An approach to implementing patient and public involvement in investigator-initiated clinical trials

As patient and public involvement (PPI) in academic clinical research, especially clinical trials, is gaining recognition, including acceptance and implementation, questions arise about how to establish an effective “basic framework for PPI in academic clinical research” for all stakeholders in Sw...

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Main Authors: Kristin Marie Bivens, Amélie J. A. A. Guyon, Valerie Behan, Eva Segelov
Format: Article
Language:English
Published: SMW supporting association (Trägerverein Swiss Medical Weekly SMW) 2025-06-01
Series:Swiss Medical Weekly
Online Access:https://smw.ch/index.php/smw/article/view/4563
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author Kristin Marie Bivens
Amélie J. A. A. Guyon
Valerie Behan
Eva Segelov
author_facet Kristin Marie Bivens
Amélie J. A. A. Guyon
Valerie Behan
Eva Segelov
author_sort Kristin Marie Bivens
collection DOAJ
description As patient and public involvement (PPI) in academic clinical research, especially clinical trials, is gaining recognition, including acceptance and implementation, questions arise about how to establish an effective “basic framework for PPI in academic clinical research” for all stakeholders in Switzerland. In this Viewpoint, the authors focus on one aspect of the survey and interview results reported by Eberle and colleagues from PPI contributors, researchers, academic research infrastructure staff, and representatives of regulatory and funding bodies to identify a possible direction for a basic PPI framework in Switzerland. Specifically, they describe how they prepare two groups of stakeholders – clinical researchers and PPI contributors – for collaboration. They present clear definitional distinctions to help clinical researchers prepare for the 2025 call for proposals from the Swiss National Science Foundation (SNSF) for Investigator-Initiated Clinical Trials (IICT) and provide important background information that is essential for understanding the fundamentals of PPI.
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spelling doaj-art-789d8e67eb2b48bcb8e59f540a5196f62025-08-20T03:23:20ZengSMW supporting association (Trägerverein Swiss Medical Weekly SMW)Swiss Medical Weekly1424-39972025-06-01155610.57187/s.4563An approach to implementing patient and public involvement in investigator-initiated clinical trialsKristin Marie Bivens0Amélie J. A. A. GuyonValerie BehanEva SegelovUniversity of Bern As patient and public involvement (PPI) in academic clinical research, especially clinical trials, is gaining recognition, including acceptance and implementation, questions arise about how to establish an effective “basic framework for PPI in academic clinical research” for all stakeholders in Switzerland. In this Viewpoint, the authors focus on one aspect of the survey and interview results reported by Eberle and colleagues from PPI contributors, researchers, academic research infrastructure staff, and representatives of regulatory and funding bodies to identify a possible direction for a basic PPI framework in Switzerland. Specifically, they describe how they prepare two groups of stakeholders – clinical researchers and PPI contributors – for collaboration. They present clear definitional distinctions to help clinical researchers prepare for the 2025 call for proposals from the Swiss National Science Foundation (SNSF) for Investigator-Initiated Clinical Trials (IICT) and provide important background information that is essential for understanding the fundamentals of PPI. https://smw.ch/index.php/smw/article/view/4563
spellingShingle Kristin Marie Bivens
Amélie J. A. A. Guyon
Valerie Behan
Eva Segelov
An approach to implementing patient and public involvement in investigator-initiated clinical trials
Swiss Medical Weekly
title An approach to implementing patient and public involvement in investigator-initiated clinical trials
title_full An approach to implementing patient and public involvement in investigator-initiated clinical trials
title_fullStr An approach to implementing patient and public involvement in investigator-initiated clinical trials
title_full_unstemmed An approach to implementing patient and public involvement in investigator-initiated clinical trials
title_short An approach to implementing patient and public involvement in investigator-initiated clinical trials
title_sort approach to implementing patient and public involvement in investigator initiated clinical trials
url https://smw.ch/index.php/smw/article/view/4563
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