Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature

Introduction. Hereditary hemorrhagic telangiectasia (HHT) is a rare autosomal dominant disorder with estimated prevalence of one in 5,000 to 10,000. The disease has age-related penetrance and the HHT signs and symptoms occur and worsen with age. A diagnosis of HHT is based on the Curacao`s criteria....

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Main Authors: Popović Dragan, Sokić-Milutinović Aleksandra, Đuranović Srđan, Alempijević Tamara, Zgradić Sanja, Matović Vera, Tončev Ljubiša, Lukić Snežana
Format: Article
Language:English
Published: Ministry of Defence of the Republic of Serbia, University of Defence, Belgrade 2019-01-01
Series:Vojnosanitetski Pregled
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Online Access:http://www.doiserbia.nb.rs/img/doi/0042-8450/2019/0042-84501700121P.pdf
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author Popović Dragan
Sokić-Milutinović Aleksandra
Đuranović Srđan
Alempijević Tamara
Zgradić Sanja
Matović Vera
Tončev Ljubiša
Lukić Snežana
author_facet Popović Dragan
Sokić-Milutinović Aleksandra
Đuranović Srđan
Alempijević Tamara
Zgradić Sanja
Matović Vera
Tončev Ljubiša
Lukić Snežana
author_sort Popović Dragan
collection DOAJ
description Introduction. Hereditary hemorrhagic telangiectasia (HHT) is a rare autosomal dominant disorder with estimated prevalence of one in 5,000 to 10,000. The disease has age-related penetrance and the HHT signs and symptoms occur and worsen with age. A diagnosis of HHT is based on the Curacao`s criteria. Case report. We report a case series of 6 patients diagnosed with HHT, 5 with definite and one with probable diagnosis according to the Curacao criteria. In 5 patients, the recurrent epistaxis occurred in adolescence as the first presentation while one patient presented with melena. The diagnosis was delayed in 5 patients and the presence of HHT was diagnosed during or after the fifth decade. In 4 patients, the overt gastrointestinal bleeding occurred in the later course of the disease. The asymptomatic pulmonary circulation arteriovenous malformations were detected in 2 patients. The cerebral arteriovenous malformations were not detected. Conclusion. Hereditary hemorrhagic telangiectasia is a rare disorder affecting multiple organs. It should be considered in the adolescents with recurrent epistaxis and in the differential diagnosis of anemia with signs of the gastrointestinal bleeding in order to shorten the delay in the diagnosis and subsequently improve the outcome of the disease.
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spelling doaj-art-7c5ae3d448994948a6c41aa2056e1e932025-08-20T03:06:53ZengMinistry of Defence of the Republic of Serbia, University of Defence, BelgradeVojnosanitetski Pregled0042-84502406-07202019-01-0176445245510.2298/VSP170412121P0042-84501700121PClinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literaturePopović Dragan0Sokić-Milutinović Aleksandra1Đuranović Srđan2Alempijević Tamara3Zgradić Sanja4Matović Vera5Tončev Ljubiša6Lukić Snežana7Faculty of Medicine, Belgrade + Clinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeFaculty of Medicine, Belgrade + Clinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeFaculty of Medicine, Belgrade + Clinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeFaculty of Medicine, Belgrade + Clinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeClinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeClinical Centre of Serbia, Emergency Center, BelgradeClinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeFaculty of Medicine, Belgrade + Clinical Centre of Serbia, Clinic for Gastroenterology and Hepatology, BelgradeIntroduction. Hereditary hemorrhagic telangiectasia (HHT) is a rare autosomal dominant disorder with estimated prevalence of one in 5,000 to 10,000. The disease has age-related penetrance and the HHT signs and symptoms occur and worsen with age. A diagnosis of HHT is based on the Curacao`s criteria. Case report. We report a case series of 6 patients diagnosed with HHT, 5 with definite and one with probable diagnosis according to the Curacao criteria. In 5 patients, the recurrent epistaxis occurred in adolescence as the first presentation while one patient presented with melena. The diagnosis was delayed in 5 patients and the presence of HHT was diagnosed during or after the fifth decade. In 4 patients, the overt gastrointestinal bleeding occurred in the later course of the disease. The asymptomatic pulmonary circulation arteriovenous malformations were detected in 2 patients. The cerebral arteriovenous malformations were not detected. Conclusion. Hereditary hemorrhagic telangiectasia is a rare disorder affecting multiple organs. It should be considered in the adolescents with recurrent epistaxis and in the differential diagnosis of anemia with signs of the gastrointestinal bleeding in order to shorten the delay in the diagnosis and subsequently improve the outcome of the disease.http://www.doiserbia.nb.rs/img/doi/0042-8450/2019/0042-84501700121P.pdftelangiectasia, herediatary hemorrhagicdiagnosis, differentialhemoptysisdigestive systemhemorrhagearteriovenous malformation
spellingShingle Popović Dragan
Sokić-Milutinović Aleksandra
Đuranović Srđan
Alempijević Tamara
Zgradić Sanja
Matović Vera
Tončev Ljubiša
Lukić Snežana
Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
Vojnosanitetski Pregled
telangiectasia, herediatary hemorrhagic
diagnosis, differential
hemoptysis
digestive system
hemorrhage
arteriovenous malformation
title Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
title_full Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
title_fullStr Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
title_full_unstemmed Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
title_short Clinical characteristics of hereditary hemorrhagic telangiectasia - case series and review of the literature
title_sort clinical characteristics of hereditary hemorrhagic telangiectasia case series and review of the literature
topic telangiectasia, herediatary hemorrhagic
diagnosis, differential
hemoptysis
digestive system
hemorrhage
arteriovenous malformation
url http://www.doiserbia.nb.rs/img/doi/0042-8450/2019/0042-84501700121P.pdf
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