Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders

Orientation: Individuals with chronic disorders such as systemic lupus erythematosus (SLE) face challenges in disclosing their condition at work due to symptom invisibility and stigma. Managers play a crucial role in managing employees as stakeholders and shaping workplace culture and inclusivity....

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Main Author: Armand Bam
Format: Article
Language:English
Published: AOSIS 2025-01-01
Series:SA Journal of Human Resource Management
Subjects:
Online Access:https://sajhrm.co.za/index.php/sajhrm/article/view/2859
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author Armand Bam
author_facet Armand Bam
author_sort Armand Bam
collection DOAJ
description Orientation: Individuals with chronic disorders such as systemic lupus erythematosus (SLE) face challenges in disclosing their condition at work due to symptom invisibility and stigma. Managers play a crucial role in managing employees as stakeholders and shaping workplace culture and inclusivity. Research purpose: This study explores how workplace culture and support systems influence disclosure decisions among individuals with SLE, focusing on the role of managers in shaping these experiences. Motivation for the study: Limited research exists on the disclosure of invisible illnesses like SLE in professional settings. This study seeks to understand how stigma and inadequate support lead employees to conceal their condition. Research approach/design and method: Using document analysis and semi-structured interviews with participants from various industries in South Africa, the research explores the interplay between workplace culture, support systems and disclosure decisions. Main findings: Findings show that the invisibility and stigma of SLE, challenges in recognising it as a disability, and insufficient workplace support contribute to concealment. Managers often perpetuate unsafe spaces for disclosure. Practical/managerial implications: Organisations must address the systemic exclusion and stigma faced by employees with chronic illnesses. Enhancing training and support for managers is critical to fostering inclusive workplaces and safe disclosure environments. Contribution/value-add: By exploring the strategies individuals with SLE use to navigate workplace challenges, the study provides insights into the relationship between chronic illness, stigma and workplace inclusivity, enriching the broader discourse on disability in professional contexts.
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spelling doaj-art-75be7ba7111b44f89542a55452729e532025-02-11T13:29:09ZengAOSISSA Journal of Human Resource Management1683-75842071-078X2025-01-01230e1e1010.4102/sajhrm.v23i0.2859845Invisibility, stigma and workplace support: Experiences of individuals with chronic disordersArmand Bam0Stellenbosch Business School, Faculty of Economics and Management Science, Stellenbosch University, Cape TownOrientation: Individuals with chronic disorders such as systemic lupus erythematosus (SLE) face challenges in disclosing their condition at work due to symptom invisibility and stigma. Managers play a crucial role in managing employees as stakeholders and shaping workplace culture and inclusivity. Research purpose: This study explores how workplace culture and support systems influence disclosure decisions among individuals with SLE, focusing on the role of managers in shaping these experiences. Motivation for the study: Limited research exists on the disclosure of invisible illnesses like SLE in professional settings. This study seeks to understand how stigma and inadequate support lead employees to conceal their condition. Research approach/design and method: Using document analysis and semi-structured interviews with participants from various industries in South Africa, the research explores the interplay between workplace culture, support systems and disclosure decisions. Main findings: Findings show that the invisibility and stigma of SLE, challenges in recognising it as a disability, and insufficient workplace support contribute to concealment. Managers often perpetuate unsafe spaces for disclosure. Practical/managerial implications: Organisations must address the systemic exclusion and stigma faced by employees with chronic illnesses. Enhancing training and support for managers is critical to fostering inclusive workplaces and safe disclosure environments. Contribution/value-add: By exploring the strategies individuals with SLE use to navigate workplace challenges, the study provides insights into the relationship between chronic illness, stigma and workplace inclusivity, enriching the broader discourse on disability in professional contexts.https://sajhrm.co.za/index.php/sajhrm/article/view/2859systemic lupus erythematosusworkplace disclosurechronic illnessorganisational culturestigmastakeholder management
spellingShingle Armand Bam
Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
SA Journal of Human Resource Management
systemic lupus erythematosus
workplace disclosure
chronic illness
organisational culture
stigma
stakeholder management
title Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
title_full Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
title_fullStr Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
title_full_unstemmed Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
title_short Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders
title_sort invisibility stigma and workplace support experiences of individuals with chronic disorders
topic systemic lupus erythematosus
workplace disclosure
chronic illness
organisational culture
stigma
stakeholder management
url https://sajhrm.co.za/index.php/sajhrm/article/view/2859
work_keys_str_mv AT armandbam invisibilitystigmaandworkplacesupportexperiencesofindividualswithchronicdisorders