“You get left behind and lost in a complex world of rare care”: equity in access to rare disease care—learnings from the Australian Rare Disease Awareness, Education, Support, and Training (RArEST) project

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Bibliographic Details
Main Authors: Elizabeth Emma Palmer, Krista Recsei, Lauren McKnight, Natalie Roberts, Adam Jaffe, Gareth Baynam, Yvonne Zurynski, Michelle Farrar, Louise Healy, Nicole Millis
Format: Article
Language:English
Published: Elsevier 2025-05-01
Series:EBioMedicine
Online Access:http://www.sciencedirect.com/science/article/pii/S2352396425001549
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