Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey
Background: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality o...
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| Format: | Article |
| Language: | English |
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MDPI AG
2020-01-01
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| Series: | Journal of Market Access & Health Policy |
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| Online Access: | http://dx.doi.org/10.1080/20016689.2020.1720068 |
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| author | Ataru Igarashi Ayako Fukuda Lida Teng Fan-Fan Ma Julie Dorey Yoshie Onishi |
| author_facet | Ataru Igarashi Ayako Fukuda Lida Teng Fan-Fan Ma Julie Dorey Yoshie Onishi |
| author_sort | Ataru Igarashi |
| collection | DOAJ |
| description | Background: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality of Life (QoL), economic burden, and productivity loss among families living with dementia. Methods: An online survey was conducted among families who lived with relatives with dementia. Demographic data and information about health condition and costs of long-term care and treatment were collected. Participants were asked to answer the EuroQol (EQ-5D-5L) questionnaire, Zarit Burden Interview (ZARIT-8), and Work Productivity and Activity Impairment Questionnaire (WPAI). Multivariate analyses were conducted to assess factors associated with burden by families living with dementia. Results: Six hundred and thirty-five participants completed the survey. Of these participants, 50.5% were primary caregivers. Overall, 78.7% of dementia patients suffered from Alzheimer, and 43.9% needed long-term care. Compared to non-primary caregivers, primary caregivers had lower health utility scores (0.896 vs 0.873; p = 0.02), higher burden of caregiving (ZARIT-8: 21.1 vs 24.5; p < 0.0001), and higher overall work impairment (40.2% vs 20.8%; p < 0.0001), absenteeism (15.3% vs 5.7%; p < 0.0001), and presenteeism-related impairment (33.2% vs 17.3%; p < 0.0001). Conclusion: Families living with dementia caring for a person with dementia experience increased burden. Health policies related to dementia need to be considered not only for patients, but also for their families living with dementia to improve their QoL. |
| format | Article |
| id | doaj-art-7b4ef869e09a422db6becd6ac2caad25 |
| institution | DOAJ |
| issn | 2001-6689 |
| language | English |
| publishDate | 2020-01-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Journal of Market Access & Health Policy |
| spelling | doaj-art-7b4ef869e09a422db6becd6ac2caad252025-08-20T03:06:52ZengMDPI AGJournal of Market Access & Health Policy2001-66892020-01-018110.1080/20016689.2020.17200681720068Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based surveyAtaru Igarashi0Ayako Fukuda1Lida Teng2Fan-Fan Ma3Julie Dorey4Yoshie Onishi5The University of TokyoThe University of TokyoThe University of TokyoCreativ-Ceutical SARLCreativ-Ceutical SARLCreativ-Ceutical K.KBackground: Dementia has become a growing health-care problem in the rapidly ageing Japanese population. This study assesses the impact of dementia on quality of life, economic burden, and productivity loss. Objective: The objective of this study was to assess the impact of dementia on the Quality of Life (QoL), economic burden, and productivity loss among families living with dementia. Methods: An online survey was conducted among families who lived with relatives with dementia. Demographic data and information about health condition and costs of long-term care and treatment were collected. Participants were asked to answer the EuroQol (EQ-5D-5L) questionnaire, Zarit Burden Interview (ZARIT-8), and Work Productivity and Activity Impairment Questionnaire (WPAI). Multivariate analyses were conducted to assess factors associated with burden by families living with dementia. Results: Six hundred and thirty-five participants completed the survey. Of these participants, 50.5% were primary caregivers. Overall, 78.7% of dementia patients suffered from Alzheimer, and 43.9% needed long-term care. Compared to non-primary caregivers, primary caregivers had lower health utility scores (0.896 vs 0.873; p = 0.02), higher burden of caregiving (ZARIT-8: 21.1 vs 24.5; p < 0.0001), and higher overall work impairment (40.2% vs 20.8%; p < 0.0001), absenteeism (15.3% vs 5.7%; p < 0.0001), and presenteeism-related impairment (33.2% vs 17.3%; p < 0.0001). Conclusion: Families living with dementia caring for a person with dementia experience increased burden. Health policies related to dementia need to be considered not only for patients, but also for their families living with dementia to improve their QoL.http://dx.doi.org/10.1080/20016689.2020.1720068dementiaquality of lifefamily caregivercostproductivity losssurvey |
| spellingShingle | Ataru Igarashi Ayako Fukuda Lida Teng Fan-Fan Ma Julie Dorey Yoshie Onishi Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey Journal of Market Access & Health Policy dementia quality of life family caregiver cost productivity loss survey |
| title | Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey |
| title_full | Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey |
| title_fullStr | Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey |
| title_full_unstemmed | Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey |
| title_short | Family caregiving in dementia and its impact on quality of life and economic burden in Japan-web based survey |
| title_sort | family caregiving in dementia and its impact on quality of life and economic burden in japan web based survey |
| topic | dementia quality of life family caregiver cost productivity loss survey |
| url | http://dx.doi.org/10.1080/20016689.2020.1720068 |
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