Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey

A survey on vaccinations was conducted among patients with chronic inflammatory diseases (CIDs), including inflammatory bowel disease, inflammatory rheumatological diseases, and dermatological diseases (DDs). The objective was to identify differences between established vaccination guidelines and ac...

Full description

Saved in:
Bibliographic Details
Main Authors: Meliha Kapetanovic MD, PhD, Randeep Mandla MSc, PhD, Susanne Thiesen Gren MSc, PhD, Maria Seddighzadeh MSc, PhD, Dan Henrohn MD, PhD, Maaria Palmroth MSc, PhD, Anna-Maria Hiltunen MSc, PhD, Jussi Ranta MSc, Anna-Kaisa Asikainen MSc Economics, Anne Grete Frøstrup MSc, PhD, Veli-Jukka Anttila MD, PhD
Format: Article
Language:English
Published: SAGE Publishing 2025-07-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735251360485
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850077465392709632
author Meliha Kapetanovic MD, PhD
Randeep Mandla MSc, PhD
Susanne Thiesen Gren MSc, PhD
Maria Seddighzadeh MSc, PhD
Dan Henrohn MD, PhD
Maaria Palmroth MSc, PhD
Anna-Maria Hiltunen MSc, PhD
Jussi Ranta MSc
Anna-Kaisa Asikainen MSc Economics
Anne Grete Frøstrup MSc, PhD
Veli-Jukka Anttila MD, PhD
author_facet Meliha Kapetanovic MD, PhD
Randeep Mandla MSc, PhD
Susanne Thiesen Gren MSc, PhD
Maria Seddighzadeh MSc, PhD
Dan Henrohn MD, PhD
Maaria Palmroth MSc, PhD
Anna-Maria Hiltunen MSc, PhD
Jussi Ranta MSc
Anna-Kaisa Asikainen MSc Economics
Anne Grete Frøstrup MSc, PhD
Veli-Jukka Anttila MD, PhD
author_sort Meliha Kapetanovic MD, PhD
collection DOAJ
description A survey on vaccinations was conducted among patients with chronic inflammatory diseases (CIDs), including inflammatory bowel disease, inflammatory rheumatological diseases, and dermatological diseases (DDs). The objective was to identify differences between established vaccination guidelines and actual practices in healthcare as experienced by patients. Among eligible responders ( n  = 1434), 57% were on immunomodulatory treatment, and 59% were treated in specialized care. The most recommended vaccines were COVID-19 (66%), influenza (63%), and pneumococcal (46%). Regarding common vaccination principles for patients with CID, 61% reported not receiving information on vaccinations before treatment initiation. Only 23% were advised to check their vaccination status before starting medications, and just 20% reported that their vaccination status is regularly assessed. Logistic regression revealed that the DD group was less likely, while patients over 65 years of age or on immunomodulatory treatment were more likely to be recommended and receive vaccinations. Ideally, all CID patients should be eligible for preventive immunization starting from the time of diagnosis. A targeted vaccination program with clear responsibilities across the healthcare system is strongly recommended.
format Article
id doaj-art-68a8e47ff97a4e719247d34c10ca2945
institution DOAJ
issn 2374-3743
language English
publishDate 2025-07-01
publisher SAGE Publishing
record_format Article
series Journal of Patient Experience
spelling doaj-art-68a8e47ff97a4e719247d34c10ca29452025-08-20T02:45:49ZengSAGE PublishingJournal of Patient Experience2374-37432025-07-011210.1177/23743735251360485Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic SurveyMeliha Kapetanovic MD, PhD0Randeep Mandla MSc, PhD1Susanne Thiesen Gren MSc, PhD2Maria Seddighzadeh MSc, PhD3Dan Henrohn MD, PhD4Maaria Palmroth MSc, PhD5Anna-Maria Hiltunen MSc, PhD6Jussi Ranta MSc7Anna-Kaisa Asikainen MSc Economics8Anne Grete Frøstrup MSc, PhD9Veli-Jukka Anttila MD, PhD10 Section of Rheumatology, , Malmö, Sweden Medical Affairs, , Oslo, Norway Medical Affairs, Pfizer Denmark, Ballerup, Denmark Medical Affairs, , Stockholm, Sweden Department of Medical Sciences, Uppsala University, Uppsala, Sweden Medical Affairs, Pfizer OY Finland, Helsinki, Finland , Helsinki, Finland , Helsinki, Finland , Helsinki, Finland Medical Affairs, Pfizer Denmark, Ballerup, Denmark Inflammation Center, Helsinki University Hospital, Helsinki, FinlandA survey on vaccinations was conducted among patients with chronic inflammatory diseases (CIDs), including inflammatory bowel disease, inflammatory rheumatological diseases, and dermatological diseases (DDs). The objective was to identify differences between established vaccination guidelines and actual practices in healthcare as experienced by patients. Among eligible responders ( n  = 1434), 57% were on immunomodulatory treatment, and 59% were treated in specialized care. The most recommended vaccines were COVID-19 (66%), influenza (63%), and pneumococcal (46%). Regarding common vaccination principles for patients with CID, 61% reported not receiving information on vaccinations before treatment initiation. Only 23% were advised to check their vaccination status before starting medications, and just 20% reported that their vaccination status is regularly assessed. Logistic regression revealed that the DD group was less likely, while patients over 65 years of age or on immunomodulatory treatment were more likely to be recommended and receive vaccinations. Ideally, all CID patients should be eligible for preventive immunization starting from the time of diagnosis. A targeted vaccination program with clear responsibilities across the healthcare system is strongly recommended.https://doi.org/10.1177/23743735251360485
spellingShingle Meliha Kapetanovic MD, PhD
Randeep Mandla MSc, PhD
Susanne Thiesen Gren MSc, PhD
Maria Seddighzadeh MSc, PhD
Dan Henrohn MD, PhD
Maaria Palmroth MSc, PhD
Anna-Maria Hiltunen MSc, PhD
Jussi Ranta MSc
Anna-Kaisa Asikainen MSc Economics
Anne Grete Frøstrup MSc, PhD
Veli-Jukka Anttila MD, PhD
Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
Journal of Patient Experience
title Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
title_full Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
title_fullStr Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
title_full_unstemmed Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
title_short Vaccine Knowledge and Awareness Among Patients With Chronic Inflammatory Diseases: Results From a Nordic Survey
title_sort vaccine knowledge and awareness among patients with chronic inflammatory diseases results from a nordic survey
url https://doi.org/10.1177/23743735251360485
work_keys_str_mv AT melihakapetanovicmdphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT randeepmandlamscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT susannethiesengrenmscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT mariaseddighzadehmscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT danhenrohnmdphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT maariapalmrothmscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT annamariahiltunenmscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT jussirantamsc vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT annakaisaasikainenmsceconomics vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT annegretefrøstrupmscphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey
AT velijukkaanttilamdphd vaccineknowledgeandawarenessamongpatientswithchronicinflammatorydiseasesresultsfromanordicsurvey