Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis
Background: Due to the long-term and progressive nature of β-thalassemia major (β-TM), patientsneed comprehensive palliative and supportive care covering physical, mental, social, and spiritualaspects. The first step in providing palliative and supportive care is identifying the patients’ needs.This...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Shiraz University of Medical Sciences
2025-04-01
|
| Series: | International Journal of Community Based Nursing and Midwifery |
| Subjects: | |
| Online Access: | https://ijcbnm.sums.ac.ir/article_50644_35bc23c7cb0cd22ec13d53ae8d69a1de.pdf |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1850148791487823872 |
|---|---|
| author | Mehrnaz Ahmadi Maryam Rassouli Mahin Gheibizadeh Abbas Ebadi Marziyeh Asadizaker |
| author_facet | Mehrnaz Ahmadi Maryam Rassouli Mahin Gheibizadeh Abbas Ebadi Marziyeh Asadizaker |
| author_sort | Mehrnaz Ahmadi |
| collection | DOAJ |
| description | Background: Due to the long-term and progressive nature of β-thalassemia major (β-TM), patientsneed comprehensive palliative and supportive care covering physical, mental, social, and spiritualaspects. The first step in providing palliative and supportive care is identifying the patients’ needs.This study aimed to explore the palliative and supportive care needs of patients with β-TM.Methods: A qualitative study was conducted from April 2019 to December 2019. The study involvedin-depth semi-structured individual interviews with 20 individuals living with β-TM at a universityhospital in Ahvaz, Iran. The participants were selected through purposive sampling. Interviewscontinued until the saturation of data. All interviews were recorded, transcribed, and analyzed withconventional content analysis following the steps recommended by Elo and Kyngäs using MAXQDAsoftware version 10.Results: Five overarching categories, each with multiple subcategories, were identified: “physicalhealth needs,” “sexual and reproductive health needs,” “mental and emotional health needs,” “socialneeds,” and “need for access to comprehensive health services.”Conclusion: According to the results of this study, unmet needs are prevalent throughout the thalassemiajourney. Patients with β-TM require individual, psychosocial, and comprehensive healthcare supportto address their needs. Therefore, further research is necessary to develop a nursing care plan for β-TMpatients focusing on supportive-palliative care needs. |
| format | Article |
| id | doaj-art-68a3ec56d4aa483aaed018b4ebcf8630 |
| institution | OA Journals |
| issn | 2322-2476 2322-4835 |
| language | English |
| publishDate | 2025-04-01 |
| publisher | Shiraz University of Medical Sciences |
| record_format | Article |
| series | International Journal of Community Based Nursing and Midwifery |
| spelling | doaj-art-68a3ec56d4aa483aaed018b4ebcf86302025-08-20T02:27:09ZengShiraz University of Medical SciencesInternational Journal of Community Based Nursing and Midwifery2322-24762322-48352025-04-0113211312510.30476/ijcbnm.2024.102440.248650644Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content AnalysisMehrnaz Ahmadi0Maryam Rassouli1Mahin Gheibizadeh2Abbas Ebadi3Marziyeh Asadizaker4Nursing Care Research Center in Chronic Diseases, School of Nursing and Midwifery, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran;Cancer Research Center, Shahid Beheshti University of Medical Sciences, Tehran, Iran;Nursing Care Research Center in Chronic Diseases, School of Nursing and Midwifery, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran;Nursing Care Research Center, Clinical Sciences Institute, Baqiyatallah University of Medical Sciences, Tehran, IranNursing Care Research Center in Chronic Diseases, School of Nursing and Midwifery, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran;Background: Due to the long-term and progressive nature of β-thalassemia major (β-TM), patientsneed comprehensive palliative and supportive care covering physical, mental, social, and spiritualaspects. The first step in providing palliative and supportive care is identifying the patients’ needs.This study aimed to explore the palliative and supportive care needs of patients with β-TM.Methods: A qualitative study was conducted from April 2019 to December 2019. The study involvedin-depth semi-structured individual interviews with 20 individuals living with β-TM at a universityhospital in Ahvaz, Iran. The participants were selected through purposive sampling. Interviewscontinued until the saturation of data. All interviews were recorded, transcribed, and analyzed withconventional content analysis following the steps recommended by Elo and Kyngäs using MAXQDAsoftware version 10.Results: Five overarching categories, each with multiple subcategories, were identified: “physicalhealth needs,” “sexual and reproductive health needs,” “mental and emotional health needs,” “socialneeds,” and “need for access to comprehensive health services.”Conclusion: According to the results of this study, unmet needs are prevalent throughout the thalassemiajourney. Patients with β-TM require individual, psychosocial, and comprehensive healthcare supportto address their needs. Therefore, further research is necessary to develop a nursing care plan for β-TMpatients focusing on supportive-palliative care needs.https://ijcbnm.sums.ac.ir/article_50644_35bc23c7cb0cd22ec13d53ae8d69a1de.pdfneeds assessmentpalliative supportive carequalitative studythalassemia major |
| spellingShingle | Mehrnaz Ahmadi Maryam Rassouli Mahin Gheibizadeh Abbas Ebadi Marziyeh Asadizaker Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis International Journal of Community Based Nursing and Midwifery needs assessment palliative supportive care qualitative study thalassemia major |
| title | Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis |
| title_full | Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis |
| title_fullStr | Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis |
| title_full_unstemmed | Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis |
| title_short | Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis |
| title_sort | experiences of iranian patients with thalassemia major regarding their palliative and supportive care needs a qualitative content analysis |
| topic | needs assessment palliative supportive care qualitative study thalassemia major |
| url | https://ijcbnm.sums.ac.ir/article_50644_35bc23c7cb0cd22ec13d53ae8d69a1de.pdf |
| work_keys_str_mv | AT mehrnazahmadi experiencesofiranianpatientswiththalassemiamajorregardingtheirpalliativeandsupportivecareneedsaqualitativecontentanalysis AT maryamrassouli experiencesofiranianpatientswiththalassemiamajorregardingtheirpalliativeandsupportivecareneedsaqualitativecontentanalysis AT mahingheibizadeh experiencesofiranianpatientswiththalassemiamajorregardingtheirpalliativeandsupportivecareneedsaqualitativecontentanalysis AT abbasebadi experiencesofiranianpatientswiththalassemiamajorregardingtheirpalliativeandsupportivecareneedsaqualitativecontentanalysis AT marziyehasadizaker experiencesofiranianpatientswiththalassemiamajorregardingtheirpalliativeandsupportivecareneedsaqualitativecontentanalysis |