Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study

Objective To describe prevalence and associated factors of social deprivation in people with Parkinson’s disease (PwPD).Design Cross-sectional and longitudinal cohort study.Setting Data were taken from the Survey of Health, Ageing and Retirement in Europe (SHARE), a multidisciplinary, cross-national...

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Main Authors: Aline Schönenberg, Tino Prell, Konstantin G Heimrich
Format: Article
Language:English
Published: BMJ Publishing Group 2023-12-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/12/e074618.full
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author Aline Schönenberg
Tino Prell
Konstantin G Heimrich
author_facet Aline Schönenberg
Tino Prell
Konstantin G Heimrich
author_sort Aline Schönenberg
collection DOAJ
description Objective To describe prevalence and associated factors of social deprivation in people with Parkinson’s disease (PwPD).Design Cross-sectional and longitudinal cohort study.Setting Data were taken from the Survey of Health, Ageing and Retirement in Europe (SHARE), a multidisciplinary, cross-national and longitudinal research project.Participants Community-dwelling adults from waves 5 (2013, n=66 188) and 6 (2015, n=68 186) of the SHARE dataset. After longitudinal analyses, participants in wave 5 can be retrospectively divided into the following three subgroups: PwPD at wave 5 (n=559), people newly reported PD from wave 5 to wave 6 (prodromal PD; n=215) and people without PD (n=46 737).Outcome measures The prevalence and associated factors of social deprivation in PD, its impact on quality of life (QoL) and its onset within the course of PD.Results PwPD had higher indices for material and social deprivation than non-PD participants, and 20% of PwPD were at risk of social exclusion. Social deprivation alone accounted for 35% and material deprivation for 21% of QoL variance and remained significant predictors of QoL after adjustment for cofactors. Social deprivation and risk of social exclusion were already increased in people with prodromal PD, and accordingly preceded PD diagnosis in wave 6.Conclusions For the treatment of PD, we should consider the impact of social deprivation and exclusion on QoL and their association with mental and physical functioning. However, the relevance of social deprivation as a prodromal phenomenon requires further investigation.
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spelling doaj-art-6917d19e0cfd42ee999ccf3bba95cea12025-08-20T03:10:56ZengBMJ Publishing GroupBMJ Open2044-60552023-12-01131210.1136/bmjopen-2023-074618Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal studyAline Schönenberg0Tino Prell1Konstantin G Heimrich2Department of Geriatrics, University Hospital Halle, Halle (Saale), Sachsen-Anhalt, GermanyDepartment of Geriatrics, University Hospital Halle, Halle (Saale), Sachsen-Anhalt, GermanyDepartment of Neurology, Jena University Hospital, Jena, GermanyObjective To describe prevalence and associated factors of social deprivation in people with Parkinson’s disease (PwPD).Design Cross-sectional and longitudinal cohort study.Setting Data were taken from the Survey of Health, Ageing and Retirement in Europe (SHARE), a multidisciplinary, cross-national and longitudinal research project.Participants Community-dwelling adults from waves 5 (2013, n=66 188) and 6 (2015, n=68 186) of the SHARE dataset. After longitudinal analyses, participants in wave 5 can be retrospectively divided into the following three subgroups: PwPD at wave 5 (n=559), people newly reported PD from wave 5 to wave 6 (prodromal PD; n=215) and people without PD (n=46 737).Outcome measures The prevalence and associated factors of social deprivation in PD, its impact on quality of life (QoL) and its onset within the course of PD.Results PwPD had higher indices for material and social deprivation than non-PD participants, and 20% of PwPD were at risk of social exclusion. Social deprivation alone accounted for 35% and material deprivation for 21% of QoL variance and remained significant predictors of QoL after adjustment for cofactors. Social deprivation and risk of social exclusion were already increased in people with prodromal PD, and accordingly preceded PD diagnosis in wave 6.Conclusions For the treatment of PD, we should consider the impact of social deprivation and exclusion on QoL and their association with mental and physical functioning. However, the relevance of social deprivation as a prodromal phenomenon requires further investigation.https://bmjopen.bmj.com/content/13/12/e074618.full
spellingShingle Aline Schönenberg
Tino Prell
Konstantin G Heimrich
Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
BMJ Open
title Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
title_full Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
title_fullStr Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
title_full_unstemmed Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
title_short Social deprivation and exclusion in Parkinson’s disease: a cross-sectional and longitudinal study
title_sort social deprivation and exclusion in parkinson s disease a cross sectional and longitudinal study
url https://bmjopen.bmj.com/content/13/12/e074618.full
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