Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study.
<h4>Objective</h4>Retention to complete follow-up surveys in extensive longitudinal epidemiological cohort studies is vital yet challenging. All of Us developed pilot interventions to improve response rates for follow-up surveys.<h4>Study design and setting</h4>The pilot inte...
Saved in:
| Main Authors: | , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2024-01-01
|
| Series: | PLoS ONE |
| Online Access: | https://doi.org/10.1371/journal.pone.0308995 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832595688756609024 |
|---|---|
| author | Robert M Cronin Xiaoke Feng Ashley Able Scott Sutherland Ben Givens Rebecca Johnston Charlene Depry Katrina W Le Blanc Orlane Caro Brandy Mapes Josh Denny Mick P Couper Qingxia Chen Irene Prabhu Das |
| author_facet | Robert M Cronin Xiaoke Feng Ashley Able Scott Sutherland Ben Givens Rebecca Johnston Charlene Depry Katrina W Le Blanc Orlane Caro Brandy Mapes Josh Denny Mick P Couper Qingxia Chen Irene Prabhu Das |
| author_sort | Robert M Cronin |
| collection | DOAJ |
| description | <h4>Objective</h4>Retention to complete follow-up surveys in extensive longitudinal epidemiological cohort studies is vital yet challenging. All of Us developed pilot interventions to improve response rates for follow-up surveys.<h4>Study design and setting</h4>The pilot interventions occurred from April 27, 2020, to August 3, 2020. The three arms were: (1) telephone appointment [staff members calling participants offering appointments to complete surveys over phone] (2) postal [mail reminder to complete surveys through U.S. Postal Service], and (3) combination of telephone appointment and postal. Controls received digital-only reminders [program-level digital recontact via email or through the participant portal]. Study sites chose their study arm and participants were not randomized.<h4>Results</h4>A total of 50 sites piloted interventions with 17,593 participants, while 47,832 participants comprised controls during the same period. Of all participants, 6,828 (10.4%) completed any follow-up surveys (1448: telephone; 522: postal; 486: combination; 4372: controls). Follow-up survey completions were 24% higher in the telephone appointment arm than in controls in bivariate analyses. When controlling for confounders, telephone appointment and combination arms increased rates of completion similarly compared to controls, while the postal arm had no significant effect (odds ratio [95% Confidence Interval], telephone appointment:2.01[1.81-2.23]; combination:1.91[1.66-2.20]; postal:0.92[0.79-1.07]). Although the effects of the telephone appointment and combination arms were similar, differential effects were observed across sub-populations.<h4>Conclusion</h4>Telephone appointments appeared to be the most successful intervention in our study. Lessons learned about retention interventions, and improvement in follow-up survey completion rates provide generalizable knowledge for similar cohort studies and demonstrate the potential value of precision reminders and engagement with sub-populations of a cohort. |
| format | Article |
| id | doaj-art-714d4ea6475c48d382ca54ec0e5bc5ce |
| institution | Kabale University |
| issn | 1932-6203 |
| language | English |
| publishDate | 2024-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj-art-714d4ea6475c48d382ca54ec0e5bc5ce2025-01-18T05:31:01ZengPublic Library of Science (PLoS)PLoS ONE1932-62032024-01-011910e030899510.1371/journal.pone.0308995Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study.Robert M CroninXiaoke FengAshley AbleScott SutherlandBen GivensRebecca JohnstonCharlene DepryKatrina W Le BlancOrlane CaroBrandy MapesJosh DennyMick P CouperQingxia ChenIrene Prabhu Das<h4>Objective</h4>Retention to complete follow-up surveys in extensive longitudinal epidemiological cohort studies is vital yet challenging. All of Us developed pilot interventions to improve response rates for follow-up surveys.<h4>Study design and setting</h4>The pilot interventions occurred from April 27, 2020, to August 3, 2020. The three arms were: (1) telephone appointment [staff members calling participants offering appointments to complete surveys over phone] (2) postal [mail reminder to complete surveys through U.S. Postal Service], and (3) combination of telephone appointment and postal. Controls received digital-only reminders [program-level digital recontact via email or through the participant portal]. Study sites chose their study arm and participants were not randomized.<h4>Results</h4>A total of 50 sites piloted interventions with 17,593 participants, while 47,832 participants comprised controls during the same period. Of all participants, 6,828 (10.4%) completed any follow-up surveys (1448: telephone; 522: postal; 486: combination; 4372: controls). Follow-up survey completions were 24% higher in the telephone appointment arm than in controls in bivariate analyses. When controlling for confounders, telephone appointment and combination arms increased rates of completion similarly compared to controls, while the postal arm had no significant effect (odds ratio [95% Confidence Interval], telephone appointment:2.01[1.81-2.23]; combination:1.91[1.66-2.20]; postal:0.92[0.79-1.07]). Although the effects of the telephone appointment and combination arms were similar, differential effects were observed across sub-populations.<h4>Conclusion</h4>Telephone appointments appeared to be the most successful intervention in our study. Lessons learned about retention interventions, and improvement in follow-up survey completion rates provide generalizable knowledge for similar cohort studies and demonstrate the potential value of precision reminders and engagement with sub-populations of a cohort.https://doi.org/10.1371/journal.pone.0308995 |
| spellingShingle | Robert M Cronin Xiaoke Feng Ashley Able Scott Sutherland Ben Givens Rebecca Johnston Charlene Depry Katrina W Le Blanc Orlane Caro Brandy Mapes Josh Denny Mick P Couper Qingxia Chen Irene Prabhu Das Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. PLoS ONE |
| title | Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. |
| title_full | Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. |
| title_fullStr | Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. |
| title_full_unstemmed | Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. |
| title_short | Improving follow-up survey completion rates through pilot interventions in the All of Us Research Program: Results from a non-randomized intervention study. |
| title_sort | improving follow up survey completion rates through pilot interventions in the all of us research program results from a non randomized intervention study |
| url | https://doi.org/10.1371/journal.pone.0308995 |
| work_keys_str_mv | AT robertmcronin improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT xiaokefeng improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT ashleyable improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT scottsutherland improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT bengivens improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT rebeccajohnston improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT charlenedepry improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT katrinawleblanc improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT orlanecaro improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT brandymapes improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT joshdenny improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT mickpcouper improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT qingxiachen improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy AT ireneprabhudas improvingfollowupsurveycompletionratesthroughpilotinterventionsintheallofusresearchprogramresultsfromanonrandomizedinterventionstudy |