Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research
This letter proposes extending the post-trial provisions of the updated Declaration of Helsinki beyond pharmaceutical drugs to include AI tools, particularly those developed using data from low- and middle-income countries. Such an extension would help prevent data colonialism and ensure more equit...
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| Format: | Article |
| Language: | English |
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Programmes de bioéthique, École de santé publique de l'Université de Montréal
2024-12-01
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| Series: | Canadian Journal of Bioethics |
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| Online Access: | https://cjb-rcb.ca/index.php/cjb-rcb/article/view/829 |
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| _version_ | 1850144799813795840 |
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| author | Hazar Haidar Ehsan Shamsi Gooshki |
| author_facet | Hazar Haidar Ehsan Shamsi Gooshki |
| author_sort | Hazar Haidar |
| collection | DOAJ |
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This letter proposes extending the post-trial provisions of the updated Declaration of Helsinki beyond pharmaceutical drugs to include AI tools, particularly those developed using data from low- and middle-income countries. Such an extension would help prevent data colonialism and ensure more equitable access to these tools, fostering fairness in global health research.
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| format | Article |
| id | doaj-art-78c2b5955c834279b2dfdee486623f52 |
| institution | OA Journals |
| issn | 2561-4665 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Programmes de bioéthique, École de santé publique de l'Université de Montréal |
| record_format | Article |
| series | Canadian Journal of Bioethics |
| spelling | doaj-art-78c2b5955c834279b2dfdee486623f522025-08-20T02:28:15ZengProgrammes de bioéthique, École de santé publique de l'Université de MontréalCanadian Journal of Bioethics2561-46652024-12-017410.7202/1114971arTrial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health ResearchHazar Haidar0https://orcid.org/0000-0001-5005-0012Ehsan Shamsi Gooshki1Ethics Programs, Department of Letters and Humanities, University of Quebec at Rimouski, Rimouski, Quebec, CanadaMonash Bioethics Centre, Monash University, Melbourne, Victoria, Australia; Medical Ethics and History of Medicine Research Center, Tehran University of Medical Sciences, Tehran, Iran This letter proposes extending the post-trial provisions of the updated Declaration of Helsinki beyond pharmaceutical drugs to include AI tools, particularly those developed using data from low- and middle-income countries. Such an extension would help prevent data colonialism and ensure more equitable access to these tools, fostering fairness in global health research. https://cjb-rcb.ca/index.php/cjb-rcb/article/view/829Declaration of Helsinkipost-study accessdata colonialismAIhealth research |
| spellingShingle | Hazar Haidar Ehsan Shamsi Gooshki Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research Canadian Journal of Bioethics Declaration of Helsinki post-study access data colonialism AI health research |
| title | Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research |
| title_full | Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research |
| title_fullStr | Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research |
| title_full_unstemmed | Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research |
| title_short | Trial-centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in AI-Driven Health Research |
| title_sort | trial centrism in the declaration of helsinki a challenge for post study access and preventing data colonialism in ai driven health research |
| topic | Declaration of Helsinki post-study access data colonialism AI health research |
| url | https://cjb-rcb.ca/index.php/cjb-rcb/article/view/829 |
| work_keys_str_mv | AT hazarhaidar trialcentrisminthedeclarationofhelsinkiachallengeforpoststudyaccessandpreventingdatacolonialisminaidrivenhealthresearch AT ehsanshamsigooshki trialcentrisminthedeclarationofhelsinkiachallengeforpoststudyaccessandpreventingdatacolonialisminaidrivenhealthresearch |