Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh

Purpose. This study explored how community-dwelling persons with spinal cord injury (SCI) and their primary caregivers execute self-management strategies in daily activities. These strategies were mapped to a preexisting self-management framework. Methods. Photoelicitation focus group discussions we...

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Main Authors: Salma Begum, Yeasir A. Alve, Peter Bontje
Format: Article
Language:English
Published: Wiley 2022-01-01
Series:Occupational Therapy International
Online Access:http://dx.doi.org/10.1155/2022/2705104
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author Salma Begum
Yeasir A. Alve
Peter Bontje
author_facet Salma Begum
Yeasir A. Alve
Peter Bontje
author_sort Salma Begum
collection DOAJ
description Purpose. This study explored how community-dwelling persons with spinal cord injury (SCI) and their primary caregivers execute self-management strategies in daily activities. These strategies were mapped to a preexisting self-management framework. Methods. Photoelicitation focus group discussions were conducted among 14 adults with SCI and their primary caregivers (in two groups). Moreover, a constant comparative framework was used to analyze the data. Results. This study identified nine groups of self-management strategies, some of which could not be categorized under the three main self-management components generally accepted in the literature. Accordingly, a new component is proposed based off of this analysis, entitled management of social complexities, which includes crucial strategies such as (1) relocating to another environment, (2) behaving in an assertive manner, and (3) advocating for social change. Conclusion. The results show that self-management, traditionally described as medical, emotional, and role management, should also include the management of social complexities. The identified strategies could be considered in the development of self-management enhancement programs in lower-middle-income countries.
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institution Kabale University
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series Occupational Therapy International
spelling doaj-art-82b5a427780241bba1809995bc85e6bf2025-02-03T01:09:55ZengWileyOccupational Therapy International1557-07032022-01-01202210.1155/2022/2705104Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in BangladeshSalma Begum0Yeasir A. Alve1Peter Bontje2Department of Occupational TherapyDepartment of Occupational TherapyDepartment of Occupational TherapyPurpose. This study explored how community-dwelling persons with spinal cord injury (SCI) and their primary caregivers execute self-management strategies in daily activities. These strategies were mapped to a preexisting self-management framework. Methods. Photoelicitation focus group discussions were conducted among 14 adults with SCI and their primary caregivers (in two groups). Moreover, a constant comparative framework was used to analyze the data. Results. This study identified nine groups of self-management strategies, some of which could not be categorized under the three main self-management components generally accepted in the literature. Accordingly, a new component is proposed based off of this analysis, entitled management of social complexities, which includes crucial strategies such as (1) relocating to another environment, (2) behaving in an assertive manner, and (3) advocating for social change. Conclusion. The results show that self-management, traditionally described as medical, emotional, and role management, should also include the management of social complexities. The identified strategies could be considered in the development of self-management enhancement programs in lower-middle-income countries.http://dx.doi.org/10.1155/2022/2705104
spellingShingle Salma Begum
Yeasir A. Alve
Peter Bontje
Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
Occupational Therapy International
title Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
title_full Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
title_fullStr Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
title_full_unstemmed Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
title_short Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh
title_sort self management embedded in daily activities a photoelicitation focus group study among persons with spinal cord injury and their primary caregivers in bangladesh
url http://dx.doi.org/10.1155/2022/2705104
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