Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review

Introduction Advances in wearable sensor technology now enable frequent, objective monitoring of real-world walking. Walking-related digital mobility outcomes (DMOs), such as real-world walking speed, have the potential to be more sensitive to mobility changes than traditional clinical assessments....

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Main Authors: Sarah Koch, Milo Alan Puhan, Anja Frei, Kristin Taraldsen, A Stefanie Mikolaizak, Clemens Becker, Ronny Bergquist, Beatrix Vereijken, Lynn Rochester, Basil Sharrack, Claudia Mazza, Ashley Marie Polhemus, Magda Bosch de Basea, Gavin Brittain, Sara Catherine Buttery, Gloria dalla Costa, Laura Delgado Ortiz, Heleen Demeyer, Kirsten Emmert, Heiko Gassner, Nicholas Hopkinson, Jochen Klucken, Felix Kluge, Letizia Leocani, Paolo Piraino, Christian Schlenstedt, Thierry Troosters, Ioannis Vogiatzis
Format: Article
Language:English
Published: BMJ Publishing Group 2020-07-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/7/e038704.full
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author Sarah Koch
Milo Alan Puhan
Anja Frei
Kristin Taraldsen
A Stefanie Mikolaizak
Clemens Becker
Ronny Bergquist
Beatrix Vereijken
Lynn Rochester
Basil Sharrack
Claudia Mazza
Ashley Marie Polhemus
Magda Bosch de Basea
Gavin Brittain
Sara Catherine Buttery
Gloria dalla Costa
Laura Delgado Ortiz
Heleen Demeyer
Kirsten Emmert
Heiko Gassner
Nicholas Hopkinson
Jochen Klucken
Felix Kluge
Letizia Leocani
Paolo Piraino
Christian Schlenstedt
Thierry Troosters
Ioannis Vogiatzis
author_facet Sarah Koch
Milo Alan Puhan
Anja Frei
Kristin Taraldsen
A Stefanie Mikolaizak
Clemens Becker
Ronny Bergquist
Beatrix Vereijken
Lynn Rochester
Basil Sharrack
Claudia Mazza
Ashley Marie Polhemus
Magda Bosch de Basea
Gavin Brittain
Sara Catherine Buttery
Gloria dalla Costa
Laura Delgado Ortiz
Heleen Demeyer
Kirsten Emmert
Heiko Gassner
Nicholas Hopkinson
Jochen Klucken
Felix Kluge
Letizia Leocani
Paolo Piraino
Christian Schlenstedt
Thierry Troosters
Ioannis Vogiatzis
author_sort Sarah Koch
collection DOAJ
description Introduction Advances in wearable sensor technology now enable frequent, objective monitoring of real-world walking. Walking-related digital mobility outcomes (DMOs), such as real-world walking speed, have the potential to be more sensitive to mobility changes than traditional clinical assessments. However, it is not yet clear which DMOs are most suitable for formal validation. In this review, we will explore the evidence on discriminant ability, construct validity, prognostic value and responsiveness of walking-related DMOs in four disease areas: Parkinson’s disease, multiple sclerosis, chronic obstructive pulmonary disease and proximal femoral fracture.Methods and analysis Arksey and O’Malley’s methodological framework for scoping reviews will guide study conduct. We will search seven databases (Medline, CINAHL, Scopus, Web of Science, EMBASE, IEEE Digital Library and Cochrane Library) and grey literature for studies which (1) measure differences in DMOs between healthy and pathological walking, (2) assess relationships between DMOs and traditional clinical measures, (3) assess the prognostic value of DMOs and (4) use DMOs as endpoints in interventional clinical trials. Two reviewers will screen each abstract and full-text manuscript according to predefined eligibility criteria. We will then chart extracted data, map the literature, perform a narrative synthesis and identify gaps.Ethics and dissemination As this review is limited to publicly available materials, it does not require ethical approval. This work is part of Mobilise-D, an Innovative Medicines Initiative Joint Undertaking which aims to deliver, validate and obtain regulatory approval for DMOs. Results will be shared with the scientific community and general public in cooperation with the Mobilise-D communication team.Registration Study materials and updates will be made available through the Center for Open Science’s OSFRegistry (https://osf.io/k7395).
