Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study

Abstract BackgroundChronic kidney disease (CKD) affects 14% of the US adult population, yet patient knowledge about kidney disease and engagement in their kidney health is low despite many CKD education programs, awareness campaigns, and clinical practice guidelines....

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Main Authors: Delphine Tuot, Susan Crowley, Lois Katz, Joseph Leung, Delly Alcantara-Cadillo, Christopher Ruser, Elizabeth Talbot-Montgomery, Joseph Vassalotti
Format: Article
Language:English
Published: JMIR Publications 2025-04-01
Series:JMIR Formative Research
Online Access:https://formative.jmir.org/2025/1/e56855
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author Delphine Tuot
Susan Crowley
Lois Katz
Joseph Leung
Delly Alcantara-Cadillo
Christopher Ruser
Elizabeth Talbot-Montgomery
Joseph Vassalotti
author_facet Delphine Tuot
Susan Crowley
Lois Katz
Joseph Leung
Delly Alcantara-Cadillo
Christopher Ruser
Elizabeth Talbot-Montgomery
Joseph Vassalotti
author_sort Delphine Tuot
collection DOAJ
description Abstract BackgroundChronic kidney disease (CKD) affects 14% of the US adult population, yet patient knowledge about kidney disease and engagement in their kidney health is low despite many CKD education programs, awareness campaigns, and clinical practice guidelines. ObjectiveWe aimed to examine the impact of the Kidney Score Platform (a patient-facing, risk-based online tool that provides interactive health information tailored to an individual’s CKD risk plus an accompanying clinician-facing Clinical Practice Toolkit) on individual engagement with CKD health and CKD communication between clinicians and patients. MethodsWe conducted a pre-post intervention study in which English-speaking veterans at risk for CKD in two primary care settings interacted with the Kidney Score platform’s educational modules and their primary care clinicians were encouraged to review the Clinical Practice Toolkit. The impact of the Kidney Score on the Patient Activation Measure (the primary outcome), knowledge about CKD, and communication with their clinician about kidney health was determined with paired t ResultsThe study population (n=76) had a mean (SD) age of 64.4 (8.2) years, 88% (67/76) was male, and 30.3% (23/76) self-identified as African-American. Approximately 93% (71/76) had hypertension, 36% (27/76) had diabetes, and 9.2% (7/76) had CKD according to the laboratory criteria but without an ICD-10PPP ConclusionsOne-time web-based tailored education for patients can increase CKD knowledge and encourage conversations about kidney health. Increasing patient activation for CKD management may require multilevel, longitudinal interventions that facilitate ongoing conversations about kidney health between patients and clinician teams.
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spelling doaj-art-6f7e66a23b1f46df922fa30773d993332025-08-20T03:11:25ZengJMIR PublicationsJMIR Formative Research2561-326X2025-04-019e56855e5685510.2196/56855Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention StudyDelphine Tuothttp://orcid.org/0000-0003-1484-8945Susan Crowleyhttp://orcid.org/0000-0001-8143-5759Lois Katzhttp://orcid.org/0000-0002-6937-8170Joseph Leunghttp://orcid.org/0000-0002-0157-6461Delly Alcantara-Cadillohttp://orcid.org/0000-0003-4561-9707Christopher Ruserhttp://orcid.org/0000-0001-5439-9959Elizabeth Talbot-Montgomeryhttp://orcid.org/0000-0001-9070-2724Joseph Vassalottihttp://orcid.org/0000-0001-8835-0192 Abstract BackgroundChronic kidney disease (CKD) affects 14% of the US adult population, yet patient knowledge about kidney disease and engagement in their kidney health is low despite many CKD education programs, awareness campaigns, and clinical practice guidelines. ObjectiveWe aimed to examine the impact of the Kidney Score Platform (a patient-facing, risk-based online tool that provides interactive health information tailored to an individual’s CKD risk plus an accompanying clinician-facing Clinical Practice Toolkit) on individual engagement with CKD health and CKD communication between clinicians and patients. MethodsWe conducted a pre-post intervention study in which English-speaking veterans at risk for CKD in two primary care settings interacted with the Kidney Score platform’s educational modules and their primary care clinicians were encouraged to review the Clinical Practice Toolkit. The impact of the Kidney Score on the Patient Activation Measure (the primary outcome), knowledge about CKD, and communication with their clinician about kidney health was determined with paired t ResultsThe study population (n=76) had a mean (SD) age of 64.4 (8.2) years, 88% (67/76) was male, and 30.3% (23/76) self-identified as African-American. Approximately 93% (71/76) had hypertension, 36% (27/76) had diabetes, and 9.2% (7/76) had CKD according to the laboratory criteria but without an ICD-10PPP ConclusionsOne-time web-based tailored education for patients can increase CKD knowledge and encourage conversations about kidney health. Increasing patient activation for CKD management may require multilevel, longitudinal interventions that facilitate ongoing conversations about kidney health between patients and clinician teams.https://formative.jmir.org/2025/1/e56855
spellingShingle Delphine Tuot
Susan Crowley
Lois Katz
Joseph Leung
Delly Alcantara-Cadillo
Christopher Ruser
Elizabeth Talbot-Montgomery
Joseph Vassalotti
Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
JMIR Formative Research
title Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
title_full Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
title_fullStr Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
title_full_unstemmed Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
title_short Impact of the Kidney Score Platform on Communication About and Patients’ Engagement With Chronic Kidney Disease Health: Pre–Post Intervention Study
title_sort impact of the kidney score platform on communication about and patients engagement with chronic kidney disease health pre post intervention study
url https://formative.jmir.org/2025/1/e56855
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