“You get left behind and lost in a complex world of rare care”: equity in access to rare disease care—learnings from the Australian Rare Disease Awareness, Education, Support, and Training (RArEST) project
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| Main Authors: | Elizabeth Emma Palmer, Krista Recsei, Lauren McKnight, Natalie Roberts, Adam Jaffe, Gareth Baynam, Yvonne Zurynski, Michelle Farrar, Louise Healy, Nicole Millis |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2025-05-01
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| Series: | EBioMedicine |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2352396425001549 |
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