Brave global spaces: Researching digital health and human rights through transnational participatory action research
In this paper we reflect on our experience with applying Transnational Participatory Action Research (TPAR) to a multi-country study of digital health and human rights of young adults living with and affected by HIV in five low- and middle-income countries (LMICs), and identify some lessons learned...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | Journal of Responsible Technology |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666659624000234 |
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| author | Javier Guerrero-C Nomtika Mjwana Sebastian Leon-Giraldo Sara L.M. Davis |
| author_facet | Javier Guerrero-C Nomtika Mjwana Sebastian Leon-Giraldo Sara L.M. Davis |
| author_sort | Javier Guerrero-C |
| collection | DOAJ |
| description | In this paper we reflect on our experience with applying Transnational Participatory Action Research (TPAR) to a multi-country study of digital health and human rights of young adults living with and affected by HIV in five low- and middle-income countries (LMICs), and identify some lessons learned for future projects. First, we propose a definition of TPAR based on our experience and our analysis of power in the project. We present an overview of the research design and implementation, which melded diverse working cultures and research methods. Next, we describe how we adapted outputs, working methods and terminology to meet the diverse and specific needs of civil society organizations, community-led networks and academics working in diverse national and transnational spaces. This required us to understand and adapt to the different temporalities at play. The creation of brave spaces and the development of an intersectional lens were key to addressing tensions that naturally emerged in our collaboration. Finally, we summarize lessons learns and challenges for the next stage of the project. |
| format | Article |
| id | doaj-art-6229f5dc484241d1a8ad41f604bc78c3 |
| institution | OA Journals |
| issn | 2666-6596 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Journal of Responsible Technology |
| spelling | doaj-art-6229f5dc484241d1a8ad41f604bc78c32025-08-20T02:34:19ZengElsevierJournal of Responsible Technology2666-65962024-12-012010009710.1016/j.jrt.2024.100097Brave global spaces: Researching digital health and human rights through transnational participatory action researchJavier Guerrero-C0Nomtika Mjwana1Sebastian Leon-Giraldo2Sara L.M. Davis3Universidad de los Andes, School of Medicine, Colombia; Corresponding author.Global Network of People Living with HIV GNP+, NetherlandsUniversidad de los Andes, School of Medicine, ColombiaUniversity of Warwick, Centre for Interdisciplinary Methodologies, UKIn this paper we reflect on our experience with applying Transnational Participatory Action Research (TPAR) to a multi-country study of digital health and human rights of young adults living with and affected by HIV in five low- and middle-income countries (LMICs), and identify some lessons learned for future projects. First, we propose a definition of TPAR based on our experience and our analysis of power in the project. We present an overview of the research design and implementation, which melded diverse working cultures and research methods. Next, we describe how we adapted outputs, working methods and terminology to meet the diverse and specific needs of civil society organizations, community-led networks and academics working in diverse national and transnational spaces. This required us to understand and adapt to the different temporalities at play. The creation of brave spaces and the development of an intersectional lens were key to addressing tensions that naturally emerged in our collaboration. Finally, we summarize lessons learns and challenges for the next stage of the project.http://www.sciencedirect.com/science/article/pii/S2666659624000234Participatory action researchDigital healthHIVHuman rightsResearch methodsBoundary objects |
| spellingShingle | Javier Guerrero-C Nomtika Mjwana Sebastian Leon-Giraldo Sara L.M. Davis Brave global spaces: Researching digital health and human rights through transnational participatory action research Journal of Responsible Technology Participatory action research Digital health HIV Human rights Research methods Boundary objects |
| title | Brave global spaces: Researching digital health and human rights through transnational participatory action research |
| title_full | Brave global spaces: Researching digital health and human rights through transnational participatory action research |
| title_fullStr | Brave global spaces: Researching digital health and human rights through transnational participatory action research |
| title_full_unstemmed | Brave global spaces: Researching digital health and human rights through transnational participatory action research |
| title_short | Brave global spaces: Researching digital health and human rights through transnational participatory action research |
| title_sort | brave global spaces researching digital health and human rights through transnational participatory action research |
| topic | Participatory action research Digital health HIV Human rights Research methods Boundary objects |
| url | http://www.sciencedirect.com/science/article/pii/S2666659624000234 |
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