Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature

Abstract Background Molybdenum cofactor deficiency (MoCD) is a rare genetic disease primarily affecting the nervous system. While xanthinuria is a typical feature of MoCD, xanthine stones have been rarely described. Herein, we report the first case of MoCD who presented with urinary xanthine stones...

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Main Authors: Abdelrahim A. Sadek, Mohammed A. Aladawy, Rofaida M. Magdy, Mohammed Fawzy Fouad, Tarek M. M. Mansour, Eman Fathalla Gad, Elsayed Abdelkreem
Format: Article
Language:English
Published: SpringerOpen 2025-06-01
Series:Egyptian Journal of Medical Human Genetics
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Online Access:https://doi.org/10.1186/s43042-025-00720-9
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author Abdelrahim A. Sadek
Mohammed A. Aladawy
Rofaida M. Magdy
Mohammed Fawzy Fouad
Tarek M. M. Mansour
Eman Fathalla Gad
Elsayed Abdelkreem
author_facet Abdelrahim A. Sadek
Mohammed A. Aladawy
Rofaida M. Magdy
Mohammed Fawzy Fouad
Tarek M. M. Mansour
Eman Fathalla Gad
Elsayed Abdelkreem
author_sort Abdelrahim A. Sadek
collection DOAJ
description Abstract Background Molybdenum cofactor deficiency (MoCD) is a rare genetic disease primarily affecting the nervous system. While xanthinuria is a typical feature of MoCD, xanthine stones have been rarely described. Herein, we report the first case of MoCD who presented with urinary xanthine stones before the onset of neurological manifestations. Case presentation A 2-year-old girl, born to consanguineous Egyptian Arab parents with a family history of a brother’s death after renal stone surgery, exhibited normal development during infancy. However, her mother noticed recurrent mustard-yellow stones in her diapers. At the age of 12 months, the girl experienced acute gastroenteritis followed by a severe encephalopathic episode, which evolved into developmental impairment, spastic quadriparesis, dystonia, aphasia, and failure to thrive. Brain magnetic resonance imaging revealed signal abnormalities in the basal ganglia as well as cerebral atrophic changes. Abdominal ultrasound exhibited multiple kidney stones obstructing the left pelvicalyceal system with back pressure changes. Laboratory tests showed hypouricemia, xanthinuria, and positive urine sulfite. Whole exome sequencing identified a homozygous variant (NM_176806.3:c.3G > A) in the MOCS2 gene, confirming a diagnosis of MoCD type B. Conclusion This case report expands the phenotypic spectrum of MoCD and underscores the diagnostic importance of urinary xanthine stones, which may precede neurological manifestations in patients with the late-onset phenotype.
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spelling doaj-art-601fb487d27c4cc4b8c1ce92dade728c2025-08-20T03:45:11ZengSpringerOpenEgyptian Journal of Medical Human Genetics2090-24412025-06-012611810.1186/s43042-025-00720-9Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literatureAbdelrahim A. Sadek0Mohammed A. Aladawy1Rofaida M. Magdy2Mohammed Fawzy Fouad3Tarek M. M. Mansour4Eman Fathalla Gad5Elsayed Abdelkreem6Neuropsychiatry Unit, Department of Pediatrics, Faculty of Medicine, Sohag UniversityNeurology Unit, Department of Pediatrics, Faculty of Medicine, Al-Azhar UniversityNeuropsychiatry Unit, Department of Pediatrics, Faculty of Medicine, Sohag UniversityNeurology Unit, Department of Pediatrics, Faculty of Medicine, Al-Azhar UniversityDepartment of Radio-Diagnosis, Faculty of Medicine, Al-Azhar UniversityNeurology Unit, Department of Pediatrics, Faculty of Medicine, Assiut UniversityDepartment of Pediatrics, Faculty of Medicine, Sohag UniversityAbstract Background Molybdenum cofactor deficiency (MoCD) is a rare genetic disease primarily affecting the nervous system. While xanthinuria is a typical feature of MoCD, xanthine stones have been rarely described. Herein, we report the first case of MoCD who presented with urinary xanthine stones before the onset of neurological manifestations. Case presentation A 2-year-old girl, born to consanguineous Egyptian Arab parents with a family history of a brother’s death after renal stone surgery, exhibited normal development during infancy. However, her mother noticed recurrent mustard-yellow stones in her diapers. At the age of 12 months, the girl experienced acute gastroenteritis followed by a severe encephalopathic episode, which evolved into developmental impairment, spastic quadriparesis, dystonia, aphasia, and failure to thrive. Brain magnetic resonance imaging revealed signal abnormalities in the basal ganglia as well as cerebral atrophic changes. Abdominal ultrasound exhibited multiple kidney stones obstructing the left pelvicalyceal system with back pressure changes. Laboratory tests showed hypouricemia, xanthinuria, and positive urine sulfite. Whole exome sequencing identified a homozygous variant (NM_176806.3:c.3G > A) in the MOCS2 gene, confirming a diagnosis of MoCD type B. Conclusion This case report expands the phenotypic spectrum of MoCD and underscores the diagnostic importance of urinary xanthine stones, which may precede neurological manifestations in patients with the late-onset phenotype.https://doi.org/10.1186/s43042-025-00720-9Molybdenum cofactor deficiencyMOCS2NephrolithiasisXanthinuriaVariant
spellingShingle Abdelrahim A. Sadek
Mohammed A. Aladawy
Rofaida M. Magdy
Mohammed Fawzy Fouad
Tarek M. M. Mansour
Eman Fathalla Gad
Elsayed Abdelkreem
Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
Egyptian Journal of Medical Human Genetics
Molybdenum cofactor deficiency
MOCS2
Nephrolithiasis
Xanthinuria
Variant
title Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
title_full Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
title_fullStr Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
title_full_unstemmed Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
title_short Urinary stones as the initial presentation in a child with late-onset molybdenum cofactor deficiency type B: a case report and review of literature
title_sort urinary stones as the initial presentation in a child with late onset molybdenum cofactor deficiency type b a case report and review of literature
topic Molybdenum cofactor deficiency
MOCS2
Nephrolithiasis
Xanthinuria
Variant
url https://doi.org/10.1186/s43042-025-00720-9
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