Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study
Objective This study compared the differences in the rates of maltreatment and homicide deaths between children and young adults with and without a life-limiting condition (LLC) and determined whether this affects the likelihood of receiving specialised palliative care (SPC) services before death.De...
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| Language: | English |
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BMJ Publishing Group
2024-12-01
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| Series: | BMJ Paediatrics Open |
| Online Access: | https://bmjpaedsopen.bmj.com/content/8/1/e002571.full |
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| author | Hsin-Yi Chang Shih-Chun Lin Mei-Chih Huang |
| author_facet | Hsin-Yi Chang Shih-Chun Lin Mei-Chih Huang |
| author_sort | Hsin-Yi Chang |
| collection | DOAJ |
| description | Objective This study compared the differences in the rates of maltreatment and homicide deaths between children and young adults with and without a life-limiting condition (LLC) and determined whether this affects the likelihood of receiving specialised palliative care (SPC) services before death.Design A nationwide retrospective observational study.Setting Taiwan.Patients Children and young adults aged 0–25 years with LLCs and maltreatment were identified within the Health and Welfare Data Science Centre by International Classification of Diseases codes. Deaths were included within the Multiple Causes of Death Data if they occurred between 2016 and 2017.Main outcome measures Rates of maltreatment, homicide deaths and SPC referrals.Results Children and young adults with underlying LLCs experienced a similar rate of maltreatment (2.2 per 10 000 vs 3.1 per 10 000) and had a 68% decrease in the odds of homicide death (19.7% vs 80.3%, OR, 0.32; 95% CI 0.18 to 0.56) than those without such conditions. Among those with LLCs who experienced maltreatment, 14.3% (2 out of 14) had received SPC at least 3 days before death. There was no significant difference in SPC referrals between those who experienced maltreatment and those who did not.Conclusions The likelihood of being referred to SPC was low with no significant statistical differences observed between children and young adults with maltreatment and without. These findings suggest a need for integrating SPC and child protection services to ensure human rights are upheld. |
| format | Article |
| id | doaj-art-7206bdaed8764a9c92d720db99a608bc |
| institution | DOAJ |
| issn | 2399-9772 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Paediatrics Open |
| spelling | doaj-art-7206bdaed8764a9c92d720db99a608bc2025-08-20T02:39:14ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722024-12-018110.1136/bmjpo-2024-002571Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based studyHsin-Yi Chang0Shih-Chun Lin1Mei-Chih Huang2Department of Nursing, College of Medicine, National Cheng Kung University, Tainan, TaiwanSchool of Nursing, Kaohsiung Medical University, Kaohsiung, TaiwanDepartment of Nursing, College of Medicine, National Cheng Kung University, Tainan, TaiwanObjective This study compared the differences in the rates of maltreatment and homicide deaths between children and young adults with and without a life-limiting condition (LLC) and determined whether this affects the likelihood of receiving specialised palliative care (SPC) services before death.Design A nationwide retrospective observational study.Setting Taiwan.Patients Children and young adults aged 0–25 years with LLCs and maltreatment were identified within the Health and Welfare Data Science Centre by International Classification of Diseases codes. Deaths were included within the Multiple Causes of Death Data if they occurred between 2016 and 2017.Main outcome measures Rates of maltreatment, homicide deaths and SPC referrals.Results Children and young adults with underlying LLCs experienced a similar rate of maltreatment (2.2 per 10 000 vs 3.1 per 10 000) and had a 68% decrease in the odds of homicide death (19.7% vs 80.3%, OR, 0.32; 95% CI 0.18 to 0.56) than those without such conditions. Among those with LLCs who experienced maltreatment, 14.3% (2 out of 14) had received SPC at least 3 days before death. There was no significant difference in SPC referrals between those who experienced maltreatment and those who did not.Conclusions The likelihood of being referred to SPC was low with no significant statistical differences observed between children and young adults with maltreatment and without. These findings suggest a need for integrating SPC and child protection services to ensure human rights are upheld.https://bmjpaedsopen.bmj.com/content/8/1/e002571.full |
| spellingShingle | Hsin-Yi Chang Shih-Chun Lin Mei-Chih Huang Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study BMJ Paediatrics Open |
| title | Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study |
| title_full | Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study |
| title_fullStr | Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study |
| title_full_unstemmed | Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study |
| title_short | Maltreatment, homicide and access to specialised palliative care among children and young adults with a life-limiting condition: a nationwide population-based study |
| title_sort | maltreatment homicide and access to specialised palliative care among children and young adults with a life limiting condition a nationwide population based study |
| url | https://bmjpaedsopen.bmj.com/content/8/1/e002571.full |
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