What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry

In participatory health research, people with lived experience of illness participate as co-researchers in the co-production of knowledge along with academic researchers. A central idea is to democratize knowledge production by creating space for co-researchers' experiential, embodied knowledge...

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Main Authors: Louise Phillips, Anders Larsen, Lotte Mengel
Format: Article
Language:English
Published: Specialty Publications 2022-08-01
Series:Journal of Participatory Research Methods
Online Access:https://doi.org/10.35844/001c.37638
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author Louise Phillips
Anders Larsen
Lotte Mengel
author_facet Louise Phillips
Anders Larsen
Lotte Mengel
author_sort Louise Phillips
collection DOAJ
description In participatory health research, people with lived experience of illness participate as co-researchers in the co-production of knowledge along with academic researchers. A central idea is to democratize knowledge production by creating space for co-researchers' experiential, embodied knowledge. The participatory research literature includes reflexive analyses exploring the complexities of co-production in participatory research. However, despite the democratic ideals, these analyses are almost always written by academic researchers alone. In this article, two co-researchers with lived experience of Parkinson's disease and an academic researcher carry out a collaborative autoethnographic inquiry into what "co-production" in participatory research means for participants *from their own perspectives*. In so doing, the article presents and illustrates a distinctive format for collaborative autoethnography as a participatory method that enables co-researchers and academic researchers to investigate, write, and publish about co-production together through dialogue across personal narratives. It also presents the specific insider insights the inquiry generated into what co-production means for participants.
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spelling doaj-art-7e5cb14bba31491f993d301f5a1b5b9b2025-08-20T03:20:47ZengSpecialty PublicationsJournal of Participatory Research Methods2688-02612022-08-013210.35844/001c.37638What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic InquiryLouise PhillipsAnders LarsenLotte MengelIn participatory health research, people with lived experience of illness participate as co-researchers in the co-production of knowledge along with academic researchers. A central idea is to democratize knowledge production by creating space for co-researchers' experiential, embodied knowledge. The participatory research literature includes reflexive analyses exploring the complexities of co-production in participatory research. However, despite the democratic ideals, these analyses are almost always written by academic researchers alone. In this article, two co-researchers with lived experience of Parkinson's disease and an academic researcher carry out a collaborative autoethnographic inquiry into what "co-production" in participatory research means for participants *from their own perspectives*. In so doing, the article presents and illustrates a distinctive format for collaborative autoethnography as a participatory method that enables co-researchers and academic researchers to investigate, write, and publish about co-production together through dialogue across personal narratives. It also presents the specific insider insights the inquiry generated into what co-production means for participants.https://doi.org/10.35844/001c.37638
spellingShingle Louise Phillips
Anders Larsen
Lotte Mengel
What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
Journal of Participatory Research Methods
title What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
title_full What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
title_fullStr What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
title_full_unstemmed What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
title_short What “Coproduction” in Participatory Research Means From Participants' Perspectives: A Collaborative Autoethnographic Inquiry
title_sort what coproduction in participatory research means from participants perspectives a collaborative autoethnographic inquiry
url https://doi.org/10.35844/001c.37638
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