The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network
Abstract Introduction Learning health networks (LHNs) improve clinical outcomes by applying core tenets of continuous quality improvements (QI) to reach community‐defined outcomes, data‐sharing, and empowered interdisciplinary teams including patients and caregivers. LHNs provide an ideal environmen...
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| Format: | Article |
| Language: | English |
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Wiley
2025-01-01
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| Series: | Learning Health Systems |
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| Online Access: | https://doi.org/10.1002/lrh2.10422 |
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| author | Dylan J. Cooper Jessie Karten Sarah E. Hoffe Daniel A. King Matthew Weiss Danielle K. DePeralta Andrew L. Coveler Sunil R. Hingorani Tracey Shefter Cheryl Meguid Hannah Roberts Theodore S. Hong Amol Narang Amy Hacker‐Prietz George A. Fisher Jay Sandler Laurie Singer Bobby Korah William Hoos Carrie T. Stricker Joseph M. Herman |
| author_facet | Dylan J. Cooper Jessie Karten Sarah E. Hoffe Daniel A. King Matthew Weiss Danielle K. DePeralta Andrew L. Coveler Sunil R. Hingorani Tracey Shefter Cheryl Meguid Hannah Roberts Theodore S. Hong Amol Narang Amy Hacker‐Prietz George A. Fisher Jay Sandler Laurie Singer Bobby Korah William Hoos Carrie T. Stricker Joseph M. Herman |
| author_sort | Dylan J. Cooper |
| collection | DOAJ |
| description | Abstract Introduction Learning health networks (LHNs) improve clinical outcomes by applying core tenets of continuous quality improvements (QI) to reach community‐defined outcomes, data‐sharing, and empowered interdisciplinary teams including patients and caregivers. LHNs provide an ideal environment for the rapid adoption of evidence‐based guidelines and translation of research and best practices at scale. When an LHN is established, it is critical to understand the needs of all stakeholders. To accomplish this, we used ethnographic methods to develop personas of different stakeholders within The Canopy Cancer Collective, the first oncology LHN. Methods We partnered with a firm experienced in qualitative research and human‐centered design to conduct interviews with stakeholders of The Canopy Cancer Collective, a newly developed pancreatic cancer LHN. Together with the firm, we developed a personas model approach to represent the wide range of diverse perspectives among the representative stakeholders, which included care team members, patients, and caregivers. Results Thirty‐one stakeholders from all facets of pancreatic cancer care were interviewed, including 20 care team members, 8 patients, and 3 caregivers. Interview transcripts were analyzed to construct 10 personas felt to represent the broad spectrum of stakeholders within The Cancer Canopy Collective. These personas were used as a foundation for the design and development of The Cancer Canopy Cancer Collective key drivers and aims. Conclusions As LHNs continue to facilitate comprehensive approaches to patient‐centered care, interdisciplinary teams who understand each other's needs can improve Network unity and cohesion. We present the first model utilizing personas for LHNs, demonstrating this framework holds significant promise for further study. If validated, such an approach could be used as a dynamic foundation for understanding individual stakeholder needs in similar LHN ecosystems in the future. |
| format | Article |
| id | doaj-art-77f7ad90e9b64411a52e87e21ea597e7 |
| institution | Kabale University |
| issn | 2379-6146 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Learning Health Systems |
| spelling | doaj-art-77f7ad90e9b64411a52e87e21ea597e72025-01-15T08:51:32ZengWileyLearning Health Systems2379-61462025-01-0191n/an/a10.1002/lrh2.10422The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health networkDylan J. Cooper0Jessie Karten1Sarah E. Hoffe2Daniel A. King3Matthew Weiss4Danielle K. DePeralta5Andrew L. Coveler6Sunil R. Hingorani7Tracey Shefter8Cheryl Meguid9Hannah Roberts10Theodore S. Hong11Amol Narang12Amy Hacker‐Prietz13George A. Fisher14Jay Sandler15Laurie Singer16Bobby Korah17William Hoos18Carrie T. Stricker19Joseph M. Herman20Northwell New Hyde Park New York USANorthwell New Hyde Park New York USAMoffitt Cancer Center Tampa Florida USANorthwell New Hyde Park New York USANorthwell New Hyde Park New York USANorthwell New Hyde Park New York USAFred Hutchinson Cancer Center Seattle WA USAFred Hutchinson Cancer Center Seattle WA USAUniversity of Colorado School of Medicine Aurora Colorado USAUniversity of Colorado School of Medicine Aurora Colorado USAMassachusetts General Hospital Boston MA USAMassachusetts General Hospital Boston MA USAJohns Hopkins University School of Medicine Baltimore Maryland USAJohns Hopkins University School of Medicine Baltimore Maryland USAStanford University School of Medicine Stanford California USAThe Canopy Cancer Collective, 1440 Foundation Saratoga California USAThe Canopy Cancer Collective, 1440 Foundation Saratoga California USAThe Canopy Cancer Collective, 1440 Foundation Saratoga California USAThe Canopy Cancer Collective, 1440 Foundation Saratoga California USAThe Canopy Cancer Collective, 1440 Foundation Saratoga California USANorthwell New Hyde Park New York USAAbstract Introduction Learning health networks (LHNs) improve clinical outcomes by applying core tenets of continuous quality improvements (QI) to reach community‐defined outcomes, data‐sharing, and empowered interdisciplinary teams including patients and caregivers. LHNs provide an ideal environment for the rapid adoption of evidence‐based guidelines and translation of research and best practices at scale. When an LHN is established, it is critical to understand the needs of all stakeholders. To accomplish this, we used ethnographic methods to develop personas of different stakeholders within The Canopy Cancer Collective, the first oncology LHN. Methods We partnered with a firm experienced in qualitative research and human‐centered design to conduct interviews with stakeholders of The Canopy Cancer Collective, a newly developed pancreatic cancer LHN. Together with the firm, we developed a personas model approach to represent the wide range of diverse perspectives among the representative stakeholders, which included care team members, patients, and caregivers. Results Thirty‐one stakeholders from all facets of pancreatic cancer care were interviewed, including 20 care team members, 8 patients, and 3 caregivers. Interview transcripts were analyzed to construct 10 personas felt to represent the broad spectrum of stakeholders within The Cancer Canopy Collective. These personas were used as a foundation for the design and development of The Cancer Canopy Cancer Collective key drivers and aims. Conclusions As LHNs continue to facilitate comprehensive approaches to patient‐centered care, interdisciplinary teams who understand each other's needs can improve Network unity and cohesion. We present the first model utilizing personas for LHNs, demonstrating this framework holds significant promise for further study. If validated, such an approach could be used as a dynamic foundation for understanding individual stakeholder needs in similar LHN ecosystems in the future.https://doi.org/10.1002/lrh2.10422human‐centered designlearning health networkpatient‐centered carepersonas |
| spellingShingle | Dylan J. Cooper Jessie Karten Sarah E. Hoffe Daniel A. King Matthew Weiss Danielle K. DePeralta Andrew L. Coveler Sunil R. Hingorani Tracey Shefter Cheryl Meguid Hannah Roberts Theodore S. Hong Amol Narang Amy Hacker‐Prietz George A. Fisher Jay Sandler Laurie Singer Bobby Korah William Hoos Carrie T. Stricker Joseph M. Herman The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network Learning Health Systems human‐centered design learning health network patient‐centered care personas |
| title | The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| title_full | The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| title_fullStr | The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| title_full_unstemmed | The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| title_short | The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| title_sort | power of personas exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network |
| topic | human‐centered design learning health network patient‐centered care personas |
| url | https://doi.org/10.1002/lrh2.10422 |
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