The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis

Thalassemia is a genetic blood condition and one of the emerging global public health concerns in the world, with an estimated prevalence of 300,000,000. The genes controlling hemoglobin production are affected, leading to an anemia of variable severity. Carriers of this hereditary anemia are found...

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Main Authors: Anis Arioua, David Shaw
Format: Article
Language:English
Published: Wolters Kluwer Medknow Publications 2025-07-01
Series:Asian Journal of Transfusion Science
Subjects:
Online Access:https://journals.lww.com/10.4103/ajts.ajts_123_23
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author Anis Arioua
David Shaw
author_facet Anis Arioua
David Shaw
author_sort Anis Arioua
collection DOAJ
description Thalassemia is a genetic blood condition and one of the emerging global public health concerns in the world, with an estimated prevalence of 300,000,000. The genes controlling hemoglobin production are affected, leading to an anemia of variable severity. Carriers of this hereditary anemia are found globally, but a high frequency is observed around the Mediterranean basin, in the Middle East, in the Indian subcontinent, and in Southeast Asia, so called the thalassemia belt. This article aims to review the history and factors of spreading of thalassemia, to identify the burden of the disease on individuals, population, and public health, and the issues that thalassemia patients have experienced during the pandemic of COVID-19. Online literature and previous studies on the disease are used to prepare this article. We identified various factors that have contributed to the spread of thalassemia in the last decades and affected the health condition of individuals and population. The recent worldwide pandemic of COVID-19 worsened the situation and made it more complicated for most patients, especially in the emerging countries.
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spelling doaj-art-7facbe36a1fe4129bcc1fb4085ff212c2025-08-20T03:44:28ZengWolters Kluwer Medknow PublicationsAsian Journal of Transfusion Science0973-62471998-35652025-07-0119112512910.4103/ajts.ajts_123_23The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisisAnis AriouaDavid ShawThalassemia is a genetic blood condition and one of the emerging global public health concerns in the world, with an estimated prevalence of 300,000,000. The genes controlling hemoglobin production are affected, leading to an anemia of variable severity. Carriers of this hereditary anemia are found globally, but a high frequency is observed around the Mediterranean basin, in the Middle East, in the Indian subcontinent, and in Southeast Asia, so called the thalassemia belt. This article aims to review the history and factors of spreading of thalassemia, to identify the burden of the disease on individuals, population, and public health, and the issues that thalassemia patients have experienced during the pandemic of COVID-19. Online literature and previous studies on the disease are used to prepare this article. We identified various factors that have contributed to the spread of thalassemia in the last decades and affected the health condition of individuals and population. The recent worldwide pandemic of COVID-19 worsened the situation and made it more complicated for most patients, especially in the emerging countries.https://journals.lww.com/10.4103/ajts.ajts_123_23blood disordercovid-19ethicspandemicthalassemia
spellingShingle Anis Arioua
David Shaw
The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
Asian Journal of Transfusion Science
blood disorder
covid-19
ethics
pandemic
thalassemia
title The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
title_full The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
title_fullStr The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
title_full_unstemmed The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
title_short The burden of thalassemia disorder: Past and present: The feedback of patients experience in the COVID-19 pandemic crisis
title_sort burden of thalassemia disorder past and present the feedback of patients experience in the covid 19 pandemic crisis
topic blood disorder
covid-19
ethics
pandemic
thalassemia
url https://journals.lww.com/10.4103/ajts.ajts_123_23
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