Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature

HTLV-1-associated Myelopathy/Tropical Spastic Paraparesis (HAM/TSP) is a progressive non-remitting and incapacitating disease more frequently seen in women and with a patchy worldwide distribution. HAM/TSP develops in a small percentage of HTLV-1-infected individuals during their lifetime and etiolo...

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Main Authors: Frederique A. Jacquerioz, Mauricio La Rosa, Elsa González-Lagos, Carolina Alvarez, Martin Tipismana, Karen Luhmann, Eduardo Gotuzzo
Format: Article
Language:English
Published: MDPI AG 2024-08-01
Series:Pathogens
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Online Access:https://www.mdpi.com/2076-0817/13/9/731
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author Frederique A. Jacquerioz
Mauricio La Rosa
Elsa González-Lagos
Carolina Alvarez
Martin Tipismana
Karen Luhmann
Eduardo Gotuzzo
author_facet Frederique A. Jacquerioz
Mauricio La Rosa
Elsa González-Lagos
Carolina Alvarez
Martin Tipismana
Karen Luhmann
Eduardo Gotuzzo
author_sort Frederique A. Jacquerioz
collection DOAJ
description HTLV-1-associated Myelopathy/Tropical Spastic Paraparesis (HAM/TSP) is a progressive non-remitting and incapacitating disease more frequently seen in women and with a patchy worldwide distribution. HAM/TSP develops in a small percentage of HTLV-1-infected individuals during their lifetime and etiologic factors for disease progression are still unclear. This study aims to describe the first case series of the progression of HAM/TSP in relation to pregnancy. Between January and March of 2012, we reviewed medical charts of women with HAM/TSP currently enrolled in the HTLV-1 cohort at the institute of tropical medicine of Cayetano Heredia University. Inclusion criteria included having a diagnosis of HAM/TSP according to the WHO guidelines and self-reported initial symptoms of HAM/TSP during pregnancy or within six months of delivery. Fifteen women reported having had symptoms compatible with HAM/TSP within four months of delivery. Among them, ten women had no symptoms before pregnancy and reported gait impairment after delivery. Five women with mild gait impairment before pregnancy noticed a worsening of their symptoms after delivery. Symptoms worsened after successive pregnancies. Recent studies have shown that HTLV-1 infection induces a strong T cell-mediated response and that the quality of this response plays a role in HAM/TSP pathogenesis. The relative immunosuppression during pregnancy, including blunting of the T-cell response, might allowed in certain women enhanced replication of HTLV-1 and disease progression in the postpartum. This is the first study looking specifically at HAM/TSP and pregnancy and the number of cases is remarkable. Further prospective studies of HTLV-1-infected women assessing immune markers during pregnancy are warranted. Breastfeeding was the main route of transmission. Strategies to prevent vertical transmission need to be evaluated in HTLV-1 endemic countries of Latin America.
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spelling doaj-art-7d4cf843f4354e468d3ca8bdec7851382025-08-20T01:55:45ZengMDPI AGPathogens2076-08172024-08-0113973110.3390/pathogens13090731Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the LiteratureFrederique A. Jacquerioz0Mauricio La Rosa1Elsa González-Lagos2Carolina Alvarez3Martin Tipismana4Karen Luhmann5Eduardo Gotuzzo6Department of Tropical Medicine, Tulane School of Public Health and Tropical Medicine, New Orleans, LA 70112, USADepartment of Obstetrics and Gynecology, Pennsylvania Hospital, Philadelphia, PA 19107, USAInstitute of Tropical Medicine Alexander von Humboldt, Universidad Peruana Cayetano Heredia, Lima 15102, PeruInstitute of Tropical Medicine Alexander von Humboldt, Universidad Peruana Cayetano Heredia, Lima 15102, PeruInstitute of Tropical Medicine Alexander von Humboldt, Universidad Peruana Cayetano Heredia, Lima 15102, PeruInstitute of Tropical Medicine Alexander von Humboldt, Universidad Peruana Cayetano Heredia, Lima 15102, PeruInstitute of Tropical Medicine Alexander von Humboldt, Universidad Peruana Cayetano Heredia, Lima 15102, PeruHTLV-1-associated Myelopathy/Tropical Spastic Paraparesis (HAM/TSP) is a progressive non-remitting and incapacitating disease more frequently seen in women and with a patchy worldwide distribution. HAM/TSP develops in a small percentage of HTLV-1-infected individuals during their lifetime and etiologic factors for disease progression are still unclear. This study aims to describe the first case series of the progression of HAM/TSP in relation to pregnancy. Between January and March of 2012, we reviewed medical charts of women with HAM/TSP currently enrolled in the HTLV-1 cohort at the institute of tropical medicine of Cayetano Heredia University. Inclusion criteria included having a diagnosis of HAM/TSP according to the WHO guidelines and self-reported initial symptoms of HAM/TSP during pregnancy or within six months of delivery. Fifteen women reported having had symptoms compatible with HAM/TSP within four months of delivery. Among them, ten women had no symptoms before pregnancy and reported gait impairment after delivery. Five women with mild gait impairment before pregnancy noticed a worsening of their symptoms after delivery. Symptoms worsened after successive pregnancies. Recent studies have shown that HTLV-1 infection induces a strong T cell-mediated response and that the quality of this response plays a role in HAM/TSP pathogenesis. The relative immunosuppression during pregnancy, including blunting of the T-cell response, might allowed in certain women enhanced replication of HTLV-1 and disease progression in the postpartum. This is the first study looking specifically at HAM/TSP and pregnancy and the number of cases is remarkable. Further prospective studies of HTLV-1-infected women assessing immune markers during pregnancy are warranted. Breastfeeding was the main route of transmission. Strategies to prevent vertical transmission need to be evaluated in HTLV-1 endemic countries of Latin America.https://www.mdpi.com/2076-0817/13/9/731human T lymphotropic virus 1HTLV-1pregnancypostpartumHTLV-1 associated myelopathy/tropical spastic paraparesis
spellingShingle Frederique A. Jacquerioz
Mauricio La Rosa
Elsa González-Lagos
Carolina Alvarez
Martin Tipismana
Karen Luhmann
Eduardo Gotuzzo
Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
Pathogens
human T lymphotropic virus 1
HTLV-1
pregnancy
postpartum
HTLV-1 associated myelopathy/tropical spastic paraparesis
title Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
title_full Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
title_fullStr Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
title_full_unstemmed Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
title_short Progression of HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis after Pregnancy: A Case Series and Review of the Literature
title_sort progression of htlv 1 associated myelopathy tropical spastic paraparesis after pregnancy a case series and review of the literature
topic human T lymphotropic virus 1
HTLV-1
pregnancy
postpartum
HTLV-1 associated myelopathy/tropical spastic paraparesis
url https://www.mdpi.com/2076-0817/13/9/731
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