Online health information seeking behavior among breast cancer patients and survivors: a scoping review

Abstract Purpose This scoping review aims to summarize online health information seeking (OHIS) behavior among breast cancer patients and survivors, identify research gaps, and offer insights for future studies. Methods Following Arksey and O’Malley’s framework, we conducted a review across PubMed,...

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Main Authors: Jialin Chen, Yiwen Duan, Haozhi Xia, Runxi Xiao, Tingting Cai, Changrong Yuan
Format: Article
Language:English
Published: BMC 2025-01-01
Series:BMC Women's Health
Subjects:
Online Access:https://doi.org/10.1186/s12905-024-03509-x
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author Jialin Chen
Yiwen Duan
Haozhi Xia
Runxi Xiao
Tingting Cai
Changrong Yuan
author_facet Jialin Chen
Yiwen Duan
Haozhi Xia
Runxi Xiao
Tingting Cai
Changrong Yuan
author_sort Jialin Chen
collection DOAJ
description Abstract Purpose This scoping review aims to summarize online health information seeking (OHIS) behavior among breast cancer patients and survivors, identify research gaps, and offer insights for future studies. Methods Following Arksey and O’Malley’s framework, we conducted a review across PubMed, Web of Science, CINAHL, MEDLINE, Cochrane, Embase, CNKI, Wanfang Data, and SinoMed, covering literature from 1 January 2014 to 13 August 2023. A total of 1,368 articles were identified, with 33 meeting the inclusion criteria. Two researchers independently screened, extracted, and summarized the data. Results The studies addressed three main themes:OHIS behavior, factors associated with OHIS, and intervention programs on OHIS. Key information sources included national or nonprofit cancer organizations’ websites, search engines, and social media. Commonly sought information involved breast cancer knowledge, treatment options, and prognosis, with information seeking behaviors varying by disease stages. While patients valued the convenience and accessibility of online resources, dissatisfaction was common due to inaccurate or misleading content. Factors such as age, education, income, disease characteristics, and psychological factors significantly influenced OHIS behaviors. Conclusion This review identifies significant gaps in exploring OHIS behavior among breast cancer patients and survivors, highlighting the inadequacy of current interventions. Future research should focus on diverse age groups, refine the language of web-based health information, enhance user comprehension of professional content, and develop tailored information systems for different stages of the health journey.
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spelling doaj-art-7b19b93401da44a9b563ba01146413462025-01-05T12:44:42ZengBMCBMC Women's Health1472-68742025-01-0125111110.1186/s12905-024-03509-xOnline health information seeking behavior among breast cancer patients and survivors: a scoping reviewJialin Chen0Yiwen Duan1Haozhi Xia2Runxi Xiao3Tingting Cai4Changrong Yuan5School of Nursing, Fudan UniversitySchool of Nursing, Fudan UniversitySchool of Nursing, Nanjing University of Chinese MedicineSchool of Nursing, Fudan UniversitySchool of Nursing, Fudan UniversitySchool of Nursing, Fudan UniversityAbstract Purpose This scoping review aims to summarize online health information seeking (OHIS) behavior among breast cancer patients and survivors, identify research gaps, and offer insights for future studies. Methods Following Arksey and O’Malley’s framework, we conducted a review across PubMed, Web of Science, CINAHL, MEDLINE, Cochrane, Embase, CNKI, Wanfang Data, and SinoMed, covering literature from 1 January 2014 to 13 August 2023. A total of 1,368 articles were identified, with 33 meeting the inclusion criteria. Two researchers independently screened, extracted, and summarized the data. Results The studies addressed three main themes:OHIS behavior, factors associated with OHIS, and intervention programs on OHIS. Key information sources included national or nonprofit cancer organizations’ websites, search engines, and social media. Commonly sought information involved breast cancer knowledge, treatment options, and prognosis, with information seeking behaviors varying by disease stages. While patients valued the convenience and accessibility of online resources, dissatisfaction was common due to inaccurate or misleading content. Factors such as age, education, income, disease characteristics, and psychological factors significantly influenced OHIS behaviors. Conclusion This review identifies significant gaps in exploring OHIS behavior among breast cancer patients and survivors, highlighting the inadequacy of current interventions. Future research should focus on diverse age groups, refine the language of web-based health information, enhance user comprehension of professional content, and develop tailored information systems for different stages of the health journey.https://doi.org/10.1186/s12905-024-03509-xOnline health information seekingBreast cancerSocial mediaHealth information
spellingShingle Jialin Chen
Yiwen Duan
Haozhi Xia
Runxi Xiao
Tingting Cai
Changrong Yuan
Online health information seeking behavior among breast cancer patients and survivors: a scoping review
BMC Women's Health
Online health information seeking
Breast cancer
Social media
Health information
title Online health information seeking behavior among breast cancer patients and survivors: a scoping review
title_full Online health information seeking behavior among breast cancer patients and survivors: a scoping review
title_fullStr Online health information seeking behavior among breast cancer patients and survivors: a scoping review
title_full_unstemmed Online health information seeking behavior among breast cancer patients and survivors: a scoping review
title_short Online health information seeking behavior among breast cancer patients and survivors: a scoping review
title_sort online health information seeking behavior among breast cancer patients and survivors a scoping review
topic Online health information seeking
Breast cancer
Social media
Health information
url https://doi.org/10.1186/s12905-024-03509-x
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AT runxixiao onlinehealthinformationseekingbehavioramongbreastcancerpatientsandsurvivorsascopingreview
AT tingtingcai onlinehealthinformationseekingbehavioramongbreastcancerpatientsandsurvivorsascopingreview
AT changrongyuan onlinehealthinformationseekingbehavioramongbreastcancerpatientsandsurvivorsascopingreview