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spelling doaj-art-7587f202ed18452698f3a623dffbd7fe2025-08-20T02:30:43ZengBMJ Publishing GroupBMJ Open2044-60552020-07-0110710.1136/bmjopen-2020-038704Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping reviewSarah Koch0Milo Alan Puhan1Anja Frei2Kristin Taraldsen3A Stefanie Mikolaizak4Clemens Becker5Ronny Bergquist6Beatrix Vereijken7Lynn Rochester8Basil Sharrack9Claudia Mazza10Ashley Marie Polhemus11Magda Bosch de Basea12Gavin Brittain13Sara Catherine Buttery14Gloria dalla Costa15Laura Delgado Ortiz16Heleen Demeyer17Kirsten Emmert18Heiko Gassner19Nicholas Hopkinson20Jochen Klucken21Felix Kluge22Letizia Leocani23Paolo Piraino24Christian Schlenstedt25Thierry Troosters26Ioannis Vogiatzis27Barcelona Institute for Global Health (ISGlobal), Barcelona, SpainEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, SwitzerlandEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland7 Oslo Metropolitan University, Oslo, NorwayDepartment of Clinical Gerontology, Robert-Bosch-Krankenhaus GmbH, Stuttgart, GermanyUnit of Digital Geriatric Medicine, Heidelberg University Hospital, Heidelberg, GermanyDepartment of Neuromedicine and Movement Science, Norwegian University of Science and Technology (NTNU), Trondheim, NorwayDepartment of Neuromedicine and Movement Science, Norwegian University of Science and Technology, Trondheim, NorwayNIHR Newcastle Biomedical Research Centre, Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UKNeurosciences, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UKDepartment of Mechanical Engineering and INSIGNEO, The University of Sheffield, Sheffield, Sheffield, UKEpidemiology, Biostatistics, and Prevention Institute, University of Zürich, Zürich, SwitzerlandBarcelona Institute for Global Health (ISGlobal), Barcelona, SpainNeuroscience Institute, The University of Sheffield, Sheffield, UKNational Heart and Lung Institute, Imperial College London, London, UKDepartment of Neurology, San Raffaele Hospital, Milan, ItalyBarcelona Institute for Global Health (ISGlobal), Barcelona, Spain8 Department of Respiratory Diseases, University Hospital Leuven, Leuven, BelgiumDepartment of Neurology, University Medical Center Schleswig-Holstein Campus Kiel, Kiel, Schleswig-Holstein, Germany6 Department of Molecular Neurology, Erlangen University Hospital, Erlangen, Germanyreader in respiratory medicine9 Department of Molecular Neurology, Friedrich-Alexander University Erlangen, Nürnberg, Germany7 Machine Learning and Data Analytics Lab, Department of Computer Science, Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, GermanyExperimental Neurophysiology Unit, Institute of Experimental Neurology (INSPE) Scientific Institute San Raffaele and University Vita-Salute San Raffaele, Milan, ItalyDepartment of Research & Early Development Statistics, Bayer AG, Berlin, GermanyDepartment of Neurology, University Medical Center Schleswig-Holstein Campus Kiel, Kiel, Schleswig-Holstein, GermanyDepartment of Rehabilitation Sciences, Research Group for Rehabilitation in Internal Disorders, KU Leuven, Leuven, BelgiumSport, Exercise & Rehabilitation, University of Northumbria at Newcastle, Newcastle upon Tyne, UKIntroduction Advances in wearable sensor technology now enable frequent, objective monitoring of real-world walking. Walking-related digital mobility outcomes (DMOs), such as real-world walking speed, have the potential to be more sensitive to mobility changes than traditional clinical assessments. However, it is not yet clear which DMOs are most suitable for formal validation. In this review, we will explore the evidence on discriminant ability, construct validity, prognostic value and responsiveness of walking-related DMOs in four disease areas: Parkinson’s disease, multiple sclerosis, chronic obstructive pulmonary disease and proximal femoral fracture.Methods and analysis Arksey and O’Malley’s methodological framework for scoping reviews will guide study conduct. We will search seven databases (Medline, CINAHL, Scopus, Web of Science, EMBASE, IEEE Digital Library and Cochrane Library) and grey literature for studies which (1) measure differences in DMOs between healthy and pathological walking, (2) assess relationships between DMOs and traditional clinical measures, (3) assess the prognostic value of DMOs and (4) use DMOs as endpoints in interventional clinical trials. Two reviewers will screen each abstract and full-text manuscript according to predefined eligibility criteria. We will then chart extracted data, map the literature, perform a narrative synthesis and identify gaps.Ethics and dissemination As this review is limited to publicly available materials, it does not require ethical approval. This work is part of Mobilise-D, an Innovative Medicines Initiative Joint Undertaking which aims to deliver, validate and obtain regulatory approval for DMOs. Results will be shared with the scientific community and general public in cooperation with the Mobilise-D communication team.Registration Study materials and updates will be made available through the Center for Open Science’s OSFRegistry (https://osf.io/k7395).https://bmjopen.bmj.com/content/10/7/e038704.full
spellingShingle Sarah Koch
Milo Alan Puhan
Anja Frei
Kristin Taraldsen
A Stefanie Mikolaizak
Clemens Becker
Ronny Bergquist
Beatrix Vereijken
Lynn Rochester
Basil Sharrack
Claudia Mazza
Ashley Marie Polhemus
Magda Bosch de Basea
Gavin Brittain
Sara Catherine Buttery
Gloria dalla Costa
Laura Delgado Ortiz
Heleen Demeyer
Kirsten Emmert
Heiko Gassner
Nicholas Hopkinson
Jochen Klucken
Felix Kluge
Letizia Leocani
Paolo Piraino
Christian Schlenstedt
Thierry Troosters
Ioannis Vogiatzis
Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
BMJ Open
title Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
title_full Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
title_fullStr Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
title_full_unstemmed Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
title_short Walking-related digital mobility outcomes as clinical trial endpoint measures: protocol for a scoping review
title_sort walking related digital mobility outcomes as clinical trial endpoint measures protocol for a scoping review
url https://bmjopen.bmj.com/content/10/7/e038704.full
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