Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour
Introduction Although most asthma is mild to moderate, severe asthma accounts for disproportionate personal and societal costs. Poor co-ordination of care between primary care and specialist settings is recognised as a barrier to achieving optimal outcomes. The Primary Care Severe Asthma Registry an...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2022-03-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/12/3/e055958.full |
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| author | Michelle Greiver Babak Aliarzadeh Rahim Moineddin Teresa To Braden O'Neill Kenneth R Chapman Katrina A D'Urzo Itamar E Tamari M Reza Maleki-Yazdi Ross EG Upshur Lana Biro Kulamakan Kulasegaram Anthony D D'Urzo |
| author_facet | Michelle Greiver Babak Aliarzadeh Rahim Moineddin Teresa To Braden O'Neill Kenneth R Chapman Katrina A D'Urzo Itamar E Tamari M Reza Maleki-Yazdi Ross EG Upshur Lana Biro Kulamakan Kulasegaram Anthony D D'Urzo |
| author_sort | Michelle Greiver |
| collection | DOAJ |
| description | Introduction Although most asthma is mild to moderate, severe asthma accounts for disproportionate personal and societal costs. Poor co-ordination of care between primary care and specialist settings is recognised as a barrier to achieving optimal outcomes. The Primary Care Severe Asthma Registry and Education (PCSAR-EDU) project aims to address these gaps through the interdisciplinary development and evaluation of both a ‘real-world’ severe asthma registry and an educational programme for primary care providers. This manuscript describes phase 1 of PCSAR-EDU which involves establishing interdisciplinary consensus on criteria for the: (1) definition of severe asthma; (2) generation of a severe asthma registry and (3) definition of an electronic-medical record data-based Clinician Behaviour Index (CBI).Methods and analysis In phase 1, a modified e-Delphi activity will be conducted. Delphi panellists (n≥13) will be invited to complete a 30 min online survey on three separate occasions (i.e., three separate e-Delphi ‘rounds’) over a 3-month period. Expert opinion will be collected via an open-ended survey (‘Open’ round 1) and 5-point Likert scale and ranking surveys (‘Closed’ round 2 and 3). A fourth and final Delphi round will occur via synchronous meeting, whereby panellists approve a finalised ideal ‘core criteria list’, CBI and corresponding item weighting.Ethics and dissemination Ethical approval has been obtained for the activities involved in phase 1 from the University of Toronto’s Human Research Ethics Programme (approval number 39695). Future ethics approvals will depend on information gathered in the proceeding phase; thus, ethical approval for phase 2 and 3 of this study will be sought sequentially. Findings will be disseminated through conference presentations, peer-reviewed publications and knowledge translation tools. |
| format | Article |
| id | doaj-art-76ae712c1bc6423097c8ddd8030bbee1 |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2022-03-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-76ae712c1bc6423097c8ddd8030bbee12025-08-20T01:47:58ZengBMJ Publishing GroupBMJ Open2044-60552022-03-0112310.1136/bmjopen-2021-055958Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviourMichelle Greiver0Babak Aliarzadeh1Rahim Moineddin2Teresa To3Braden O'Neill4Kenneth R Chapman5Katrina A D'Urzo6Itamar E Tamari7M Reza Maleki-Yazdi8Ross EG Upshur9Lana Biro10Kulamakan Kulasegaram11Anthony D D'Urzo12University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaDepartment of Family and Community Medicine, University of Toronto, Toronto, Ontario, CanadaInstitute for Clinical Evaluative Sciences, Toronto, Ontario, CanadaMAP Centre for Urban Health Solutions, Unity Health Toronto, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaSchool of Medicine, Royal College of Surgeons in Ireland, Dublin, IrelandStonegate Community Health Centre, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaThe Lung Health Foundation, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaUniversity of Toronto Temerty Faculty of Medicine, Toronto, Ontario, CanadaIntroduction Although most asthma is mild to moderate, severe asthma accounts for disproportionate personal and societal costs. Poor co-ordination of care between primary care and specialist settings is recognised as a barrier to achieving optimal outcomes. The Primary Care Severe Asthma Registry and Education (PCSAR-EDU) project aims to address these gaps through the interdisciplinary development and evaluation of both a ‘real-world’ severe asthma registry and an educational programme for primary care providers. This manuscript describes phase 1 of PCSAR-EDU which involves establishing interdisciplinary consensus on criteria for the: (1) definition of severe asthma; (2) generation of a severe asthma registry and (3) definition of an electronic-medical record data-based Clinician Behaviour Index (CBI).Methods and analysis In phase 1, a modified e-Delphi activity will be conducted. Delphi panellists (n≥13) will be invited to complete a 30 min online survey on three separate occasions (i.e., three separate e-Delphi ‘rounds’) over a 3-month period. Expert opinion will be collected via an open-ended survey (‘Open’ round 1) and 5-point Likert scale and ranking surveys (‘Closed’ round 2 and 3). A fourth and final Delphi round will occur via synchronous meeting, whereby panellists approve a finalised ideal ‘core criteria list’, CBI and corresponding item weighting.Ethics and dissemination Ethical approval has been obtained for the activities involved in phase 1 from the University of Toronto’s Human Research Ethics Programme (approval number 39695). Future ethics approvals will depend on information gathered in the proceeding phase; thus, ethical approval for phase 2 and 3 of this study will be sought sequentially. Findings will be disseminated through conference presentations, peer-reviewed publications and knowledge translation tools.https://bmjopen.bmj.com/content/12/3/e055958.full |
| spellingShingle | Michelle Greiver Babak Aliarzadeh Rahim Moineddin Teresa To Braden O'Neill Kenneth R Chapman Katrina A D'Urzo Itamar E Tamari M Reza Maleki-Yazdi Ross EG Upshur Lana Biro Kulamakan Kulasegaram Anthony D D'Urzo Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour BMJ Open |
| title | Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour |
| title_full | Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour |
| title_fullStr | Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour |
| title_full_unstemmed | Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour |
| title_short | Primary Care Severe Asthma Registry and Education Project (PCSAR-EDU): Phase 1 – an e-Delphi for registry definitions and indices of clinician behaviour |
| title_sort | primary care severe asthma registry and education project pcsar edu phase 1 an e delphi for registry definitions and indices of clinician behaviour |
| url | https://bmjopen.bmj.com/content/12/3/e055958.full |
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