Reducing translational science roadblocks to disability research
Disability is a common and universal human experience. Yet, people with disabilities (PWDs) are in poorer health and have less access to quality healthcare than their non-disabled peers. In fact, the National Institutes of Health’s (NIH) designated PWDs as a health disparities population in 2023. Th...
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866125100733/type/journal_article |
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| author | Karen Bonuck Ariel Fishman |
| author_facet | Karen Bonuck Ariel Fishman |
| author_sort | Karen Bonuck |
| collection | DOAJ |
| description | Disability is a common and universal human experience. Yet, people with disabilities (PWDs) are in poorer health and have less access to quality healthcare than their non-disabled peers. In fact, the National Institutes of Health’s (NIH) designated PWDs as a health disparities population in 2023. This paper illustrates the application of translational science (TS) principles to overcoming roadblocks to reducing PWDs’ health disparities. Part I provides an overview of health disparities among PWDs and the recent designation – situating both within a TS framework. Part II summarizes literature on specific factors that contribute to PWDs’ exclusion from research, how these factors are reflected in background reports that impelled the designation of PWDs as a disparity population, and how the suggested steps to implement the designation reflect TS principles and its research agenda. Part III describes “Reducing Researcher Roadblocks to Including People with Disabilities in Research (D2/R3),” a TS solution to overcoming PWDs exclusion from research. D2/R3 is our institution’s Clinical and Translational Science Award research project – a mixed-methods study that targets research teams’ knowledge, attitudes, biases, and perceptions that contribution to under representation of persons with developmental disabilities in research. |
| format | Article |
| id | doaj-art-7d7d5f3f59d2446480c631bfab35263c |
| institution | DOAJ |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-7d7d5f3f59d2446480c631bfab35263c2025-08-20T03:07:26ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2025.10073Reducing translational science roadblocks to disability researchKaren Bonuck0https://orcid.org/0000-0003-3695-4669Ariel Fishman1https://orcid.org/0000-0002-0317-1169Departments of Family and Social Medicine, and Pediatrics Co-Director, University Center of Excellence in Developmental Disabilities, Institute for Clinical and Translational Research, Albert Einstein College of Medicine- Montefiore Medical Center, Bronx, NY, USADepartment of Epidemiology and Population Health, Institute for Clinical and Translational Research, Albert Einstein College of Medicine-Montefiore Medical Center, Bronx, NY, USADisability is a common and universal human experience. Yet, people with disabilities (PWDs) are in poorer health and have less access to quality healthcare than their non-disabled peers. In fact, the National Institutes of Health’s (NIH) designated PWDs as a health disparities population in 2023. This paper illustrates the application of translational science (TS) principles to overcoming roadblocks to reducing PWDs’ health disparities. Part I provides an overview of health disparities among PWDs and the recent designation – situating both within a TS framework. Part II summarizes literature on specific factors that contribute to PWDs’ exclusion from research, how these factors are reflected in background reports that impelled the designation of PWDs as a disparity population, and how the suggested steps to implement the designation reflect TS principles and its research agenda. Part III describes “Reducing Researcher Roadblocks to Including People with Disabilities in Research (D2/R3),” a TS solution to overcoming PWDs exclusion from research. D2/R3 is our institution’s Clinical and Translational Science Award research project – a mixed-methods study that targets research teams’ knowledge, attitudes, biases, and perceptions that contribution to under representation of persons with developmental disabilities in research.https://www.cambridge.org/core/product/identifier/S2059866125100733/type/journal_articleDisabilityNational Institutes of Health designationhealth disparity populationClinical and Translational Science Awardsdevelopmental disability |
| spellingShingle | Karen Bonuck Ariel Fishman Reducing translational science roadblocks to disability research Journal of Clinical and Translational Science Disability National Institutes of Health designation health disparity population Clinical and Translational Science Awards developmental disability |
| title | Reducing translational science roadblocks to disability research |
| title_full | Reducing translational science roadblocks to disability research |
| title_fullStr | Reducing translational science roadblocks to disability research |
| title_full_unstemmed | Reducing translational science roadblocks to disability research |
| title_short | Reducing translational science roadblocks to disability research |
| title_sort | reducing translational science roadblocks to disability research |
| topic | Disability National Institutes of Health designation health disparity population Clinical and Translational Science Awards developmental disability |
| url | https://www.cambridge.org/core/product/identifier/S2059866125100733/type/journal_article |
| work_keys_str_mv | AT karenbonuck reducingtranslationalscienceroadblockstodisabilityresearch AT arielfishman reducingtranslationalscienceroadblockstodisabilityresearch |