Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies
Global health emergencies often lead to a proliferation of health-related research and resultant data, which is shared across borders to help control the outbreak of disease and support decision-making regarding public health interventions. However, efforts to share data can be hindered by diverse i...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2024-10-01
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| Series: | Research Ethics Review |
| Online Access: | https://doi.org/10.1177/17470161241261907 |
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| _version_ | 1850184137855467520 |
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| author | Pamela Andanda Langelihle Mlotshwa |
| author_facet | Pamela Andanda Langelihle Mlotshwa |
| author_sort | Pamela Andanda |
| collection | DOAJ |
| description | Global health emergencies often lead to a proliferation of health-related research and resultant data, which is shared across borders to help control the outbreak of disease and support decision-making regarding public health interventions. However, efforts to share data can be hindered by diverse international ethical and legal frameworks. The frameworks aim to govern coordinated processing, sharing and transfer of health data across borders thus placing burdens on researchers who are willing or obligated to share data. In this paper, we investigate ethical values and legal principles that can be applied to ensure a more streamlined approach in the governance of cross-border health data sharing during global health emergencies. A scoping review approach was used to better understand emerging evidence about issues related to the ethical and legal governance of cross-border health data sharing. We first highlight the challenges of sharing health data across borders. We then discuss how the challenges might be overcome through the application of ethical values and legal principles that have been identified in literature. This is followed by a proposal for possible ways of streamlining the governance of health data sharing from ethical and legal perspectives in a bid to better prepare for future global health emergencies and promote the responsible sharing of health data. |
| format | Article |
| id | doaj-art-827b39e587c4407eadb00cd0afdd6fbb |
| institution | OA Journals |
| issn | 1747-0161 2047-6094 |
| language | English |
| publishDate | 2024-10-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Research Ethics Review |
| spelling | doaj-art-827b39e587c4407eadb00cd0afdd6fbb2025-08-20T02:17:08ZengSAGE PublishingResearch Ethics Review1747-01612047-60942024-10-012010.1177/17470161241261907Streamlining the ethical-legal governance of cross-border health data sharing during global health emergenciesPamela AndandaLangelihle MlotshwaGlobal health emergencies often lead to a proliferation of health-related research and resultant data, which is shared across borders to help control the outbreak of disease and support decision-making regarding public health interventions. However, efforts to share data can be hindered by diverse international ethical and legal frameworks. The frameworks aim to govern coordinated processing, sharing and transfer of health data across borders thus placing burdens on researchers who are willing or obligated to share data. In this paper, we investigate ethical values and legal principles that can be applied to ensure a more streamlined approach in the governance of cross-border health data sharing during global health emergencies. A scoping review approach was used to better understand emerging evidence about issues related to the ethical and legal governance of cross-border health data sharing. We first highlight the challenges of sharing health data across borders. We then discuss how the challenges might be overcome through the application of ethical values and legal principles that have been identified in literature. This is followed by a proposal for possible ways of streamlining the governance of health data sharing from ethical and legal perspectives in a bid to better prepare for future global health emergencies and promote the responsible sharing of health data.https://doi.org/10.1177/17470161241261907 |
| spellingShingle | Pamela Andanda Langelihle Mlotshwa Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies Research Ethics Review |
| title | Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies |
| title_full | Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies |
| title_fullStr | Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies |
| title_full_unstemmed | Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies |
| title_short | Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies |
| title_sort | streamlining the ethical legal governance of cross border health data sharing during global health emergencies |
| url | https://doi.org/10.1177/17470161241261907 |
| work_keys_str_mv | AT pamelaandanda streamliningtheethicallegalgovernanceofcrossborderhealthdatasharingduringglobalhealthemergencies AT langelihlemlotshwa streamliningtheethicallegalgovernanceofcrossborderhealthdatasharingduringglobalhealthemergencies |