Trust Testing in Care Pathways for Neurodevelopmental Disorders

Building care pathways for the expansive, heterogeneous, and complex field of neurodevelopmental disorders (ND) is challenging. This classic grounded theory study conceptualizes problems encountered and resolved by professionals in the unpacking— diagnosis and work up—of ND. A care pathway for ND in...

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Main Authors: Gustaf Waxegard, Hans Thulesius
Format: Article
Language:English
Published: Sociology Press 2016-06-01
Series:Grounded Theory Review: An International Journal
Subjects:
Online Access:https://groundedtheoryreview.org/index.php/gtr/article/view/226
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author Gustaf Waxegard
Hans Thulesius
author_facet Gustaf Waxegard
Hans Thulesius
author_sort Gustaf Waxegard
collection DOAJ
description Building care pathways for the expansive, heterogeneous, and complex field of neurodevelopmental disorders (ND) is challenging. This classic grounded theory study conceptualizes problems encountered and resolved by professionals in the unpacking— diagnosis and work up—of ND. A care pathway for ND in children and adolescents was observed for six years. Data include interviews, documentation of a dialogue-conference devoted to the ND care pathway, 100+ hours of participant observations, and coding of stakeholder actions. Trust testing explores whether professional unpacking collaboration can occur without being “stuck with the buck” and if other professionals can be approached to solve own unpacking priorities. ND complexity, scarce resources, and diverging stakeholder interests undermine the ability to make selfless collaborative professional choices in the care pathway. ND professionals and managers should pay as much attention to trust issues as they do to structures and patient flows. The trust testing theory may improve the understanding of ND care pathways further as a modified social dilemma framework.
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spelling doaj-art-7fbe72c33e444cdab8a2286490881e542025-08-20T03:23:58ZengSociology PressGrounded Theory Review: An International Journal1556-15421556-15502016-06-011501Trust Testing in Care Pathways for Neurodevelopmental DisordersGustaf WaxegardHans ThulesiusBuilding care pathways for the expansive, heterogeneous, and complex field of neurodevelopmental disorders (ND) is challenging. This classic grounded theory study conceptualizes problems encountered and resolved by professionals in the unpacking— diagnosis and work up—of ND. A care pathway for ND in children and adolescents was observed for six years. Data include interviews, documentation of a dialogue-conference devoted to the ND care pathway, 100+ hours of participant observations, and coding of stakeholder actions. Trust testing explores whether professional unpacking collaboration can occur without being “stuck with the buck” and if other professionals can be approached to solve own unpacking priorities. ND complexity, scarce resources, and diverging stakeholder interests undermine the ability to make selfless collaborative professional choices in the care pathway. ND professionals and managers should pay as much attention to trust issues as they do to structures and patient flows. The trust testing theory may improve the understanding of ND care pathways further as a modified social dilemma framework. https://groundedtheoryreview.org/index.php/gtr/article/view/226Care pathwaysNeurodevelopmental disordersADHDSocial dilemma
spellingShingle Gustaf Waxegard
Hans Thulesius
Trust Testing in Care Pathways for Neurodevelopmental Disorders
Grounded Theory Review: An International Journal
Care pathways
Neurodevelopmental disorders
ADHD
Social dilemma
title Trust Testing in Care Pathways for Neurodevelopmental Disorders
title_full Trust Testing in Care Pathways for Neurodevelopmental Disorders
title_fullStr Trust Testing in Care Pathways for Neurodevelopmental Disorders
title_full_unstemmed Trust Testing in Care Pathways for Neurodevelopmental Disorders
title_short Trust Testing in Care Pathways for Neurodevelopmental Disorders
title_sort trust testing in care pathways for neurodevelopmental disorders
topic Care pathways
Neurodevelopmental disorders
ADHD
Social dilemma
url https://groundedtheoryreview.org/index.php/gtr/article/view/226
work_keys_str_mv AT gustafwaxegard trusttestingincarepathwaysforneurodevelopmentaldisorders
AT hansthulesius trusttestingincarepathwaysforneurodevelopmentaldisorders