io/zqpx7/).https://doi.org/10.1111/hex.14086co‐constructionhealth and social servicesimplementation scienceparticipatory researchpatient and public involvement and engagement (PPIE)scalability |
| spellingShingle | Roberta deCarvalho Corôa Ali Ben Charif Vincent Robitaille Diogo G. V. Mochcovitch Mamane Abdoulaye Samri Talagbe Gabin Akpo Amédé Gogovor Virginie Blanchette Lucas Gomes Souza Kathy Kastner Amélie M. Achim Robert K. D. McLean Andrew Milat France Légaré The RePOS Network Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review Health Expectations co‐construction health and social services implementation science participatory research patient and public involvement and engagement (PPIE) scalability |
| title | Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review |
| title_full | Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review |
| title_fullStr | Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review |
| title_full_unstemmed | Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review |
| title_short | Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review |
| title_sort | strategies for involving patients and the public in scaling initiatives in health and social services a scoping review |
| topic | co‐construction health and social services implementation science participatory research patient and public involvement and engagement (PPIE) scalability |
| url | https://doi.org/10.1111/hex.14086 |
| work_keys_str_mv | AT robertadecarvalhocoroa strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT alibencharif strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT vincentrobitaille strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT diogogvmochcovitch strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT mamaneabdoulayesamri strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT talagbegabinakpo strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT amedegogovor strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT virginieblanchette strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT lucasgomessouza strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT kathykastner strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT ameliemachim strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT robertkdmclean strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT andrewmilat strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT francelegare strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview AT thereposnetwork strategiesforinvolvingpatientsandthepublicinscalinginitiativesinhealthandsocialservicesascopingreview |