Late-onset Pompe disease: preliminary results of enzyme replacement therapy

Pompe disease is an orphan hereditary accumulation disease associated with a deficiency of the lysosomal enzyme alglucosidase alpha. Manifestations of the disease are associated with pathological deposition of glycogen in body tissues as a result of GAA gene mutation and subsequent reduction in the...

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Main Authors: L. P. Smertina, F. I. Ausheva, A. V. Gryaznov, D. A. Svetlakov, L. N. Kolbasin
Format: Article
Language:Russian
Published: ABV-press 2019-07-01
Series:Нервно-мышечные болезни
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Online Access:https://nmb.abvpress.ru/jour/article/view/326
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author L. P. Smertina
F. I. Ausheva
A. V. Gryaznov
D. A. Svetlakov
L. N. Kolbasin
author_facet L. P. Smertina
F. I. Ausheva
A. V. Gryaznov
D. A. Svetlakov
L. N. Kolbasin
author_sort L. P. Smertina
collection DOAJ
description Pompe disease is an orphan hereditary accumulation disease associated with a deficiency of the lysosomal enzyme alglucosidase alpha. Manifestations of the disease are associated with pathological deposition of glycogen in body tissues as a result of GAA gene mutation and subsequent reduction in the activity of the enzyme alglucosidase alpha or acid maltase. The variety of phenotypic forms and varying degrees of damage to the skeletal and respiratory muscles, cardiomyocytes and internal organs greatly complicates the diagnosis and treatment of patients with Pompe»s disease. This article describes the clinical case of late-onset Pompe disease, which was followed by a course of enzyme replacement therapy, as well as an assessment of the condition before and after treatment and preliminary results.
format Article
id doaj-art-8201702c85ed42e8b8237c24b190c6e3
institution Kabale University
issn 2222-8721
2413-0443
language Russian
publishDate 2019-07-01
publisher ABV-press
record_format Article
series Нервно-мышечные болезни
spelling doaj-art-8201702c85ed42e8b8237c24b190c6e32025-08-20T03:38:15ZrusABV-pressНервно-мышечные болезни2222-87212413-04432019-07-0192434910.17650/2222-8721-2019-9-2-43-49240Late-onset Pompe disease: preliminary results of enzyme replacement therapyL. P. Smertina0F. I. Ausheva1A. V. Gryaznov2D. A. Svetlakov3L. N. Kolbasin4Surgut State University Budgetary institution of the Khanty-Mansiysk Autonomous Okrug – Ugra “Surgut district clinical hospital”Budgetary institution of the Khanty-Mansiysk Autonomous Okrug – Ugra “Surgut district clinical hospital”Budgetary institution of the Khanty-Mansiysk Autonomous Okrug – Ugra “Surgut district clinical hospital”Budgetary institution of the Khanty-Mansiysk Autonomous Okrug – Ugra “Surgut district clinical hospital”Budgetary institution of the Khanty-Mansiysk Autonomous Okrug – Ugra “District Cardiological Dispensary” Center for Diagnostic and Cardiovascular Surgery “Pompe disease is an orphan hereditary accumulation disease associated with a deficiency of the lysosomal enzyme alglucosidase alpha. Manifestations of the disease are associated with pathological deposition of glycogen in body tissues as a result of GAA gene mutation and subsequent reduction in the activity of the enzyme alglucosidase alpha or acid maltase. The variety of phenotypic forms and varying degrees of damage to the skeletal and respiratory muscles, cardiomyocytes and internal organs greatly complicates the diagnosis and treatment of patients with Pompe»s disease. This article describes the clinical case of late-onset Pompe disease, which was followed by a course of enzyme replacement therapy, as well as an assessment of the condition before and after treatment and preliminary results.https://nmb.abvpress.ru/jour/article/view/326late-onset pompe diseaseenzyme replacement therapymyozymegaa genealglucosidase alfab acidic maltase
spellingShingle L. P. Smertina
F. I. Ausheva
A. V. Gryaznov
D. A. Svetlakov
L. N. Kolbasin
Late-onset Pompe disease: preliminary results of enzyme replacement therapy
Нервно-мышечные болезни
late-onset pompe disease
enzyme replacement therapy
myozyme
gaa gene
alglucosidase alfab acidic maltase
title Late-onset Pompe disease: preliminary results of enzyme replacement therapy
title_full Late-onset Pompe disease: preliminary results of enzyme replacement therapy
title_fullStr Late-onset Pompe disease: preliminary results of enzyme replacement therapy
title_full_unstemmed Late-onset Pompe disease: preliminary results of enzyme replacement therapy
title_short Late-onset Pompe disease: preliminary results of enzyme replacement therapy
title_sort late onset pompe disease preliminary results of enzyme replacement therapy
topic late-onset pompe disease
enzyme replacement therapy
myozyme
gaa gene
alglucosidase alfab acidic maltase
url https://nmb.abvpress.ru/jour/article/view/326
work_keys_str_mv AT lpsmertina lateonsetpompediseasepreliminaryresultsofenzymereplacementtherapy
AT fiausheva lateonsetpompediseasepreliminaryresultsofenzymereplacementtherapy
AT avgryaznov lateonsetpompediseasepreliminaryresultsofenzymereplacementtherapy
AT dasvetlakov lateonsetpompediseasepreliminaryresultsofenzymereplacementtherapy
AT lnkolbasin lateonsetpompediseasepreliminaryresultsofenzymereplacementtherapy