A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data

The data described in this publication supported the development and evaluation of pan-ancestry reproductive carrier screening panels for autosomal recessive (AR) and X-linked (XL) conditions.Raw data included combined sets of DNA variants in 1,350 AR/XL genes obtained from the ClinVar and gnomAD da...

Full description

Saved in:
Bibliographic Details
Main Authors: Mia J. Gruzin, Matthew Hobbs, Sarah Poll, Swaroop Aradhya, Leslie Burnett
Format: Article
Language:English
Published: Elsevier 2025-08-01
Series:Data in Brief
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2352340925005621
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1849249417609084928
author Mia J. Gruzin
Matthew Hobbs
Sarah Poll
Swaroop Aradhya
Leslie Burnett
author_facet Mia J. Gruzin
Matthew Hobbs
Sarah Poll
Swaroop Aradhya
Leslie Burnett
author_sort Mia J. Gruzin
collection DOAJ
description The data described in this publication supported the development and evaluation of pan-ancestry reproductive carrier screening panels for autosomal recessive (AR) and X-linked (XL) conditions.Raw data included combined sets of DNA variants in 1,350 AR/XL genes obtained from the ClinVar and gnomAD databases. The dataset enabled calculations of positive yield for individuals and couples across both ancestry-specific and pan-ancestry, optimised ''Goldilocks''-ranked gene panels, addressing population-specific variations in the frequencies of heterozygous individuals and carrier couples.The positive yield analysis offered a performance metric for carrier screening panels, facilitating the modeling of screening performance for panels of varying sizes and composition and providing resources for optimizing panel content to ensure equity across underrepresented genetic ancestriesThe dataset can support ongoing research into the equitable application of carrier screening and offers significant reuse potential for refining population genetic screening practices, validating computational models, and developing frameworks to update carrier screening panels in alignment with evolving genomic data, including in underrepresented and minority populations.
format Article
id doaj-art-7db998febb944ea5bac309b1bb7dc9c2
institution Kabale University
issn 2352-3409
language English
publishDate 2025-08-01
publisher Elsevier
record_format Article
series Data in Brief
spelling doaj-art-7db998febb944ea5bac309b1bb7dc9c22025-08-20T03:57:36ZengElsevierData in Brief2352-34092025-08-016111183510.1016/j.dib.2025.111835A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley DataMia J. Gruzin0Matthew Hobbs1Sarah Poll2Swaroop Aradhya3Leslie Burnett4Garvan Institute of Medical Research, Darlinghurst, NSW 2010, Australia; School of Clinical Medicine, UNSW Medicine and Health, St Vincent’s Clinical Healthcare Campus, Darlinghurst, NSW 2010, AustraliaGarvan Institute of Medical Research, Darlinghurst, NSW 2010, AustraliaLabcorp Genetics Inc (formerly Invitae Corporation), San Francisco, CA 94304, USALabcorp Genetics Inc (formerly Invitae Corporation), San Francisco, CA 94304, USA; Stanford University School of Medicine, Department of Pathology, Stanford, CA 94304, USAGarvan Institute of Medical Research, Darlinghurst, NSW 2010, Australia; School of Clinical Medicine, UNSW Medicine and Health, St Vincent’s Clinical Healthcare Campus, Darlinghurst, NSW 2010, Australia; Northern Clinical School, Faculty of Medicine and Health, University of Sydney, St Leonards, NSW 2065, Australia; Virtus Genetics, Virtus Health Specialist Diagnostics, Revesby NSW 2212, Australia; Corresponding author.The data described in this publication supported the development and evaluation of pan-ancestry reproductive carrier screening panels for autosomal recessive (AR) and X-linked (XL) conditions.Raw data included combined sets of DNA variants in 1,350 AR/XL genes obtained from the ClinVar and gnomAD databases. The dataset enabled calculations of positive yield for individuals and couples across both ancestry-specific and pan-ancestry, optimised ''Goldilocks''-ranked gene panels, addressing population-specific variations in the frequencies of heterozygous individuals and carrier couples.The positive yield analysis offered a performance metric for carrier screening panels, facilitating the modeling of screening performance for panels of varying sizes and composition and providing resources for optimizing panel content to ensure equity across underrepresented genetic ancestriesThe dataset can support ongoing research into the equitable application of carrier screening and offers significant reuse potential for refining population genetic screening practices, validating computational models, and developing frameworks to update carrier screening panels in alignment with evolving genomic data, including in underrepresented and minority populations.http://www.sciencedirect.com/science/article/pii/S2352340925005621Reproductive geneticsCarrier screeningPan-ancestryEquitable
spellingShingle Mia J. Gruzin
Matthew Hobbs
Sarah Poll
Swaroop Aradhya
Leslie Burnett
A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
Data in Brief
Reproductive genetics
Carrier screening
Pan-ancestry
Equitable
title A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
title_full A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
title_fullStr A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
title_full_unstemmed A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
title_short A dataset of estimated heterozygous individual and carrier couple frequencies for pan-ancestry carrier screeningMendeley Data
title_sort dataset of estimated heterozygous individual and carrier couple frequencies for pan ancestry carrier screeningmendeley data
topic Reproductive genetics
Carrier screening
Pan-ancestry
Equitable
url http://www.sciencedirect.com/science/article/pii/S2352340925005621
work_keys_str_mv AT miajgruzin adatasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT matthewhobbs adatasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT sarahpoll adatasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT swarooparadhya adatasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT leslieburnett adatasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT miajgruzin datasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT matthewhobbs datasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT sarahpoll datasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT swarooparadhya datasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata
AT leslieburnett datasetofestimatedheterozygousindividualandcarriercouplefrequenciesforpanancestrycarrierscreeningmendeleydata