The cost of the diagnostic odyssey of patients with suspected rare diseases
Abstract Purpose Patients with rare diseases often undergo a long diagnostic odyssey. However, there is little empirical evidence on the cost incurred during the diagnostic pathway for patients with suspected rare diseases. This study provides a comprehensive analysis of healthcare costs and utiliza...
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| Main Authors: | Rick Glaubitz, Luise Heinrich, Falko Tesch, Martin Seifert, Katrin Christiane Reber, Ursula Marschall, Jochen Schmitt, Gabriele Müller |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2025-05-01
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| Series: | Orphanet Journal of Rare Diseases |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s13023-025-03751-y |
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