Introduction to International Ethical Standards Related to Genetics and Genomics

The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this revi...

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Main Authors: Seon-Hee Yim, Yeun-Jun Chung
Format: Article
Language:English
Published: BioMed Central 2013-12-01
Series:Genomics & Informatics
Subjects:
Online Access:http://genominfo.org/upload/pdf/gni-11-218.pdf
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author Seon-Hee Yim
Yeun-Jun Chung
author_facet Seon-Hee Yim
Yeun-Jun Chung
author_sort Seon-Hee Yim
collection DOAJ
description The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards.
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spelling doaj-art-6b17bd9da4f44a259550e9b87a44c9862025-02-02T01:02:38ZengBioMed CentralGenomics & Informatics1598-866X2234-07422013-12-0111421822310.5808/GI.2013.11.4.21866Introduction to International Ethical Standards Related to Genetics and GenomicsSeon-Hee Yim0Yeun-Jun Chung1Department of Medical Education, Integrated Research Center for Genome Polymorphism, The Catholic University of Korea College of Medicine, Seoul 137-701, Korea.Department of Microbiology, Integrated Research Center for Genome Polymorphism, MRC, The Catholic University of Korea College of Medicine, Seoul 137-701, Korea.The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards.http://genominfo.org/upload/pdf/gni-11-218.pdfethicsgeneticsgenomics
spellingShingle Seon-Hee Yim
Yeun-Jun Chung
Introduction to International Ethical Standards Related to Genetics and Genomics
Genomics & Informatics
ethics
genetics
genomics
title Introduction to International Ethical Standards Related to Genetics and Genomics
title_full Introduction to International Ethical Standards Related to Genetics and Genomics
title_fullStr Introduction to International Ethical Standards Related to Genetics and Genomics
title_full_unstemmed Introduction to International Ethical Standards Related to Genetics and Genomics
title_short Introduction to International Ethical Standards Related to Genetics and Genomics
title_sort introduction to international ethical standards related to genetics and genomics
topic ethics
genetics
genomics
url http://genominfo.org/upload/pdf/gni-11-218.pdf
work_keys_str_mv AT seonheeyim introductiontointernationalethicalstandardsrelatedtogeneticsandgenomics
AT yeunjunchung introductiontointernationalethicalstandardsrelatedtogeneticsandgenomics