Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results
The Metabolic Dietetic Team in the National Centre for Inherited Metabolic Disorders (NCIMD) in Ireland deals with approximately 120 weekly phenylalanine (Phe) levels for both adults and children. A review of 500 Phe levels highlighted that 52% of the results were within the target range. Collaborat...
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| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2018-01-01
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| Series: | Journal of Nutrition and Metabolism |
| Online Access: | http://dx.doi.org/10.1155/2018/2178346 |
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| _version_ | 1850219072679051264 |
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| author | Anne Clark Deirdre Deverell Emma Corcoran Margaret Macauley Nicola Newcombe Peter Branagan Aoife Coughlan Eimear Daly Aoibhin Moore Heslin Ellen Crushell Joanne Hughes Ina Knerr Ahmad Monavari |
| author_facet | Anne Clark Deirdre Deverell Emma Corcoran Margaret Macauley Nicola Newcombe Peter Branagan Aoife Coughlan Eimear Daly Aoibhin Moore Heslin Ellen Crushell Joanne Hughes Ina Knerr Ahmad Monavari |
| author_sort | Anne Clark |
| collection | DOAJ |
| description | The Metabolic Dietetic Team in the National Centre for Inherited Metabolic Disorders (NCIMD) in Ireland deals with approximately 120 weekly phenylalanine (Phe) levels for both adults and children. A review of 500 Phe levels highlighted that 52% of the results were within the target range. Collaboration between information and communication technologies (ICT) departments, metabolic laboratory, and metabolic dietitians enabled the development of the PKU texting system. Following a successful pilot study, the system was then offered to all PKU patients aged over 2 years. The Phe is analysed and authorised on the laboratory system. The demographics are matched with the patient mobile phone number. Text messages are then validated and sent by the dietitian via a web portal using the Defero SMS texting service. Approximately 290 patients/families currently use the texting system. In order to assess the effectiveness of this quality improvement initiative, a patient survey was carried out in 2017. This showed 87% rated the system as either very good or excellent. 94% agreed it was time saving. 84% felt there was no influence on dietary compliance. Analysis of financial implications on dietetic time over 21 months revealed savings of €3,275 and 580 hours of dietetic time. There is no evidence, two years after implementation, that the system has had an effect on either the Phe levels in terms of recommended range or frequency of sampling. |
| format | Article |
| id | doaj-art-788fba3fe53f46c2a5fe0a7632047745 |
| institution | OA Journals |
| issn | 2090-0724 2090-0732 |
| language | English |
| publishDate | 2018-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Journal of Nutrition and Metabolism |
| spelling | doaj-art-788fba3fe53f46c2a5fe0a76320477452025-08-20T02:07:30ZengWileyJournal of Nutrition and Metabolism2090-07242090-07322018-01-01201810.1155/2018/21783462178346Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood ResultsAnne Clark0Deirdre Deverell1Emma Corcoran2Margaret Macauley3Nicola Newcombe4Peter Branagan5Aoife Coughlan6Eimear Daly7Aoibhin Moore Heslin8Ellen Crushell9Joanne Hughes10Ina Knerr11Ahmad Monavari12National Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandPaediatric Laboratory Medicine, Temple Street Children’s University Hospital, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandDepartment of Information and Communication Technologies (ICT), Temple Street Children’s University Hospital, Dublin, IrelandDepartment of Information and Communication Technologies (ICT), Temple Street Children’s University Hospital, Dublin, IrelandDepartment of Research, Temple Street Children’s University Hospital, Dublin, IrelandUniversity College Dublin, Belfield, Dublin, IrelandUniversity College Dublin, Belfield, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandNational Centre for Inherited Metabolic Disorders, Temple Street Children’s University Hospital, Dublin, IrelandThe Metabolic Dietetic Team in the National Centre for Inherited Metabolic Disorders (NCIMD) in Ireland deals with approximately 120 weekly phenylalanine (Phe) levels for both adults and children. A review of 500 Phe levels highlighted that 52% of the results were within the target range. Collaboration between information and communication technologies (ICT) departments, metabolic laboratory, and metabolic dietitians enabled the development of the PKU texting system. Following a successful pilot study, the system was then offered to all PKU patients aged over 2 years. The Phe is analysed and authorised on the laboratory system. The demographics are matched with the patient mobile phone number. Text messages are then validated and sent by the dietitian via a web portal using the Defero SMS texting service. Approximately 290 patients/families currently use the texting system. In order to assess the effectiveness of this quality improvement initiative, a patient survey was carried out in 2017. This showed 87% rated the system as either very good or excellent. 94% agreed it was time saving. 84% felt there was no influence on dietary compliance. Analysis of financial implications on dietetic time over 21 months revealed savings of €3,275 and 580 hours of dietetic time. There is no evidence, two years after implementation, that the system has had an effect on either the Phe levels in terms of recommended range or frequency of sampling.http://dx.doi.org/10.1155/2018/2178346 |
| spellingShingle | Anne Clark Deirdre Deverell Emma Corcoran Margaret Macauley Nicola Newcombe Peter Branagan Aoife Coughlan Eimear Daly Aoibhin Moore Heslin Ellen Crushell Joanne Hughes Ina Knerr Ahmad Monavari Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results Journal of Nutrition and Metabolism |
| title | Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results |
| title_full | Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results |
| title_fullStr | Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results |
| title_full_unstemmed | Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results |
| title_short | Finger Prick to Finger Tip: Use of Mobile Phone Technology to Send PKU Blood Results |
| title_sort | finger prick to finger tip use of mobile phone technology to send pku blood results |
| url | http://dx.doi.org/10.1155/2018/2178346 |
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