Managing withdrawals and exclusions of study participants in COVID-19-research by NUKLEUS

Managing withdrawals and exclusions of study participants in COVID-19-research by NUKLEUS

Abstract Background This article describes how withdrawals and exclusions of study participants can be managed in COVID-19-cohort studies by NUKLEUS (German: NUM Klinische Epidemiologie- und Studienplattform), using NAPKON (German: Nationales Pandemie Kohorten Netz). The aim of this manuscript was t...

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Main Authors: Heike Valentin, Henriette Rau, Lizon Fiedler-Lacombe, Arne Blumentritt, Ekaterina Heim, Alexander Rudolph, Katrin Leyh, Monika Kraus, Bettina Lorenz-Depiereux, Irina Chaplinskaya, Christian Schäfer, Jens Schaller, Joerg Janne Vehreschild, Melanie Stecher, Margarete Scherer, Martin Witzenrath, Beate Balzuweit, Stefan Schreiber, Thomas Bahmer, Wolfgang Lieb, Steffen Cordes, Wolfgang Hoffmann, Sabine Hanß, Dana Stahl
Format: Article
Language:English
Published: BMC 2025-05-01
Series:BMC Medical Research Methodology
Subjects:
COVID-19
GDPR
Informed consent
Informational right to self-determination
NAPKON
SARS-CoV-2
Online Access:https://doi.org/10.1186/s12874-025-02526-0
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