Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households

Background: Indonesia is the second-highest country for tuberculosis (TB) incidence worldwide. Hence, it urgently requires improvements and innovations beyond the strategies that are currently being implemented throughout the country. One fundamental step in monitoring its progress is by preparing a...

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Main Authors: Ahmad Fuady, Tanja A Houweling, Muchtaruddin Mansyur, Jan H Richardus
Format: Article
Language:English
Published: Interna Publishing 2018-04-01
Series:Acta Medica Indonesiana
Subjects:
Online Access:https://actamedindones.org/index.php/ijim/article/view/347
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author Ahmad Fuady
Tanja A Houweling
Muchtaruddin Mansyur
Jan H Richardus
author_facet Ahmad Fuady
Tanja A Houweling
Muchtaruddin Mansyur
Jan H Richardus
author_sort Ahmad Fuady
collection DOAJ
description Background: Indonesia is the second-highest country for tuberculosis (TB) incidence worldwide. Hence, it urgently requires improvements and innovations beyond the strategies that are currently being implemented throughout the country. One fundamental step in monitoring its progress is by preparing a validated tool to measure total patient costs and catastrophic total costs. The World Health Organization (WHO) recommends using a version of the generic questionnaire that has been adapted to the local cultural context in order to interpret findings correctly. This study is aimed to adapt the Tool to Estimate Patient Costs questionnaire into the Indonesian context, which measures total costs and catastrophic total costs for tuberculosis-affected households. Methods: the tool was adapted using best-practice guidelines. On the basis of a pre-test performed in a previous study (referred to as Phase 1 Study), we refined the adaptation process by comparing it with the generic tool introduced by the WHO. We also held an expert committee review and performed pre-testing by interviewing 30 TB patients. After pre-testing, the tool was provided with complete explanation sheets for finalization. Results: seventy-two major changes were made during the adaptation process including changing the answer choices to match the Indonesian context, refining the flow of questions, deleting questions, changing some words and restoring original questions that had been changed in Phase 1 Study. Participants indicated that most questions were clear and easy to understand. To address recall difficulties by the participants, we made some adaptations to obtain data that might be missing, such as tracking data to medical records, developing a proxy of costs and guiding interviewers to ask for a specific value when participants were uncertain about the estimated market value of property they had sold. Conclusion: the adapted Tool to Estimate Patient Costs in Bahasa Indonesia is comprehensive and ready for use in future studies on TB-related catastrophic costs and is suitable for monitoring progress to achieve the target of the End TB Strategy.
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spelling doaj-art-7a758cf5518b4870ba08d4e535d813d92025-08-20T03:51:43ZengInterna PublishingActa Medica Indonesiana0125-93262338-27322018-04-01501240Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected HouseholdsAhmad Fuady0Tanja A Houweling1Muchtaruddin Mansyur2Jan H Richardus3Department of Public Health, Erasmus MC, University Medical Center Rotterdam, The NetherlandsDepartment of Public Health, Erasmus MC, University Medical Center Rotterdam, The NetherlandsDepartment of Community Medicine, Faculty of Medicine Universitas Indonesia, Jakarta, IndonesiaDepartment of Public Health, Erasmus MC, University Medical Center Rotterdam, The NetherlandsBackground: Indonesia is the second-highest country for tuberculosis (TB) incidence worldwide. Hence, it urgently requires improvements and innovations beyond the strategies that are currently being implemented throughout the country. One fundamental step in monitoring its progress is by preparing a validated tool to measure total patient costs and catastrophic total costs. The World Health Organization (WHO) recommends using a version of the generic questionnaire that has been adapted to the local cultural context in order to interpret findings correctly. This study is aimed to adapt the Tool to Estimate Patient Costs questionnaire into the Indonesian context, which measures total costs and catastrophic total costs for tuberculosis-affected households. Methods: the tool was adapted using best-practice guidelines. On the basis of a pre-test performed in a previous study (referred to as Phase 1 Study), we refined the adaptation process by comparing it with the generic tool introduced by the WHO. We also held an expert committee review and performed pre-testing by interviewing 30 TB patients. After pre-testing, the tool was provided with complete explanation sheets for finalization. Results: seventy-two major changes were made during the adaptation process including changing the answer choices to match the Indonesian context, refining the flow of questions, deleting questions, changing some words and restoring original questions that had been changed in Phase 1 Study. Participants indicated that most questions were clear and easy to understand. To address recall difficulties by the participants, we made some adaptations to obtain data that might be missing, such as tracking data to medical records, developing a proxy of costs and guiding interviewers to ask for a specific value when participants were uncertain about the estimated market value of property they had sold. Conclusion: the adapted Tool to Estimate Patient Costs in Bahasa Indonesia is comprehensive and ready for use in future studies on TB-related catastrophic costs and is suitable for monitoring progress to achieve the target of the End TB Strategy.https://actamedindones.org/index.php/ijim/article/view/347tuberculosispatient costscatastrophic costsadaptationIndonesia
spellingShingle Ahmad Fuady
Tanja A Houweling
Muchtaruddin Mansyur
Jan H Richardus
Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
Acta Medica Indonesiana
tuberculosis
patient costs
catastrophic costs
adaptation
Indonesia
title Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
title_full Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
title_fullStr Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
title_full_unstemmed Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
title_short Adaptation of the Tool to Estimate Patient Costs Questionnaire into Indonesian Context for Tuberculosis-affected Households
title_sort adaptation of the tool to estimate patient costs questionnaire into indonesian context for tuberculosis affected households
topic tuberculosis
patient costs
catastrophic costs
adaptation
Indonesia
url https://actamedindones.org/index.php/ijim/article/view/347
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AT tanjaahouweling adaptationofthetooltoestimatepatientcostsquestionnaireintoindonesiancontextfortuberculosisaffectedhouseholds
AT muchtaruddinmansyur adaptationofthetooltoestimatepatientcostsquestionnaireintoindonesiancontextfortuberculosisaffectedhouseholds
AT janhrichardus adaptationofthetooltoestimatepatientcostsquestionnaireintoindonesiancontextfortuberculosisaffectedhouseholds