Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada

Abstract Health-related academic events that focus on patient-oriented research should prioritize the needs and interests of those most affected by their outcomes. Diabetes Action Canada (DAC) has hosted six in-person workshops over eight years, bringing together over 100 participants from research,...

Full description

Saved in:
Bibliographic Details
Main Authors: Tracy McQuire, Jamie Boisvenue, Katharine Mackett, Jasmine Maghera, Julie Makarski, Al Martin, Linxi Mytkolli, Mildred Lim, Conrad Pow, Holly O. Witteman
Format: Article
Language:English
Published: BMC 2025-05-01
Series:Research Involvement and Engagement
Subjects:
Online Access:https://doi.org/10.1186/s40900-025-00729-9
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850242712837554176
author Tracy McQuire
Jamie Boisvenue
Katharine Mackett
Jasmine Maghera
Julie Makarski
Al Martin
Linxi Mytkolli
Mildred Lim
Conrad Pow
Holly O. Witteman
author_facet Tracy McQuire
Jamie Boisvenue
Katharine Mackett
Jasmine Maghera
Julie Makarski
Al Martin
Linxi Mytkolli
Mildred Lim
Conrad Pow
Holly O. Witteman
author_sort Tracy McQuire
collection DOAJ
description Abstract Health-related academic events that focus on patient-oriented research should prioritize the needs and interests of those most affected by their outcomes. Diabetes Action Canada (DAC) has hosted six in-person workshops over eight years, bringing together over 100 participants from research, healthcare delivery, government, non-profit organizations, and communities with lived experience of diabetes. This paper outlines key lessons and best practices from Diabetes Action Canada’s collaborative approach to workshop co-design with Patient Partners. For the 2024 workshop, a planning committee, largely composed of Patient Partners, played a central role in shaping the agenda. Their contributions ensured active patient participation, addressed power imbalances, fostered inclusivity, and created supportive spaces. Strategies such as co-designed agendas, symbolic markers for patient-led presentations, and facilitated networking sessions effectively enhanced engagement. Evaluations highlighted the importance of equitable participation and multidisciplinary collaboration, emphasizing the scalability of DAC’s co-design principles for diverse research and healthcare contexts. These insights provide a foundation for inclusive, impactful, and patient-centered event planning.
format Article
id doaj-art-6190b3e8e38c4c6fb5df647682c5cff3
institution OA Journals
issn 2056-7529
language English
publishDate 2025-05-01
publisher BMC
record_format Article
series Research Involvement and Engagement
spelling doaj-art-6190b3e8e38c4c6fb5df647682c5cff32025-08-20T02:00:13ZengBMCResearch Involvement and Engagement2056-75292025-05-0111111610.1186/s40900-025-00729-9Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action CanadaTracy McQuire0Jamie Boisvenue1Katharine Mackett2Jasmine Maghera3Julie Makarski4Al Martin5Linxi Mytkolli6Mildred Lim7Conrad Pow8Holly O. Witteman9Diabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaDiabetes Action CanadaAbstract Health-related academic events that focus on patient-oriented research should prioritize the needs and interests of those most affected by their outcomes. Diabetes Action Canada (DAC) has hosted six in-person workshops over eight years, bringing together over 100 participants from research, healthcare delivery, government, non-profit organizations, and communities with lived experience of diabetes. This paper outlines key lessons and best practices from Diabetes Action Canada’s collaborative approach to workshop co-design with Patient Partners. For the 2024 workshop, a planning committee, largely composed of Patient Partners, played a central role in shaping the agenda. Their contributions ensured active patient participation, addressed power imbalances, fostered inclusivity, and created supportive spaces. Strategies such as co-designed agendas, symbolic markers for patient-led presentations, and facilitated networking sessions effectively enhanced engagement. Evaluations highlighted the importance of equitable participation and multidisciplinary collaboration, emphasizing the scalability of DAC’s co-design principles for diverse research and healthcare contexts. These insights provide a foundation for inclusive, impactful, and patient-centered event planning.https://doi.org/10.1186/s40900-025-00729-9Patient-oriented researchPatient authorPatient engagementPatient-led eventsCo-design with Patient PartnersCollaborative space
spellingShingle Tracy McQuire
Jamie Boisvenue
Katharine Mackett
Jasmine Maghera
Julie Makarski
Al Martin
Linxi Mytkolli
Mildred Lim
Conrad Pow
Holly O. Witteman
Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
Research Involvement and Engagement
Patient-oriented research
Patient author
Patient engagement
Patient-led events
Co-design with Patient Partners
Collaborative space
title Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
title_full Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
title_fullStr Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
title_full_unstemmed Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
title_short Partnering for impact: best practices for planning in-person academic events with Patient Partners involvement– Lessons learned from Diabetes Action Canada
title_sort partnering for impact best practices for planning in person academic events with patient partners involvement lessons learned from diabetes action canada
topic Patient-oriented research
Patient author
Patient engagement
Patient-led events
Co-design with Patient Partners
Collaborative space
url https://doi.org/10.1186/s40900-025-00729-9
work_keys_str_mv AT tracymcquire partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT jamieboisvenue partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT katharinemackett partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT jasminemaghera partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT juliemakarski partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT almartin partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT linximytkolli partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT mildredlim partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT conradpow partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada
AT hollyowitteman partneringforimpactbestpracticesforplanninginpersonacademiceventswithpatientpartnersinvolvementlessonslearnedfromdiabetesactioncanada