Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument
Psychosocial, emotional, and physical problems can emerge after traumatic brain injury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been comp...
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| Format: | Article |
| Language: | English |
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Wiley
2016-01-01
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| Series: | Behavioural Neurology |
| Online Access: | http://dx.doi.org/10.1155/2016/7928014 |
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| author | Nicole von Steinbuechel Amra Covic Suzanne Polinder Thomas Kohlmann Ugne Cepulyte Herbert Poinstingl Joy Backhaus Wilbert Bakx Monika Bullinger Anne-Lise Christensen Rita Formisano Henning Gibbons Stefan Höfer Sanna Koskinen Andrew Maas Edmund Neugebauer Jane Powell Jaana Sarajuuri Nadine Sasse Silke Schmidt Holger Mühlan Klaus von Wild George Zitnay Jean-Luc Truelle |
| author_facet | Nicole von Steinbuechel Amra Covic Suzanne Polinder Thomas Kohlmann Ugne Cepulyte Herbert Poinstingl Joy Backhaus Wilbert Bakx Monika Bullinger Anne-Lise Christensen Rita Formisano Henning Gibbons Stefan Höfer Sanna Koskinen Andrew Maas Edmund Neugebauer Jane Powell Jaana Sarajuuri Nadine Sasse Silke Schmidt Holger Mühlan Klaus von Wild George Zitnay Jean-Luc Truelle |
| author_sort | Nicole von Steinbuechel |
| collection | DOAJ |
| description | Psychosocial, emotional, and physical problems can emerge after traumatic brain injury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been compared in detail. These aspects as well as some psychometric item characteristics were studied in a sample of 795 TBI survivors. The Shannon H' index absolute informativity, as an indicator of an instrument’s power to differentiate between individuals within a specific group or health state, was investigated. Psychometric performance of the two instruments was predominantly good, generally higher, and more homogenous for the QOLIBRI than for the SF-36 subscales. Notably, the SF-36 “Role Physical,” “Role Emotional,” and “Social Functioning” subscales showed less satisfactory discriminatory power than all other dimensions or the sum scores of both instruments. The absolute informativity of disease-specific as well as generic HRQoL instruments concerning the different groups defined by different correlates differed significantly. When the focus is on how a certain subscale or sum score differentiates between individuals in one specific dimension/health state, the QOLIBRI can be recommended as the preferable instrument. |
| format | Article |
| id | doaj-art-66638fc797a7498186da4648bc704fb4 |
| institution | Kabale University |
| issn | 0953-4180 1875-8584 |
| language | English |
| publishDate | 2016-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Behavioural Neurology |
| spelling | doaj-art-66638fc797a7498186da4648bc704fb42025-02-03T01:01:42ZengWileyBehavioural Neurology0953-41801875-85842016-01-01201610.1155/2016/79280147928014Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) InstrumentNicole von Steinbuechel0Amra Covic1Suzanne Polinder2Thomas Kohlmann3Ugne Cepulyte4Herbert Poinstingl5Joy Backhaus6Wilbert Bakx7Monika Bullinger8Anne-Lise Christensen9Rita Formisano10Henning Gibbons11Stefan Höfer12Sanna Koskinen13Andrew Maas14Edmund Neugebauer15Jane Powell16Jaana Sarajuuri17Nadine Sasse18Silke Schmidt19Holger Mühlan20Klaus von Wild21George Zitnay22Jean-Luc Truelle23Institute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyDepartment of Public Health, Erasmus Medical College, P.O. Box 2040, 3000 CA Rotterdam, NetherlandsInstitute for Community Medicine, Section of Methods in Community Medicine, Ernst-Moritz-Arndt University, Walther-Rathenau-Straße 48, 17475 Greifswald, GermanyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyHoensbroeck Rehabilitation Centre, Postbus 88, 6430 AB Hoensbroek, NetherlandsDepartment of Medical Psychology, University Hospital Eppendorf, Martinistraße 52, 20251 Hamburg, GermanyCentre for Rehabilitation of Brain Injury and Centre for Cognition and Memory, University of Copenhagen, Njalsgade 88, 2300 Copenhagen, DenmarkIRCCS, Rehabilitation Hospital, Santa Lucia Foundation, Via Ardeatina 306-354, 00179 Rome, ItalyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute of Behavioural Sciences, University of Helsinki, Siltavuorenpenger 5 A, P.O. Box 9, 00014 Helsinki, FinlandDepartment of Neurosurgery, Antwerp University Hospital and University of Antwerp, Wilrijkstraat 10, Edegem, 2650 Antwerp, BelgiumIFOM, Private University of Witten/Herdecke, Ostmerheimer Straße 200, 51109 Köln, GermanyGoldsmiths College, Department of Psychology, New Cross, London SE14 6NW, UKValidia Rehabilitation, Department of Clinical Neuropsychology and Psychology, Mannerheimintie 107, 00280 Helsinki, FinlandInstitute of Medical Psychology and Medical Sociology, University of Medicine Göttingen, Waldweg 37, 37073 Göttingen, GermanyInstitute for Psychology, Department of Health and Prevention, Ernst-Moritz-Arndt University, 17475 Greifswald, GermanyInstitute for Psychology, Department of Health and Prevention, Ernst-Moritz-Arndt University, 17475 Greifswald, GermanyMedical Faculty, Westphalian Wilhelms-University, Domagkstraße 3, 48149 Münster, GermanyMartha Jefferson Association Hospital, 459 Locust Avenue, Charlottesville, VA 22902, USAService of Physical Medicine and Rehabilitation (MPR), Raymond Poincaré Hospital, 104 boulevard Raymond-Poincaré, 92380 Garches, FrancePsychosocial, emotional, and physical problems can emerge after traumatic brain injury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been compared in detail. These aspects as well as some psychometric item characteristics were studied in a sample of 795 TBI survivors. The Shannon H' index absolute informativity, as an indicator of an instrument’s power to differentiate between individuals within a specific group or health state, was investigated. Psychometric performance of the two instruments was predominantly good, generally higher, and more homogenous for the QOLIBRI than for the SF-36 subscales. Notably, the SF-36 “Role Physical,” “Role Emotional,” and “Social Functioning” subscales showed less satisfactory discriminatory power than all other dimensions or the sum scores of both instruments. The absolute informativity of disease-specific as well as generic HRQoL instruments concerning the different groups defined by different correlates differed significantly. When the focus is on how a certain subscale or sum score differentiates between individuals in one specific dimension/health state, the QOLIBRI can be recommended as the preferable instrument.http://dx.doi.org/10.1155/2016/7928014 |
| spellingShingle | Nicole von Steinbuechel Amra Covic Suzanne Polinder Thomas Kohlmann Ugne Cepulyte Herbert Poinstingl Joy Backhaus Wilbert Bakx Monika Bullinger Anne-Lise Christensen Rita Formisano Henning Gibbons Stefan Höfer Sanna Koskinen Andrew Maas Edmund Neugebauer Jane Powell Jaana Sarajuuri Nadine Sasse Silke Schmidt Holger Mühlan Klaus von Wild George Zitnay Jean-Luc Truelle Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument Behavioural Neurology |
| title | Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument |
| title_full | Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument |
| title_fullStr | Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument |
| title_full_unstemmed | Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument |
| title_short | Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument |
| title_sort | assessment of health related quality of life after tbi comparison of a disease specific qolibri with a generic sf 36 instrument |
| url | http://dx.doi.org/10.1155/2016/7928014 |
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