Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals

Abstract Background Implementation of patient-reported measures (PRMs) is an integral element for patient-centered models; however, there is still hardly any quantitative evidence regarding its impact in routine care settings. The objective of this study was to codesign two concise tools that allow...

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Main Authors: Clara Amat-Fernandez, Yolanda Pardo, Montse Ferrer, Guillermo Bosch, Catalina Lizano-Barrantes, Renata Briseño-Diaz, Maria Vernet-Tomas, Lluís Fumadó, Marc Beisani, Dolores Redondo-Pachón, Anna Bach-Pascual, Olatz Garin, Hospital de Mar Patient-Reported Measures Group
Format: Article
Language:English
Published: BMC 2025-02-01
Series:Health and Quality of Life Outcomes
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Online Access:https://doi.org/10.1186/s12955-025-02333-7
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author Clara Amat-Fernandez
Yolanda Pardo
Montse Ferrer
Guillermo Bosch
Catalina Lizano-Barrantes
Renata Briseño-Diaz
Maria Vernet-Tomas
Lluís Fumadó
Marc Beisani
Dolores Redondo-Pachón
Anna Bach-Pascual
Olatz Garin
Hospital de Mar Patient-Reported Measures Group
author_facet Clara Amat-Fernandez
Yolanda Pardo
Montse Ferrer
Guillermo Bosch
Catalina Lizano-Barrantes
Renata Briseño-Diaz
Maria Vernet-Tomas
Lluís Fumadó
Marc Beisani
Dolores Redondo-Pachón
Anna Bach-Pascual
Olatz Garin
Hospital de Mar Patient-Reported Measures Group
author_sort Clara Amat-Fernandez
collection DOAJ
description Abstract Background Implementation of patient-reported measures (PRMs) is an integral element for patient-centered models; however, there is still hardly any quantitative evidence regarding its impact in routine care settings. The objective of this study was to codesign two concise tools that allow for a standardized and longitudinal assessment of the implementation of PRMs in routine care in terms of acceptability and perceived value from the perspective of both patients and healthcare professionals. Methods A list of constructs and items to be presented, separately, to patients and healthcare professionals was created from evidence gathered through a narrative literature review. Focus groups, composed of either patients or healthcare professionals from different chronic conditions, were conducted for the co-design of independent assessments. Once agreement was reached, the content validity was examined in separate consensus meetings. Results A total of 10 patients and 10 healthcare professionals participated in the focus groups. After 7 focus groups, the PRMs Implementation Assessment Tool for patients (PRMIAT-P) was developed with 33 items in 9 constructs, and the tool for healthcare professionals (PRMIAT-HP) had 33 items in 16 constructs. Content validity was confirmed for both tools. Conclusions The perspective of patients and healthcare professionals regarding the implementation of PRMs in routine care can be evaluated quantitively with the PRMIAT tools. These tools are understandable, concise and comprehensive, and can be used in multiple settings and for different chronic conditions. They have been codesigned as a standard set to facilitate both longitudinal assessments and performing benchmarking among different initiatives.
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spelling doaj-art-6b5b71845e114d3f8ba996d77a9017d32025-08-20T02:15:02ZengBMCHealth and Quality of Life Outcomes1477-75252025-02-0123111210.1186/s12955-025-02333-7Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionalsClara Amat-Fernandez0Yolanda Pardo1Montse Ferrer2Guillermo Bosch3Catalina Lizano-Barrantes4Renata Briseño-Diaz5Maria Vernet-Tomas6Lluís Fumadó7Marc Beisani8Dolores Redondo-Pachón9Anna Bach-Pascual10Olatz Garin11Hospital de Mar Patient-Reported Measures GroupUniversitat Pompeu FabraHealth Services Research Group, Hospital del Mar Research InstituteUniversitat Pompeu FabraTeaching Unit of Preventive Medicine and Public Health, Hospital del Mar-ASPB-UPFHealth Services Research Group, Hospital del Mar Research InstituteUniversitat Pompeu FabraBreast Diseases Unit, Hospital del MarUrology Department, Hospital del MarGastrointestinal and Bariatric Surgery Unit, Hospital del MarNephrology Department, Hospital del MarNephrology Department, Hospital del MarUniversitat Pompeu FabraAbstract Background Implementation of patient-reported measures (PRMs) is an integral element for patient-centered models; however, there is still hardly any quantitative evidence regarding its impact in routine care settings. The objective of this study was to codesign two concise tools that allow for a standardized and longitudinal assessment of the implementation of PRMs in routine care in terms of acceptability and perceived value from the perspective of both patients and healthcare professionals. Methods A list of constructs and items to be presented, separately, to patients and healthcare professionals was created from evidence gathered through a narrative literature review. Focus groups, composed of either patients or healthcare professionals from different chronic conditions, were conducted for the co-design of independent assessments. Once agreement was reached, the content validity was examined in separate consensus meetings. Results A total of 10 patients and 10 healthcare professionals participated in the focus groups. After 7 focus groups, the PRMs Implementation Assessment Tool for patients (PRMIAT-P) was developed with 33 items in 9 constructs, and the tool for healthcare professionals (PRMIAT-HP) had 33 items in 16 constructs. Content validity was confirmed for both tools. Conclusions The perspective of patients and healthcare professionals regarding the implementation of PRMs in routine care can be evaluated quantitively with the PRMIAT tools. These tools are understandable, concise and comprehensive, and can be used in multiple settings and for different chronic conditions. They have been codesigned as a standard set to facilitate both longitudinal assessments and performing benchmarking among different initiatives.https://doi.org/10.1186/s12955-025-02333-7Implementation scienceHealth services researchPatient-reported outcome measuresPatient-reported experience measuresPatient centered careHealth care evaluation mechanisms
spellingShingle Clara Amat-Fernandez
Yolanda Pardo
Montse Ferrer
Guillermo Bosch
Catalina Lizano-Barrantes
Renata Briseño-Diaz
Maria Vernet-Tomas
Lluís Fumadó
Marc Beisani
Dolores Redondo-Pachón
Anna Bach-Pascual
Olatz Garin
Hospital de Mar Patient-Reported Measures Group
Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
Health and Quality of Life Outcomes
Implementation science
Health services research
Patient-reported outcome measures
Patient-reported experience measures
Patient centered care
Health care evaluation mechanisms
title Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
title_full Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
title_fullStr Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
title_full_unstemmed Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
title_short Evaluating the implementation of PROMs and PREMs in routine clinical care: co-design of tools from the perspective of patients and healthcare professionals
title_sort evaluating the implementation of proms and prems in routine clinical care co design of tools from the perspective of patients and healthcare professionals
topic Implementation science
Health services research
Patient-reported outcome measures
Patient-reported experience measures
Patient centered care
Health care evaluation mechanisms
url https://doi.org/10.1186/s12955-025-02333-7
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